They put you to sleep for Bma. Sent from my iPhone
> On Jan 14, 2015, at 10:56 AM, "'Icandoallttc' via CMLHope" > <[email protected]> wrote: > > Hi it's not me who lost their dad-- I lost mine many years ago. > I am still so nauseas. > Hanging in there. > Doing Bma fri. > Blessings > Jeanie > > > Sent from my iPhone > >> On Jan 13, 2015, at 4:06 AM, sherri swanson <[email protected]> >> wrote: >> >> Jeanie, >> >> I'm so sorry for your loss. You will always have them in your heart. >> I lost my parent a long time ago but I miss them as if it were yesterday. >> When I read your message, I looked at their photo and asked them to take >> good care of your dad. >> >> L'chaim, >> >> Sherri >> >> >>> On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope >>> <[email protected]> wrote: >>> Thank you Greenie >>> I need that. >>> Blessings >>> Jeanie >>> >>> Sent from my iPhone >>> >>>> On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope >>>> <[email protected]> wrote: >>>> >>>> Hi Jeanie, hang in their, I'm thinking good thoughts and passing them on >>>> to you. >>>> >>>> greenie >>>> >>>> In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, >>>> [email protected] writes: >>>> Thanks Susan. >>>> I'm hanging in there!!! >>>> Blessings. >>>> Jeanie<emoji_u1f41f.png><emoji_u1f41f.png><emoji_u1f41f.png> >>>> >>>> Sent from my iPhone >>>> >>>>> On Jan 11, 2015, at 11:17 PM, "'Susan Zimmerman' via CMLHope" >>>>> <[email protected]> wrote: >>>>> >>>>> Awwwww Marcie! >>>>> >>>>> I am so sorry for your loss, dear one. I know you've been being a good >>>>> caregiver for several years to your dad. You will be rewarded some >>>>> day for that. My heart hurts for you, so will surely be lifting you in >>>>> prayer. No matter what the age, the loss is huge when we are the ones >>>>> left behind. It was so kind of your rabbi to mention your CML battle. I >>>>> pray you stop having those horrible cramps, too. Traveling mercies for >>>>> you all. >>>>> >>>>> And Jeanie, also know what it's like to have a bad day from hydrea. Many >>>>> (including me) felt like they have the flu with the nausea, and I pray >>>>> this will not last long at all. A new day is coming, and I sure do hope >>>>> your doc puts you on something that works! (maybe bosulif?) Here's >>>>> wishing you the best, dear one. >>>>> >>>>> Love and 18's, >>>>> >>>>> Susan >>>>> >>>>> -----Original Message----- >>>>> From: 'Marcie Goodman' via CMLHope <[email protected]> >>>>> To: cmlhope <[email protected]> >>>>> Sent: Sun, Jan 11, 2015 10:59 pm >>>>> Subject: Re: [CMLHope] Jeanie's relapse >>>>> >>>>> Hi Jeanie, >>>>> >>>>> So sorry you are having a tough time. I'm praying for you to have good >>>>> test results and a much better week. >>>>> >>>>> My 94 year old father passed away on Friday, funeral was today. During >>>>> evening prayers our rabbi asked that everyone pray for not only my father >>>>> and our family but for our group struggling with the impact of CML. My >>>>> dad hated the fact that I had this illness and knew that I had such a >>>>> wonderful online support family. >>>>> >>>>> So lots of prayers for you and all of us headed out from Baltimore all >>>>> week! >>>>> >>>>> Much love, >>>>> >>>>> Marcie >>>>> >>>>> Sent from my iPhone >>>>> >>>>>> On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope >>>>>> <[email protected]> wrote: >>>>>> >>>>>> Hi Marty. >>>>>> I feel so bad today!!! >>>>>> Thinks it's from the hydrea. >>>>>> I will print that out and keep it close. >>>>>> I love psalms also. >>>>>> Keep praying. >>>>>> Jeanie 18's >>>>>> >>>>>> Sent from my iPhone >>>>>> >>>>>>> On Jan 11, 2015, at 8:05 AM, Marty Gartenberg <[email protected]> wrote: >>>>>>> >>>>>>> Jeanie, I know that your feeling low right now but things will work out >>>>>>> for you. You must have this in your heart and I know that you do. FOCUS. >>>>>>> >>>>>>> This was something that was given to me by one of my close friends when >>>>>>> I had to live in that plastic bubble for all of those many months. I >>>>>>> would read it all the time and I am now passing it on to you, and it is >>>>>>> being sent to you from my heart because I remember my doubts but then >>>>>>> again I also remember my strengths. >>>>>>> >>>>>>> EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF >>>>>>> CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE >>>>>>> IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL >>>>>>> GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU >>>>>>> WILL GET. >>>>>>> WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES >>>>>>> OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING >>>>>>> EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE >>>>>>> THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE >>>>>>> AREA OF POSSIBILITY. >>>>>>> EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE >>>>>>> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE >>>>>>> SUCCESSFUL OUTCOME... >>>>>>> FOCUS... >>>>>>> >>>>>>> Yes Jeanie you just keep on focusing because you are much more powerful >>>>>>> then you think. >>>>>>> >>>>>>> Now you know why I keep on sending 18's. >>>>>>> >>>>>>> 18's, >>>>>>> >>>>>>> Marty >>>>>>> >>>>>>> On Sat, Jan 10, 2015 at 10:38 AM, 'Icandoallttc' via CMLHope >>>>>>> <[email protected]> wrote: >>>>>>>> Hi Marty >>>>>>>> Thanks for you uplifting message. >>>>>>>> I am back to square one with my counts-- >>>>>>>> 700 thousand platelets >>>>>>>> 163.28 WBC >>>>>>>> ANC high >>>>>>>> Creatine high >>>>>>>> Potassium high >>>>>>>> Took me off sprycel. >>>>>>>> Allipurinoll 2 pills >>>>>>>> Hydrea 3 twice a day >>>>>>>> Yes I will fight!!! >>>>>>>> Just so tired. >>>>>>>> I think dr will put me on new drug mon. >>>>>>>> Got to see if there is a mutant. >>>>>>>> Prays and love to all. >>>>>>>> 18's. <emoji_u1f41f.png> >>>>>>>> Jeanie >>>>>>>> >>>>>>>> >>>>>>>> Sent from my iPhone >>>>>>>> >>>>>>>>> On Jan 10, 2015, at 4:31 AM, sherri swanson >>>>>>>>> <[email protected]> wrote: >>>>>>>>> >>>>>>>>> Hi Richard, >>>>>>>>> >>>>>>>>> If it's one thing I got, It's Attitude! At least that's what my mom >>>>>>>>> would tell me when I was a teenager. LOL >>>>>>>>> >>>>>>>>> Sorry to hear about the car. This cold weather can be brutal on a >>>>>>>>> car's battery. Glad you were able to get a new and now you’re good to >>>>>>>>> go. >>>>>>>>> >>>>>>>>> Uor wind chills have been bad too. And we have some open fields so >>>>>>>>> there is nothing to block that wind. The other morning it was so >>>>>>>>> cold that the water froze in our community and none of had any water >>>>>>>>> for awhile. It's a good thing I'm an early raiser and I took my >>>>>>>>> shower while we had water. >>>>>>>>> >>>>>>>>> Currently, it is -7 with a wind chill of -25 where I live and it >>>>>>>>> isn't going to be above zero until 9 am. That's cold. >>>>>>>>> >>>>>>>>> Stay warm Richard and think spring! >>>>>>>>> >>>>>>>>> L'chaim, >>>>>>>>> >>>>>>>>> Sherri >>>>>>>>> >>>>>>>>>> On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <[email protected]> >>>>>>>>>> wrote: >>>>>>>>>> Hi Jeanie, >>>>>>>>>> >>>>>>>>>> So many things effect your kidneys. The simple ageing factor is just >>>>>>>>>> one of them. Some medicines will also contribute to kidney function >>>>>>>>>> probably some of these TKI's. Mine finally gave out from all of the >>>>>>>>>> chemotherapy and radiation I had more then 25 years ago. >>>>>>>>>> >>>>>>>>>> I can make a suggestion: If you are not diabetic try drinking >>>>>>>>>> cranberry juice. Not the ones that are mixed up with juices like >>>>>>>>>> grape juice. Ocean Spray has pure cranberry juice so you might >>>>>>>>>> want to try it. Even if you are diabetic they also make a >>>>>>>>>> light cranberry juice. >>>>>>>>>> >>>>>>>>>> You know what? You have been through so much that this is only a >>>>>>>>>> bump in the road for you, and so it is for me. >>>>>>>>>> >>>>>>>>>> We have two choices. One, continue to fight and the other is not an >>>>>>>>>> option for me or you. >>>>>>>>>> That is why I always end any of my posts with 18's. You just hang in >>>>>>>>>> there sweetie. >>>>>>>>>> >>>>>>>>>> Marty >>>>>>>>>> >>>>>>>>>>> On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope >>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>> Hi Sherri, >>>>>>>>>>> I think the tki's contribute to kidney disease. I think that I am >>>>>>>>>>> in the beginning of the disease and I have been on tki's for 11 >>>>>>>>>>> years now. >>>>>>>>>>> Hang in in there; blessings >>>>>>>>>>> Jeanie<3 >>>>>>>>>>> >>>>>>>>>>> In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, >>>>>>>>>>> [email protected] writes: >>>>>>>>>>> Hi Marty, >>>>>>>>>>> >>>>>>>>>>> Thanks for the prayers and right back at ya. >>>>>>>>>>> >>>>>>>>>>> I've been struggling with my kidney disease for many years and >>>>>>>>>>> didn't know it, and then one day voilà the doctors found that there >>>>>>>>>>> was a problem and that I'd been fighting it for years hence the >>>>>>>>>>> diagnoses of Chronic Kidney Disease. And the funny thing is, I'm >>>>>>>>>>> the only one in my entire family that has any of these diseases. My >>>>>>>>>>> family had its share of health issues from heart disease to >>>>>>>>>>> diabetes. But never anything like what I have. All my doctors just >>>>>>>>>>> shake their heads. I tell them that I like to keep things >>>>>>>>>>> interesting. And what they like is that I have a sense of humor. >>>>>>>>>>> And at this point, it is much better to joke and laugh than to >>>>>>>>>>> worry and cry. While I still take what I have seriously, I'm just >>>>>>>>>>> happy to be here. >>>>>>>>>>> >>>>>>>>>>> I would be a lot happier if the weather here >>>>>>>>>>> would warm up. For crying out loud it was -5 here yesterday and I >>>>>>>>>>> was out in it. Now that is one hearty person or >>>>>>>>>>> a very foolish one. The jury is still out on that one. Today it is >>>>>>>>>>> going to be a balmy 8. Woohoo! A heat wave. And, again I'll be out >>>>>>>>>>> in it as I have to go and get a Rx that I need. >>>>>>>>>>> >>>>>>>>>>> L'chaim, >>>>>>>>>>> >>>>>>>>>>> Sherri >>>>>>>>>>> >>>>>>>>>>> On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg >>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>> Dear Sherri, >>>>>>>>>>>> >>>>>>>>>>>> Yes, you are a fighter and it takes one to know one. I pray that >>>>>>>>>>>> everything turns out well for you. >>>>>>>>>>>> >>>>>>>>>>>> And you are correct that all of the radiation and chemotherapy did >>>>>>>>>>>> destroy both of my kidneys. It has been over 25 years that I had >>>>>>>>>>>> my BMT. It took many years for my kidneys to fail and that is >>>>>>>>>>>> probably why most transplant centers will usually not use total >>>>>>>>>>>> body radiation any more unless it is really needed. >>>>>>>>>>>> >>>>>>>>>>>> 18's, >>>>>>>>>>>> >>>>>>>>>>>> Marty >>>>>>>>>>>> >>>>>>>>>>>>> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson >>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>> Hi Marty, >>>>>>>>>>>>> >>>>>>>>>>>>> The doctors are trying to treat the different illnesses that are >>>>>>>>>>>>> included in my condition. There are so many and they do so many >>>>>>>>>>>>> different things, that I am happy just to to be here. I agree >>>>>>>>>>>>> that as we get older there are some unusual things that that find >>>>>>>>>>>>> us. But in the long run, we all got something. I'm a survivor. >>>>>>>>>>>>> It's what I do. So when I found out on Monday that I have a large >>>>>>>>>>>>> mass on my thyroid, I told my doctor I guess we're going to be >>>>>>>>>>>>> busy this winter. At least I'm not an alarmist. <35C.png> >>>>>>>>>>>>> >>>>>>>>>>>>> I too have trouble with my kidneys. Not to the extend that you >>>>>>>>>>>>> do, I'm working to keep myself at the current level of stage III >>>>>>>>>>>>> Kidney Disease. Some days, I'm good others, not so much. Lately >>>>>>>>>>>>> I've not been doing so good and I've had >>>>>>>>>>>>> to go and buy new shoes as my feet have been so swollen that my >>>>>>>>>>>>> current size no longer fit. I wear compression socks all the time >>>>>>>>>>>>> as well. >>>>>>>>>>>>> >>>>>>>>>>>>> My Nephrologist ran some blood work and found that my sodium was >>>>>>>>>>>>> very low and and so was a bunch of other levels. Now, he is an >>>>>>>>>>>>> alarmist. If I even look like I'm getting a cold he freaks out. I >>>>>>>>>>>>> love him dearly, and I do what he says, but I can't sneeze >>>>>>>>>>>>> without him making me go see my GP or the Oncologist or whatever >>>>>>>>>>>>> doctor he thinks I need to see. >>>>>>>>>>>>> >>>>>>>>>>>>> I've heard that when you have a BMT and have to have radiation >>>>>>>>>>>>> and chemo, sometimes kidney failure is possible. How long have >>>>>>>>>>>>> you been on the list for transplant? >>>>>>>>>>>>> >>>>>>>>>>>>> Well, I'm glad that you are here and that you are strong. You're >>>>>>>>>>>>> an inspiration to all of us. Thanks for all you do Marty. >>>>>>>>>>>>> >>>>>>>>>>>>> L'chaim >>>>>>>>>>>>> >>>>>>>>>>>>> Sherri >>>>>>>>>>>>> >>>>>>>>>>>>> On Thu, Jan 8, 2015 at 10:07 AM, Marty Gartenberg >>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>>> Hi again Sherri, >>>>>>>>>>>>>> >>>>>>>>>>>>>> Hopefully you will be able to be treated for this condition. It >>>>>>>>>>>>>> seems that as most of us get older we >>>>>>>>>>>>>> start suffering from some very unusual things, but that is the >>>>>>>>>>>>>> price we must pay to remain alive. We just have to do whatever >>>>>>>>>>>>>> we can to keep on going because we have no other choice. >>>>>>>>>>>>>> >>>>>>>>>>>>>> My kidneys failed four years ago and I must be on dialysis >>>>>>>>>>>>>> because it is keeping me alive until I can hopefully receive a >>>>>>>>>>>>>> kidney transplant. >>>>>>>>>>>>>> >>>>>>>>>>>>>> This happened because when I received a bone marrow transplant >>>>>>>>>>>>>> more then 25 years all of the radiation and chemotherapy started >>>>>>>>>>>>>> to destroy my kidneys, but i'm still alive today because of it. >>>>>>>>>>>>>> We all have our own battles in life and that is just the way it >>>>>>>>>>>>>> is. >>>>>>>>>>>>>> >>>>>>>>>>>>>> I wish you much health and happiness in this New Year. >>>>>>>>>>>>>> >>>>>>>>>>>>>> 18's, >>>>>>>>>>>>>> >>>>>>>>>>>>>> Marty >>>>>>>>>>>>>> >>>>>>>>>>>>>> On Thu, Jan 8, 2015 at 5:19 AM, sherri >>>>>>>>>>>>>> swanson <[email protected]> wrote: >>>>>>>>>>>>>>> Hi Marty, >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> Happy New Year. I hope you are well. Thanks for the research I >>>>>>>>>>>>>>> enjoyed article. I could only wish it was as simple as being as >>>>>>>>>>>>>>> side effect of my TKI. In my case, nothing is ever simple LOL. >>>>>>>>>>>>>>> What I have is called Autonomic Neuropathy. Basically, my >>>>>>>>>>>>>>> Autonomic Nervous System has >>>>>>>>>>>>>>> malfunctioned. Here is a link for you to read if you would >>>>>>>>>>>>>>> like to. >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> http://en.wikipedia.org/wiki/Dysautonomia >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> In a nutshell, Autonomic Neuropathy is a nerve disorder that >>>>>>>>>>>>>>> affects involuntary body functions, including heart rate, blood >>>>>>>>>>>>>>> pressure, perspiration and digestion. >>>>>>>>>>>>>>> It isn't a specific disease. Autonomic Neuropathy refers to >>>>>>>>>>>>>>> damage to the autonomic nerves. This damage disrupts signals >>>>>>>>>>>>>>> between the brain and portions of the autonomic nervous system, >>>>>>>>>>>>>>> such as the heart, blood vessels and sweat glands. This can >>>>>>>>>>>>>>> cause decreased or abnormal performance of one or more >>>>>>>>>>>>>>> involuntary body functions. >>>>>>>>>>>>>>> Autonomic Neuropathy can be a complication of a number of >>>>>>>>>>>>>>> diseases and conditions. And some >>>>>>>>>>>>>>> medications can cause autonomic neuropathy as a side effect. >>>>>>>>>>>>>>> Signs, symptoms and treatment of autonomic neuropathy vary >>>>>>>>>>>>>>> depending on the cause, and on which nerves are affected. >>>>>>>>>>>>>>> L'Chaim, >>>>>>>>>>>>>>> Sherri >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg >>>>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>>>>> Hi Sherri, >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> I did a little research on your no sweating problem, and it is >>>>>>>>>>>>>>>> probably a side effect of your >>>>>>>>>>>>>>>> TKI treatment. >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> I also ran across an article which you can read here. It does >>>>>>>>>>>>>>>> mention something about the lack of >>>>>>>>>>>>>>>> sweating. It probably has nothing to do with your problem >>>>>>>>>>>>>>>> but maybe you should read it anyway. >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> http://en.wikipedia.org/wiki/Fabry_disease >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> 18's, >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> Marty >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> On Wed, Jan 7, 2015 at 5:29 AM, >>>>>>>>>>>>>>>> sherri swanson <[email protected]> wrote: >>>>>>>>>>>>>>>>> Hello, >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> I've had CML for 12 years and I've taken Gleevec for those 12 >>>>>>>>>>>>>>>>> years. I've also experienced night sweats for many years. At >>>>>>>>>>>>>>>>> first I was told that it was due to menopause because of my >>>>>>>>>>>>>>>>> age at the time. Go figure. When that was no longer an >>>>>>>>>>>>>>>>> option, the only thing left was the Gleevec. Since being dx'd >>>>>>>>>>>>>>>>> with the CML in 2003, I've been dx'd with other chronic >>>>>>>>>>>>>>>>> illnesses that are just as >>>>>>>>>>>>>>>>> serious. >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> With these new illnesses came a new problem. I no longer >>>>>>>>>>>>>>>>> sweat at all. So now I have the complete opposite problem. No >>>>>>>>>>>>>>>>> matter how hot it is, I never sweat. I a way, it's nice >>>>>>>>>>>>>>>>> because I'm always cold and I long for very hot days so I can >>>>>>>>>>>>>>>>> go out side in the heat. But my oncologist has warned me to >>>>>>>>>>>>>>>>> not do it for very long as I have no way to control my body >>>>>>>>>>>>>>>>> temperature. Unfortunately, it works the same way with the >>>>>>>>>>>>>>>>> cold. My body temperature is a constant 95 degrees. >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> So, in answer to your question, yes, the Gleevec does >>>>>>>>>>>>>>>>> cause night sweats. It is one of its >>>>>>>>>>>>>>>>> side effects. Unfortunately, I was not able to find a remedy >>>>>>>>>>>>>>>>> for my night sweats other than going to the extreme which I >>>>>>>>>>>>>>>>> do not recommend. <332.png> >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> I hope everyone has a good New >>>>>>>>>>>>>>>>> Year and is healthy. Keep my posted as to what you find out. >>>>>>>>>>>>>>>>> Even thought I no long have this issue, I would still like to >>>>>>>>>>>>>>>>> be kept in the loop. >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> L'chaim >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> Sherri >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope >>>>>>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>>>>>>> Hello, Susan. Gosh, we are just sweating through this it >>>>>>>>>>>>>>>>>> seems. I will see what may be available naturally, as I >>>>>>>>>>>>>>>>>> don't want hormones either. Sorry you are experiencing this >>>>>>>>>>>>>>>>>> same problem which I hope to solve. >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>> Best wishes to you, Roy and your beautiful family for a >>>>>>>>>>>>>>>>>> blessed New Year. >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>> Marcie >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>> Sent from my iPad >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via >>>>>>>>>>>>>>>>>>> CMLHope" <[email protected]> wrote: >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> Dear Marcie, >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> I have had night sweats for years, intensifying after my dx >>>>>>>>>>>>>>>>>>> in 2005. I have day >>>>>>>>>>>>>>>>>>> sweats, too. When I stand up for more than five minutes to >>>>>>>>>>>>>>>>>>> do anything at all I start >>>>>>>>>>>>>>>>>>> profusely sweating from weakness. I think part of this is >>>>>>>>>>>>>>>>>>> from the bosulif, but most is from the stroke weakness and >>>>>>>>>>>>>>>>>>> need for hormones. I will not take artificial hormones and >>>>>>>>>>>>>>>>>>> have not gotten the good kind that are specially made for >>>>>>>>>>>>>>>>>>> each person. I totally sympathize with you Marcie. You >>>>>>>>>>>>>>>>>>> might want to go to a naturalist doctor about getting a >>>>>>>>>>>>>>>>>>> test for hormones and then they will make a compound for >>>>>>>>>>>>>>>>>>> you of cream that usually works. Regular md's only know to >>>>>>>>>>>>>>>>>>> prescribe the synthetic or horse hormones which do cause >>>>>>>>>>>>>>>>>>> cancer. That's my take on it, hope you find some relief!!! >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> Thanks for your always uplifting posts! Happy New Year to >>>>>>>>>>>>>>>>>>> you, too! >>>>>>>>>>>>>>>>>>> Susan F. Zimmerman >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> -----Original Message----- >>>>>>>>>>>>>>>>>>> From: 'Marcie Goodman' via CMLHope >>>>>>>>>>>>>>>>>>> <[email protected]> >>>>>>>>>>>>>>>>>>> To: cmlhope <[email protected]> >>>>>>>>>>>>>>>>>>> Sent: Mon, Jan 5, 2015 8:41 am >>>>>>>>>>>>>>>>>>> Subject: [CMLHope] Night Sweats >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> Happy New Year, dear friends. I'm wondering if any of you >>>>>>>>>>>>>>>>>>> suffer with night >>>>>>>>>>>>>>>>>>> sweats as a side effect of your TKI. I do, and have, over >>>>>>>>>>>>>>>>>>> the years of my >>>>>>>>>>>>>>>>>>> treatment. I don't know that it is happening more >>>>>>>>>>>>>>>>>>> frequently but the sweats seem >>>>>>>>>>>>>>>>>>> to be more intense. Is there anything that you know of that >>>>>>>>>>>>>>>>>>> will help? >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> Many thanks for always being there to offer encouragement >>>>>>>>>>>>>>>>>>> and assistance. >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> Marcie >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> Sent from my iPad >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> -- >>>>>>>>>>>>>>>>>>> -- >>>>>>>>>>>>>>>>>>> [CMLHope] >>>>>>>>>>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>>>>>>>> Google Groups >>>>>>>>>>>>>>>>>>> "CMLHope" group. >>>>>>>>>>>>>>>>>>> To post to this group, send email to >>>>>>>>>>>>>>>>>>> [email protected] >>>>>>>>>>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>>>>>>>>>> [email protected] >>>>>>>>>>>>>>>>>>> For more options, visit this group at >>>>>>>>>>>>>>>>>>> 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protected] >>>>>>>>>>>>> For more options, visit this group at >>>>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>>>> --- >>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>> Google Groups "CMLHope" group. >>>>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>>>>> send an email to [email protected]. >>>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>>>> >>>>>>>>>>>> -- >>>>>>>>>>>> -- >>>>>>>>>>>> [CMLHope] >>>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>>> >>>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>>> [email protected] >>>>>>>>>>>> For more options, visit this group at >>>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>>> --- >>>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>>>> send an email to [email protected]. >>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>>> >>>>>>>>>>> -- >>>>>>>>>>> -- >>>>>>>>>>> [CMLHope] >>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>> >>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>> [email protected] >>>>>>>>>>> For more options, visit this group at >>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>> --- >>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>>> send an email to [email protected]. >>>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>>> -- >>>>>>>>>>> -- >>>>>>>>>>> [CMLHope] >>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>> >>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>> [email protected] >>>>>>>>>>> For more options, visit this group at >>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>> --- >>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>>> send an email to [email protected]. >>>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>> >>>>>>>>>> -- >>>>>>>>>> -- >>>>>>>>>> [CMLHope] >>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>> ------------------------------------------------- >>>>>>>>>> >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>> [email protected] >>>>>>>>>> For more options, visit this group at >>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>> --- >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>> send an email to [email protected]. >>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>> >>>>>>>>> -- >>>>>>>>> -- >>>>>>>>> [CMLHope] >>>>>>>>> A support group of http://cmlhope.com >>>>>>>>> ------------------------------------------------- >>>>>>>>> >>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>> Groups "CMLHope" group. >>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>> [email protected] >>>>>>>>> For more options, visit this group at >>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>> --- >>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>> Groups "CMLHope" group. >>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>> send an email to [email protected]. >>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>> >>>>>>>> -- >>>>>>>> -- >>>>>>>> [CMLHope] >>>>>>>> A support group of http://cmlhope.com >>>>>>>> ------------------------------------------------- >>>>>>>> >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To post to this group, send email to [email protected] >>>>>>>> To unsubscribe from this group, send email to >>>>>>>> [email protected] >>>>>>>> For more options, visit this group at >>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>>> an email to [email protected]. >>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>> >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to [email protected] >>>>>>> To unsubscribe from this group, send email to >>>>>>> [email protected] >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email to [email protected]. >>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to [email protected] >>>>>> To unsubscribe from this group, send email to >>>>>> [email protected] >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to [email protected]. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.

