Hi it's not me who lost their dad-- I lost mine many years ago. 
I am still so nauseas.   
Hanging in there. 
Doing Bma fri. 
Blessings
Jeanie


Sent from my iPhone

> On Jan 13, 2015, at 4:06 AM, sherri swanson <[email protected]> 
> wrote:
> 
> Jeanie, 
> 
> I'm so sorry for your loss. You will always have them in your heart.  
> I lost my parent a long time ago but I miss them as if it were yesterday. 
> When I read your message, I looked at their photo and asked them to take good 
> care of your dad.
> 
> L'chaim, 
> 
> Sherri
> 
> 
>> On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope 
>> <[email protected]> wrote:
>> Thank you Greenie   
>> I need that. 
>> Blessings 
>> Jeanie
>> 
>> Sent from my iPhone
>> 
>>> On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope 
>>> <[email protected]> wrote:
>>> 
>>> Hi Jeanie, hang in their,  I'm thinking good thoughts and passing them on 
>>> to you.
>>>  
>>> greenie
>>>  
>>> In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, 
>>> [email protected] writes:
>>> Thanks Susan.  
>>> I'm hanging in there!!!
>>> Blessings. 
>>> Jeanie<emoji_u1f41f.png><emoji_u1f41f.png><emoji_u1f41f.png>
>>> 
>>> Sent from my iPhone
>>> 
>>>> On Jan 11, 2015, at 11:17 PM, "'Susan Zimmerman' via CMLHope" 
>>>> <[email protected]> wrote:
>>>> 
>>>> Awwwww Marcie!
>>>> 
>>>> I am so sorry for your loss, dear one.  I know you've been being a good 
>>>> caregiver for several years to your dad.  You will be rewarded some day 
>>>> for that.  My heart hurts for you, so will surely be lifting you in 
>>>> prayer.  No matter what the age, the loss is huge when we are the ones 
>>>> left behind.  It was so kind of your rabbi to mention your CML battle.  I 
>>>> pray you stop having those horrible cramps, too. Traveling      mercies 
>>>> for you all.
>>>> 
>>>> And Jeanie, also know what it's like to have a bad day from hydrea.  Many 
>>>> (including me) felt like they have the flu with the nausea, and I pray 
>>>> this will not last long at all.  A new day is coming, and I sure do hope 
>>>> your doc puts you on something that works! (maybe bosulif?)  Here's 
>>>> wishing you the best, dear one.
>>>> 
>>>> Love and 18's,
>>>> 
>>>> Susan 
>>>> 
>>>> -----Original Message-----
>>>> From: 'Marcie Goodman' via CMLHope <[email protected]>
>>>> To: cmlhope <[email protected]>
>>>> Sent: Sun, Jan 11, 2015 10:59 pm
>>>> Subject: Re: [CMLHope] Jeanie's relapse
>>>> 
>>>> Hi Jeanie,
>>>> 
>>>> So sorry you are having a tough time. I'm praying for you to have good 
>>>> test results and a much better week. 
>>>> 
>>>> My 94 year old father passed away on Friday, funeral was today. During 
>>>> evening prayers our rabbi asked that everyone pray for not only my father 
>>>> and our family but for our group struggling with the impact of CML. My dad 
>>>> hated the fact that I had this illness and knew that I had such a 
>>>> wonderful online support family. 
>>>> 
>>>> So lots of prayers for you and all of us headed out from Baltimore all 
>>>> week!
>>>> 
>>>> Much love,
>>>> 
>>>> Marcie
>>>> 
>>>> Sent from my iPhone
>>>> 
>>>>> On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope 
>>>>> <[email protected]> wrote:
>>>>> 
>>>>> Hi Marty. 
>>>>> I feel so bad today!!!
>>>>> Thinks it's from the hydrea. 
>>>>> I will print that out and keep it close. 
>>>>> I love psalms also. 
>>>>> Keep praying. 
>>>>> Jeanie 18's
>>>>> 
>>>>> Sent from my iPhone
>>>>> 
>>>>>> On Jan 11, 2015, at 8:05 AM, Marty Gartenberg <[email protected]> wrote:
>>>>>> 
>>>>>> Jeanie, I know that your feeling low right now but things will work out 
>>>>>> for you. You must have this in your heart and I know that you do. FOCUS.
>>>>>> 
>>>>>> This was something that was given to me by one of my close friends when 
>>>>>> I had to live in that plastic bubble for all of those many months.       
>>>>>>    I would read it all the time and I am now passing it on to you, and 
>>>>>> it is being sent to you from my heart because I remember my doubts but 
>>>>>> then again I also remember my strengths.
>>>>>> 
>>>>>> EXPECT THE BEST, MIND OVER          MATTER. SUCCESS IS A FUNCTION OF 
>>>>>> SELF CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO 
>>>>>> BELIEVE IN YOURSELF. IF YOU EXPECT THE          WORSE THEN THAT IS 
>>>>>> EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN 
>>>>>> THAT IS WHAT YOU WILL GET.
>>>>>> WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES 
>>>>>> OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING 
>>>>>> EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN 
>>>>>> WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF 
>>>>>> POSSIBILITY.
>>>>>> EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE 
>>>>>> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE 
>>>>>> SUCCESSFUL OUTCOME...
>>>>>> FOCUS...
>>>>>> 
>>>>>> Yes Jeanie you just keep on focusing because you are much more powerful 
>>>>>> then you think.
>>>>>> 
>>>>>> Now you know why I keep on sending 18's.
>>>>>> 
>>>>>> 18's,
>>>>>> 
>>>>>> Marty
>>>>>> 
>>>>>> On Sat, Jan 10, 2015 at 10:38 AM, 'Icandoallttc' via CMLHope 
>>>>>> <[email protected]> wrote:
>>>>>>> Hi Marty 
>>>>>>> Thanks for you uplifting message. 
>>>>>>> I am back to square one with my counts--
>>>>>>> 700 thousand platelets
>>>>>>> 163.28 WBC
>>>>>>> ANC high
>>>>>>> Creatine high
>>>>>>> Potassium high
>>>>>>> Took me off sprycel. 
>>>>>>> Allipurinoll 2 pills
>>>>>>> Hydrea 3 twice a day
>>>>>>> Yes I will fight!!!
>>>>>>> Just so tired. 
>>>>>>> I think dr will put me on new drug mon.  
>>>>>>> Got to see if there is a mutant. 
>>>>>>> Prays and love to all. 
>>>>>>> 18's. <emoji_u1f41f.png>
>>>>>>> Jeanie
>>>>>>> 
>>>>>>> 
>>>>>>> Sent from my iPhone
>>>>>>> 
>>>>>>>> On Jan 10, 2015, at 4:31 AM, sherri swanson 
>>>>>>>> <[email protected]> wrote:
>>>>>>>> 
>>>>>>>> Hi Richard,
>>>>>>>> 
>>>>>>>> If it's one thing I got, It's Attitude! At least that's what my mom 
>>>>>>>> would tell me when I was a teenager. LOL
>>>>>>>> 
>>>>>>>> Sorry to hear about the car.  This cold weather can be brutal on a 
>>>>>>>> car's battery. Glad you were able to get a new and now you’re good to 
>>>>>>>> go.  
>>>>>>>> 
>>>>>>>> Uor wind chills have been bad too. And we have some open fields so 
>>>>>>>> there is nothing to block that wind.  The other morning it was so cold 
>>>>>>>> that the water froze in our community and none of had any water for 
>>>>>>>> awhile. It's a good              thing I'm an early raiser and I took 
>>>>>>>> my shower while we had water. 
>>>>>>>> 
>>>>>>>> Currently, it is -7 with a wind chill of -25 where I live and it isn't 
>>>>>>>> going to be above zero until 9 am. That's cold. 
>>>>>>>> 
>>>>>>>> Stay warm Richard and think spring!
>>>>>>>> 
>>>>>>>> L'chaim,
>>>>>>>> 
>>>>>>>> Sherri
>>>>>>>> 
>>>>>>>>> On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <[email protected]> 
>>>>>>>>> wrote:
>>>>>>>>> Hi Jeanie,
>>>>>>>>> 
>>>>>>>>> So many things effect your kidneys. The simple ageing factor is just 
>>>>>>>>> one of them. Some medicines will also contribute to kidney function 
>>>>>>>>> probably some of these TKI's. Mine finally gave out from all of the 
>>>>>>>>> chemotherapy and radiation I had more then 25 years ago.
>>>>>>>>> 
>>>>>>>>> I can make a suggestion: If you are not diabetic try drinking 
>>>>>>>>> cranberry juice. Not the ones that are mixed up with juices like 
>>>>>>>>> grape juice. Ocean Spray has pure cranberry juice so you might want 
>>>>>>>>> to try it. Even if you are diabetic they also make a light            
>>>>>>>>>     cranberry juice.
>>>>>>>>> 
>>>>>>>>> You know what? You have been through so much that this is only a bump 
>>>>>>>>> in the road for you, and so it is for me.
>>>>>>>>> 
>>>>>>>>> We have two choices. One, continue to fight and the other is not an 
>>>>>>>>> option for me or you.
>>>>>>>>> That is why I always end any of my posts with 18's. You just hang in 
>>>>>>>>> there sweetie.
>>>>>>>>> 
>>>>>>>>> Marty
>>>>>>>>> 
>>>>>>>>>> On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope 
>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>> Hi Sherri,
>>>>>>>>>> I think the tki's contribute to kidney disease.  I think that I am 
>>>>>>>>>> in the beginning of the disease and I have been on tki's for 11 
>>>>>>>>>> years now.
>>>>>>>>>> Hang in in there; blessings
>>>>>>>>>> Jeanie<3
>>>>>>>>>>  
>>>>>>>>>> In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, 
>>>>>>>>>> [email protected] writes:
>>>>>>>>>> Hi Marty, 
>>>>>>>>>> 
>>>>>>>>>> Thanks for the prayers and right back at ya. 
>>>>>>>>>> 
>>>>>>>>>> I've been struggling with my kidney disease for many years and 
>>>>>>>>>> didn't know it, and then one day voilà the doctors found that there 
>>>>>>>>>> was a problem and that I'd been fighting it for years hence the 
>>>>>>>>>> diagnoses of Chronic Kidney Disease. And the funny thing is, I'm the 
>>>>>>>>>> only one in my entire family that has any of these diseases. My 
>>>>>>>>>> family had its share of health issues from heart disease to 
>>>>>>>>>> diabetes. But never anything like what I have. All my doctors just 
>>>>>>>>>> shake their heads. I tell them that I like to keep things 
>>>>>>>>>> interesting. And what they like is that I have a sense of humor. And 
>>>>>>>>>> at this point, it is much better to joke and laugh than to worry and 
>>>>>>>>>> cry.  While I still take what I have seriously, I'm just happy to be 
>>>>>>>>>> here. 
>>>>>>>>>> 
>>>>>>>>>> I would be a lot happier if the weather here would warm up. For 
>>>>>>>>>> crying out loud it was -5 here yesterday and I was out in it. Now 
>>>>>>>>>> that is one hearty person or a very foolish one. The jury is still 
>>>>>>>>>> out on                    that one.  Today it is going to be a balmy 
>>>>>>>>>> 8.  Woohoo! A heat wave. And, again I'll be out in it as I have to 
>>>>>>>>>> go and get a Rx that I need.  
>>>>>>>>>> 
>>>>>>>>>> L'chaim,
>>>>>>>>>> 
>>>>>>>>>> Sherri  
>>>>>>>>>> 
>>>>>>>>>> On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <[email protected]> 
>>>>>>>>>> wrote:
>>>>>>>>>>> Dear Sherri,                      
>>>>>>>>>>> 
>>>>>>>>>>> Yes, you are a fighter and it takes one to know one. I pray that 
>>>>>>>>>>> everything turns out well for you. 
>>>>>>>>>>> 
>>>>>>>>>>> And you are correct that all of the radiation and chemotherapy did 
>>>>>>>>>>> destroy both of my kidneys. It has been over 25 years that I had my 
>>>>>>>>>>> BMT. It took many years for my kidneys to fail and that is probably 
>>>>>>>>>>> why most transplant centers will usually not use total body 
>>>>>>>>>>> radiation any more unless it is really needed.
>>>>>>>>>>> 
>>>>>>>>>>> 18's,
>>>>>>>>>>> 
>>>>>>>>>>> Marty
>>>>>>>>>>> 
>>>>>>>>>>> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson 
>>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>>>> Hi Marty, 
>>>>>>>>>>>> 
>>>>>>>>>>>> The doctors are trying to treat the different illnesses that are 
>>>>>>>>>>>> included in my condition. There are so many and they do so many 
>>>>>>>>>>>> different things, that I am happy just to to be here.              
>>>>>>>>>>>>           I agree that as we get older there are some unusual 
>>>>>>>>>>>> things                        that that find us. But in the long 
>>>>>>>>>>>> run, we all got something. I'm a survivor. It's what I do. So when 
>>>>>>>>>>>> I found out on Monday that I have a large mass on my thyroid, I 
>>>>>>>>>>>> told my doctor I guess we're going to be busy this winter. At 
>>>>>>>>>>>> least I'm not an alarmist. <35C.png>
>>>>>>>>>>>> 
>>>>>>>>>>>> I too have trouble with my kidneys. Not to the extend that you do, 
>>>>>>>>>>>> I'm working to keep myself at the current level of stage III 
>>>>>>>>>>>> Kidney Disease. Some days, I'm good others, not so                 
>>>>>>>>>>>>        much.  Lately I've not been doing so good and I've had to 
>>>>>>>>>>>> go and buy new shoes as my feet have been so swollen that my 
>>>>>>>>>>>> current size no longer fit. I wear compression socks all the time 
>>>>>>>>>>>> as well. 
>>>>>>>>>>>> 
>>>>>>>>>>>> My Nephrologist ran some blood work and found that my sodium was 
>>>>>>>>>>>> very low and and so was a bunch of other levels. Now, he is an 
>>>>>>>>>>>> alarmist. If I even look like I'm getting a cold he freaks out. I 
>>>>>>>>>>>> love him dearly, and I do what he says, but I can't sneeze without 
>>>>>>>>>>>> him making me go see my GP or the Oncologist or whatever doctor he 
>>>>>>>>>>>> thinks I need to see. 
>>>>>>>>>>>> 
>>>>>>>>>>>> I've heard that when you have a BMT and have to have radiation and 
>>>>>>>>>>>> chemo, sometimes kidney failure is possible. How long have you 
>>>>>>>>>>>> been on the list for transplant? 
>>>>>>>>>>>> 
>>>>>>>>>>>> Well, I'm glad that you are here and that you are strong. You're 
>>>>>>>>>>>> an inspiration to all of us. Thanks for all you do Marty.
>>>>>>>>>>>> 
>>>>>>>>>>>> L'chaim
>>>>>>>>>>>> 
>>>>>>>>>>>> Sherri 
>>>>>>>>>>>> 
>>>>>>>>>>>>> On Thu, Jan 8, 2015 at 10:07 AM, Marty Gartenberg 
>>>>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>>>>> Hi again Sherri,
>>>>>>>>>>>>> 
>>>>>>>>>>>>> Hopefully you will be able to be treated for this condition. It 
>>>>>>>>>>>>> seems that as most of us get older we start suffering from some 
>>>>>>>>>>>>> very unusual things, but that is the price we must pay to remain 
>>>>>>>>>>>>> alive. We just have to do whatever we can to keep on going 
>>>>>>>>>>>>> because we have no other choice.
>>>>>>>>>>>>> 
>>>>>>>>>>>>> My kidneys failed four years ago and I must be on dialysis 
>>>>>>>>>>>>> because it is keeping me alive until I can                        
>>>>>>>>>>>>>   hopefully receive a kidney transplant.
>>>>>>>>>>>>> 
>>>>>>>>>>>>> This happened because when I received a bone marrow transplant 
>>>>>>>>>>>>> more then 25 years all of the radiation and chemotherapy started 
>>>>>>>>>>>>> to destroy my kidneys, but i'm still alive today because of it. 
>>>>>>>>>>>>> We all have our own battles in life and that is just the way it 
>>>>>>>>>>>>> is.
>>>>>>>>>>>>> 
>>>>>>>>>>>>> I wish you much health and happiness in this New Year.
>>>>>>>>>>>>> 
>>>>>>>>>>>>> 18's,
>>>>>>>>>>>>> 
>>>>>>>>>>>>> Marty 
>>>>>>>>>>>>> 
>>>>>>>>>>>>> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson 
>>>>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>>>>>> Hi Marty, 
>>>>>>>>>>>>>> 
>>>>>>>>>>>>>> Happy New Year. I hope you are well. Thanks for the research I 
>>>>>>>>>>>>>> enjoyed article. I could only wish it was as simple as being as 
>>>>>>>>>>>>>> side effect of my TKI. In my case, nothing is ever simple LOL.  
>>>>>>>>>>>>>> What I have is called Autonomic Neuropathy.  Basically, my 
>>>>>>>>>>>>>> Autonomic Nervous System has malfunctioned.  Here is a link for 
>>>>>>>>>>>>>> you to read if you would like to.
>>>>>>>>>>>>>> 
>>>>>>>>>>>>>> http://en.wikipedia.org/wiki/Dysautonomia
>>>>>>>>>>>>>>  
>>>>>>>>>>>>>> In a nutshell, Autonomic Neuropathy is a nerve disorder that 
>>>>>>>>>>>>>> affects involuntary body functions, including heart rate, blood 
>>>>>>>>>>>>>> pressure, perspiration and digestion.
>>>>>>>>>>>>>> It isn't a specific disease. Autonomic Neuropathy refers to 
>>>>>>>>>>>>>> damage to the autonomic nerves. This damage disrupts signals 
>>>>>>>>>>>>>> between the brain and portions of the autonomic nervous system, 
>>>>>>>>>>>>>> such as the heart, blood vessels and sweat glands. This can 
>>>>>>>>>>>>>> cause decreased or abnormal performance of one or more 
>>>>>>>>>>>>>> involuntary body functions.
>>>>>>>>>>>>>> Autonomic Neuropathy can be a complication of a number of 
>>>>>>>>>>>>>> diseases and conditions. And some medications can cause 
>>>>>>>>>>>>>> autonomic neuropathy as a side effect. Signs, symptoms and 
>>>>>>>>>>>>>> treatment of autonomic neuropathy vary depending on the cause, 
>>>>>>>>>>>>>> and on which nerves are affected. 
>>>>>>>>>>>>>> L'Chaim,
>>>>>>>>>>>>>> Sherri
>>>>>>>>>>>>>> 
>>>>>>>>>>>>>> 
>>>>>>>>>>>>>> 
>>>>>>>>>>>>>> On Wed, Jan 7, 2015 at 7:02 PM,                            Marty 
>>>>>>>>>>>>>> Gartenberg <[email protected]> wrote:
>>>>>>>>>>>>>>> Hi Sherri,
>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>> I did a little research on your no sweating problem, and it is 
>>>>>>>>>>>>>>> probably a side effect of your TKI treatment. 
>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>> I also ran across an article which you can read here. It does 
>>>>>>>>>>>>>>> mention something about the lack of sweating. It probably has 
>>>>>>>>>>>>>>> nothing to do with your problem but maybe you should read it 
>>>>>>>>>>>>>>> anyway.
>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>> http://en.wikipedia.org/wiki/Fabry_disease
>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>> 18's,
>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>> Marty
>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson 
>>>>>>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>>>>>>>> Hello, 
>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>> I've had CML for 12 years and I've taken Gleevec for those 12 
>>>>>>>>>>>>>>>> years. I've also experienced night sweats for many years.  At 
>>>>>>>>>>>>>>>> first I was told that it was due to menopause because of my 
>>>>>>>>>>>>>>>> age at the time. Go figure. When that was no longer an option, 
>>>>>>>>>>>>>>>> the only thing left was the Gleevec. Since being dx'd with the 
>>>>>>>>>>>>>>>> CML in 2003, I've been dx'd with other chronic illnesses that 
>>>>>>>>>>>>>>>> are just as serious.
>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>> With these new illnesses came a new problem. I no longer sweat 
>>>>>>>>>>>>>>>> at all. So now I have the complete opposite problem. No matter 
>>>>>>>>>>>>>>>> how hot it is, I never sweat. I a way, it's nice because I'm 
>>>>>>>>>>>>>>>> always cold and I long for very hot days so I can go out side 
>>>>>>>>>>>>>>>> in the heat. But my oncologist has warned me to not do it for 
>>>>>>>>>>>>>>>> very long as I have no way to control my body temperature.  
>>>>>>>>>>>>>>>> Unfortunately, it works the same way with the cold. My body 
>>>>>>>>>>>>>>>> temperature is a constant 95 degrees.
>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>> So, in answer to your question, yes, the Gleevec does cause 
>>>>>>>>>>>>>>>> night sweats. It is one of its side effects. Unfortunately, I 
>>>>>>>>>>>>>>>> was not able to find a remedy for my night sweats other than 
>>>>>>>>>>>>>>>> going to the extreme which I do not recommend. <332.png>
>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>> I hope everyone has a good New Year and is healthy. Keep my 
>>>>>>>>>>>>>>>> posted as to what you find out. Even thought I no long have 
>>>>>>>>>>>>>>>> this issue, I would still like to be kept in the loop.
>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>> L'chaim
>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>> Sherri
>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>> On Tue, Jan 6, 2015 at 4:19                                PM, 
>>>>>>>>>>>>>>>> 'Marcie Goodman' via CMLHope <[email protected]> wrote:
>>>>>>>>>>>>>>>>> Hello, Susan. Gosh, we are just sweating through this it 
>>>>>>>>>>>>>>>>> seems. I will see what may be available naturally, as I don't 
>>>>>>>>>>>>>>>>> want hormones either. Sorry you are experiencing this same 
>>>>>>>>>>>>>>>>> problem which I hope to solve.
>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>> Best wishes to you, Roy and your beautiful family for a 
>>>>>>>>>>>>>>>>> blessed New Year. 
>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>> Marcie
>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>> Sent from my iPad
>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope" 
>>>>>>>>>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> Dear Marcie,
>>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> I have had night sweats for years, intensifying after my dx 
>>>>>>>>>>>>>>>>>> in 2005.  I have day sweats, too.  When I stand up for more 
>>>>>>>>>>>>>>>>>> than five minutes to do anything at all I start profusely 
>>>>>>>>>>>>>>>>>> sweating from weakness.  I think part of this is from the 
>>>>>>>>>>>>>>>>>> bosulif, but most is from the stroke weakness and need for   
>>>>>>>>>>>>>>>>>>                                hormones.  I will not take 
>>>>>>>>>>>>>>>>>> artificial hormones and have not gotten the good kind that 
>>>>>>>>>>>>>>>>>> are specially made for each person.  I totally sympathize 
>>>>>>>>>>>>>>>>>> with you Marcie.  You might want to go to a naturalist 
>>>>>>>>>>>>>>>>>> doctor about getting a test for hormones and then they will 
>>>>>>>>>>>>>>>>>> make a compound for you of cream that usually works.  
>>>>>>>>>>>>>>>>>> Regular md's only know to prescribe the synthetic or horse 
>>>>>>>>>>>>>>>>>> hormones which do cause cancer.  That's my take on it, hope 
>>>>>>>>>>>>>>>>>> you find some relief!!!
>>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> Thanks for your always uplifting posts!  Happy New Year to 
>>>>>>>>>>>>>>>>>> you, too!
>>>>>>>>>>>>>>>>>> Susan F. Zimmerman
>>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> -----Original Message-----
>>>>>>>>>>>>>>>>>> From: 'Marcie Goodman' via CMLHope <[email protected]>
>>>>>>>>>>>>>>>>>> To: cmlhope <[email protected]>
>>>>>>>>>>>>>>>>>> Sent: Mon, Jan 5, 2015 8:41 am
>>>>>>>>>>>>>>>>>> Subject: [CMLHope] Night Sweats
>>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> Happy New Year, dear friends. I'm wondering if any of you 
>>>>>>>>>>>>>>>>>> suffer with night 
>>>>>>>>>>>>>>>>>> sweats as a side effect of your TKI.  I do, and have, over 
>>>>>>>>>>>>>>>>>> the years of my 
>>>>>>>>>>>>>>>>>> treatment. I don't know that it is happening more frequently 
>>>>>>>>>>>>>>>>>> but the sweats seem 
>>>>>>>>>>>>>>>>>> to be more intense. Is there anything that you know of that 
>>>>>>>>>>>>>>>>>> will help?
>>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> Many thanks for always being there to offer encouragement 
>>>>>>>>>>>>>>>>>> and assistance. 
>>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> Marcie
>>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> Sent from my iPad
>>>>>>>>>>>>>>>>>> 
>>>>>>>>>>>>>>>>>> -- 
>>>>>>>>>>>>>>>>>> -- 
>>>>>>>>>>>>>>>>>> [CMLHope]
>>>>>>>>>>>>>>>>>> A support group of http://cmlhope.com
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>>>>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>>>>> 
>>>>>>>>>>>>> -- 
>>>>>>>>>>>>> -- 
>>>>>>>>>>>>> [CMLHope]
>>>>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>>>>  
>>>>>>>>>>>>> You received this message because you are subscribed to the 
>>>>>>>>>>>>> Google Groups "CMLHope" group.
>>>>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>>>>> To unsubscribe from this group, send email to 
>>>>>>>>>>>>> [email protected]
>>>>>>>>>>>>> For more options, visit this group at 
>>>>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>>>>> --- 
>>>>>>>>>>>>> You received this message because you are subscribed to the 
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>>>>>>>>>>>>> send an email to [email protected].
>>>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>>>> 
>>>>>>>>>>>> -- 
>>>>>>>>>>>> -- 
>>>>>>>>>>>> [CMLHope]
>>>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>>>  
>>>>>>>>>>>> You received this message because you are subscribed to the Google 
>>>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>>>> To unsubscribe from this group, send email to 
>>>>>>>>>>>> [email protected]
>>>>>>>>>>>> For more options, visit this group at 
>>>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>>>> --- 
>>>>>>>>>>>> You received this message because you are subscribed to the Google 
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>>>>>>>>>>>> send an email to [email protected].
>>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>>> 
>>>>>>>>>>> -- 
>>>>>>>>>>> -- 
>>>>>>>>>>> [CMLHope]
>>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>>  
>>>>>>>>>>> You received this message because you are subscribed to the Google 
>>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>>> To unsubscribe from this group, send email to 
>>>>>>>>>>> [email protected]
>>>>>>>>>>> For more options, visit this group at 
>>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>>> --- 
>>>>>>>>>>> You received this message because you are subscribed to the Google 
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>>>>>>>>>>> send an email to [email protected].
>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>> 
>>>>>>>>>> -- 
>>>>>>>>>> -- 
>>>>>>>>>> [CMLHope]
>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>  
>>>>>>>>>> You received this message because you are subscribed to the Google 
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>> To unsubscribe from this group, send email to 
>>>>>>>>>> [email protected]
>>>>>>>>>> For more options, visit this group at 
>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>> --- 
>>>>>>>>>> You received this message because you are subscribed to the Google 
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>>>>>>>>>> send an email to [email protected].
>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>> -- 
>>>>>>>>>> -- 
>>>>>>>>>> [CMLHope]
>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>  
>>>>>>>>>> You received this message because you are subscribed to the Google 
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>> To unsubscribe from this group, send email to 
>>>>>>>>>> [email protected]
>>>>>>>>>> For more options, visit this group at 
>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>> --- 
>>>>>>>>>> You received this message because you are subscribed to the Google 
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>>>>>>>>>> send an email to [email protected].
>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>> 
>>>>>>>>> -- 
>>>>>>>>> -- 
>>>>>>>>> [CMLHope]
>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>> -------------------------------------------------
>>>>>>>>>  
>>>>>>>>> You received this message because you are subscribed to the Google 
>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>> To unsubscribe from this group, send email to 
>>>>>>>>> [email protected]
>>>>>>>>> For more options, visit this group at 
>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>> --- 
>>>>>>>>> You received this message because you are subscribed to the Google 
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>>>>>>>>> send an email to [email protected].
>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>> 
>>>>>>>> -- 
>>>>>>>> -- 
>>>>>>>> [CMLHope]
>>>>>>>> A support group of http://cmlhope.com
>>>>>>>> -------------------------------------------------
>>>>>>>>  
>>>>>>>> You received this message because you are subscribed to the Google 
>>>>>>>> Groups "CMLHope" group.
>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>> To unsubscribe from this group, send email to 
>>>>>>>> [email protected]
>>>>>>>> For more options, visit this group at 
>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>> --- 
>>>>>>>> You received this message because you are subscribed to the Google 
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>>>>>>>> an email to [email protected].
>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>> 
>>>>>>> -- 
>>>>>>> -- 
>>>>>>> [CMLHope]
>>>>>>> A support group of http://cmlhope.com
>>>>>>> -------------------------------------------------
>>>>>>>  
>>>>>>> You received this message because you are subscribed to the Google 
>>>>>>> Groups "CMLHope" group.
>>>>>>> To post to this group, send email to [email protected]
>>>>>>> To unsubscribe from this group, send email to 
>>>>>>> [email protected]
>>>>>>> For more options, visit this group at 
>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>> --- 
>>>>>>> You received this message because you are subscribed to the Google 
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>>>>>>> an email to [email protected].
>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>> 
>>>>>> -- 
>>>>>> -- 
>>>>>> [CMLHope]
>>>>>> A support group of http://cmlhope.com
>>>>>> -------------------------------------------------
>>>>>>  
>>>>>> You received this message because you are subscribed to the Google 
>>>>>> Groups "CMLHope" group.
>>>>>> To post to this group, send email to [email protected]
>>>>>> To unsubscribe from this group, send email to 
>>>>>> [email protected]
>>>>>> For more options, visit this group at 
>>>>>> http://groups.google.com/group/CMLHope
>>>>>> --- 
>>>>>> You received this message because you are subscribed to the Google 
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>>>>>> To unsubscribe from this group and stop receiving emails from it, send 
>>>>>> an email to [email protected].
>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>> -- 
>>>>> -- 
>>>>> [CMLHope]
>>>>> A support group of http://cmlhope.com
>>>>> -------------------------------------------------
>>>>>  
>>>>> You received this message because you are subscribed to the Google Groups 
>>>>> "CMLHope" group.
>>>>> To post to this group, send email to [email protected]
>>>>> To unsubscribe from this group, send email to 
>>>>> [email protected]
>>>>> For more options, visit this group at 
>>>>> http://groups.google.com/group/CMLHope
>>>>> --- 
>>>>> You received this message because you are subscribed to the Google Groups 
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>>>>> To unsubscribe from this group and stop receiving emails from it, send an 
>>>>> email to [email protected].
>>>>> For more options, visit https://groups.google.com/d/optout.
>>>> 
>>>> -- 
>>>> -- 
>>>> [CMLHope]
>>>> A support group of http://cmlhope.com
>>>> -------------------------------------------------
>>>>  
>>>> You received this message because you are subscribed to the Google Groups 
>>>> "CMLHope" group.
>>>> To post to this group, send email to [email protected]
>>>> To unsubscribe from this group, send email to 
>>>> [email protected]
>>>> For more options, visit this group at 
>>>> http://groups.google.com/group/CMLHope
>>>> --- 
>>>> You received this message because you are subscribed to the Google Groups 
>>>> "CMLHope" group.
>>>> To unsubscribe from this group and stop receiving emails from it, send an 
>>>> email to [email protected].
>>>> For more options, visit https://groups.google.com/d/optout.
>>>> -- 
>>>> -- 
>>>> [CMLHope]
>>>> A support group of http://cmlhope.com
>>>> -------------------------------------------------
>>>>  
>>>> You received this message because you are subscribed to the Google Groups 
>>>> "CMLHope" group.
>>>> To post to this group, send email to [email protected]
>>>> To unsubscribe from this group, send email to 
>>>> [email protected]
>>>> For more options, visit this group at 
>>>> http://groups.google.com/group/CMLHope
>>>> --- 
>>>> You received this message because you are subscribed to the Google Groups 
>>>> "CMLHope" group.
>>>> To unsubscribe from this group and stop receiving emails from it, send an 
>>>> email to [email protected].
>>>> For more options, visit https://groups.google.com/d/optout.
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -------------------------------------------------
>>>  
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To post to this group, send email to [email protected]
>>> To unsubscribe from this group, send email to 
>>> [email protected]
>>> For more options, visit this group at http://groups.google.com/group/CMLHope
>>> --- 
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To unsubscribe from this group and stop receiving emails from it, send an 
>>> email to [email protected].
>>> For more options, visit https://groups.google.com/d/optout.
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -------------------------------------------------
>>>  
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To post to this group, send email to [email protected]
>>> To unsubscribe from this group, send email to 
>>> [email protected]
>>> For more options, visit this group at http://groups.google.com/group/CMLHope
>>> --- 
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To unsubscribe from this group and stop receiving emails from it, send an 
>>> email to [email protected].
>>> For more options, visit https://groups.google.com/d/optout.
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -------------------------------------------------
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to [email protected]
>> To unsubscribe from this group, send email to 
>> [email protected]
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to [email protected].
>> For more options, visit https://groups.google.com/d/optout.
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -------------------------------------------------
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to [email protected]
> To unsubscribe from this group, send email to 
> [email protected]
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to [email protected].
> For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-------------------------------------------------

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