Maybe they can find out why my side is hurting. Blessing everyone Jeanie🐝🐝
Sent from my iPhone > On Jan 14, 2015, at 10:57 AM, "'Icandoallttc' via CMLHope" > <[email protected]> wrote: > > They put you to sleep for Bma. > > Sent from my iPhone > >> On Jan 14, 2015, at 10:56 AM, "'Icandoallttc' via CMLHope" >> <[email protected]> wrote: >> >> Hi it's not me who lost their dad-- I lost mine many years ago. >> I am still so nauseas. >> Hanging in there. >> Doing Bma fri. >> Blessings >> Jeanie >> >> >> Sent from my iPhone >> >>> On Jan 13, 2015, at 4:06 AM, sherri swanson <[email protected]> >>> wrote: >>> >>> Jeanie, >>> >>> I'm so sorry for your loss. You will always have them in your heart. >>> I lost my parent a long time ago but I miss them as if it were yesterday. >>> When I read your message, I looked at their photo and asked them to take >>> good care of your dad. >>> >>> L'chaim, >>> >>> Sherri >>> >>> >>>> On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope >>>> <[email protected]> wrote: >>>> Thank you Greenie >>>> I need that. >>>> Blessings >>>> Jeanie >>>> >>>> Sent from my iPhone >>>> >>>>> On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope >>>>> <[email protected]> wrote: >>>>> >>>>> Hi Jeanie, hang in their, I'm thinking good thoughts and passing them on >>>>> to you. >>>>> >>>>> greenie >>>>> >>>>> In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, >>>>> [email protected] writes: >>>>> Thanks Susan. >>>>> I'm hanging in there!!! >>>>> Blessings. >>>>> Jeanie<emoji_u1f41f.png><emoji_u1f41f.png><emoji_u1f41f.png> >>>>> >>>>> Sent from my iPhone >>>>> >>>>>> On Jan 11, 2015, at 11:17 PM, "'Susan Zimmerman' via CMLHope" >>>>>> <[email protected]> wrote: >>>>>> >>>>>> Awwwww Marcie! >>>>>> >>>>>> I am so sorry for your loss, dear one. I know you've been being a good >>>>>> caregiver for several years to your dad. You will be rewarded some day >>>>>> for that. My heart hurts for you, so will surely be lifting you in >>>>>> prayer. No matter what the age, the loss is huge when we are the ones >>>>>> left behind. It was so kind of your rabbi to mention your CML battle. >>>>>> I pray you stop having those horrible cramps, too. Traveling mercies for >>>>>> you all. >>>>>> >>>>>> And Jeanie, also know what it's like to have a bad day from hydrea. >>>>>> Many (including me) felt like they have the flu with the nausea, and I >>>>>> pray this will not last long at all. A new day is coming, and I sure do >>>>>> hope your doc puts you on something that works! (maybe bosulif?) Here's >>>>>> wishing you the best, dear one. >>>>>> >>>>>> Love and 18's, >>>>>> >>>>>> Susan >>>>>> >>>>>> -----Original Message----- >>>>>> From: 'Marcie Goodman' via CMLHope <[email protected]> >>>>>> To: cmlhope <[email protected]> >>>>>> Sent: Sun, Jan 11, 2015 10:59 pm >>>>>> Subject: Re: [CMLHope] Jeanie's relapse >>>>>> >>>>>> Hi Jeanie, >>>>>> >>>>>> So sorry you are having a tough time. I'm praying for you to have good >>>>>> test results and a much better week. >>>>>> >>>>>> My 94 year old father passed away on Friday, funeral was today. During >>>>>> evening prayers our rabbi asked that everyone pray for not only my >>>>>> father and our family but for our group struggling with the impact of >>>>>> CML. My dad hated the fact that I had this illness and knew that I had >>>>>> such a wonderful online support family. >>>>>> >>>>>> So lots of prayers for you and all of us headed out from Baltimore all >>>>>> week! >>>>>> >>>>>> Much love, >>>>>> >>>>>> Marcie >>>>>> >>>>>> Sent from my iPhone >>>>>> >>>>>>> On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope >>>>>>> <[email protected]> wrote: >>>>>>> >>>>>>> Hi Marty. >>>>>>> I feel so bad today!!! >>>>>>> Thinks it's from the hydrea. >>>>>>> I will print that out and keep it close. >>>>>>> I love psalms also. >>>>>>> Keep praying. >>>>>>> Jeanie 18's >>>>>>> >>>>>>> Sent from my iPhone >>>>>>> >>>>>>>> On Jan 11, 2015, at 8:05 AM, Marty Gartenberg <[email protected]> wrote: >>>>>>>> >>>>>>>> Jeanie, I know that your feeling low right now but things will work >>>>>>>> out for you. You must have this in your heart and I know that you do. >>>>>>>> FOCUS. >>>>>>>> >>>>>>>> This was something that was given to me by one of my close friends >>>>>>>> when I had to live in that plastic bubble for all of those many >>>>>>>> months. I would read it all the time and I am now passing it on to >>>>>>>> you, and it is being sent to you from my heart because I remember my >>>>>>>> doubts but then again I also remember my strengths. >>>>>>>> >>>>>>>> EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF >>>>>>>> CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO >>>>>>>> BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT >>>>>>>> YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS >>>>>>>> WHAT YOU WILL GET. >>>>>>>> WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES >>>>>>>> OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING >>>>>>>> EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE >>>>>>>> THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF >>>>>>>> POSSIBILITY. >>>>>>>> EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT >>>>>>>> THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES >>>>>>>> THE SUCCESSFUL OUTCOME... >>>>>>>> FOCUS... >>>>>>>> >>>>>>>> Yes Jeanie you just keep on focusing because you are much more >>>>>>>> powerful then you think. >>>>>>>> >>>>>>>> Now you know why I keep on sending 18's. >>>>>>>> >>>>>>>> 18's, >>>>>>>> >>>>>>>> Marty >>>>>>>> >>>>>>>> On Sat, Jan 10, 2015 at 10:38 AM, 'Icandoallttc' via CMLHope >>>>>>>> <[email protected]> wrote: >>>>>>>>> Hi Marty >>>>>>>>> Thanks for you uplifting message. >>>>>>>>> I am back to square one with my counts-- >>>>>>>>> 700 thousand platelets >>>>>>>>> 163.28 WBC >>>>>>>>> ANC high >>>>>>>>> Creatine high >>>>>>>>> Potassium high >>>>>>>>> Took me off sprycel. >>>>>>>>> Allipurinoll 2 pills >>>>>>>>> Hydrea 3 twice a day >>>>>>>>> Yes I will fight!!! >>>>>>>>> Just so tired. >>>>>>>>> I think dr will put me on new drug mon. >>>>>>>>> Got to see if there is a mutant. >>>>>>>>> Prays and love to all. >>>>>>>>> 18's. <emoji_u1f41f.png> >>>>>>>>> Jeanie >>>>>>>>> >>>>>>>>> >>>>>>>>> Sent from my iPhone >>>>>>>>> >>>>>>>>>> On Jan 10, 2015, at 4:31 AM, sherri swanson >>>>>>>>>> <[email protected]> wrote: >>>>>>>>>> >>>>>>>>>> Hi Richard, >>>>>>>>>> >>>>>>>>>> If it's one thing I got, It's Attitude! At least that's what my mom >>>>>>>>>> would tell me when I was a teenager. LOL >>>>>>>>>> >>>>>>>>>> Sorry to hear about the car. This cold weather can be brutal on a >>>>>>>>>> car's battery. Glad you were able to get a new and now you’re good >>>>>>>>>> to go. >>>>>>>>>> >>>>>>>>>> Uor wind chills have been bad too. And we have some open fields so >>>>>>>>>> there is nothing to block that wind. The other morning it was so >>>>>>>>>> cold that the water froze in our community and none of had any water >>>>>>>>>> for awhile. It's a good thing I'm an early raiser and I took my >>>>>>>>>> shower while we had water. >>>>>>>>>> >>>>>>>>>> Currently, it is -7 with a wind chill of -25 where I live and it >>>>>>>>>> isn't going to be above zero until 9 am. That's cold. >>>>>>>>>> >>>>>>>>>> Stay warm Richard and think spring! >>>>>>>>>> >>>>>>>>>> L'chaim, >>>>>>>>>> >>>>>>>>>> Sherri >>>>>>>>>> >>>>>>>>>> On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <[email protected]> >>>>>>>>>> wrote: >>>>>>>>>>> Hi Jeanie, >>>>>>>>>>> >>>>>>>>>>> So many things effect your kidneys. The simple ageing factor is >>>>>>>>>>> just one of them. Some medicines will also contribute to kidney >>>>>>>>>>> function probably some of these TKI's. Mine finally gave out from >>>>>>>>>>> all of the chemotherapy and radiation I had more then 25 years ago. >>>>>>>>>>> >>>>>>>>>>> I can make a suggestion: If you are not diabetic try drinking >>>>>>>>>>> cranberry juice. Not the ones that are mixed up with juices like >>>>>>>>>>> grape juice. Ocean Spray has pure cranberry juice so you might want >>>>>>>>>>> to try it. Even if you are diabetic they also make a light >>>>>>>>>>> cranberry juice. >>>>>>>>>>> >>>>>>>>>>> You know what? You have been through so much that this is only a >>>>>>>>>>> bump in the road for you, and so it is for me. >>>>>>>>>>> >>>>>>>>>>> We have two choices. One, continue to fight and the other is not an >>>>>>>>>>> option for me or you. >>>>>>>>>>> That is why I always end any of my posts with 18's. You just hang >>>>>>>>>>> in there sweetie. >>>>>>>>>>> >>>>>>>>>>> Marty >>>>>>>>>>> >>>>>>>>>>>> On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope >>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>> Hi Sherri, >>>>>>>>>>>> I think the tki's contribute to kidney disease. I think that I am >>>>>>>>>>>> in the beginning of the disease and I have been on tki's for 11 >>>>>>>>>>>> years now. >>>>>>>>>>>> Hang in in there; blessings >>>>>>>>>>>> Jeanie<3 >>>>>>>>>>>> >>>>>>>>>>>> In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, >>>>>>>>>>>> [email protected] writes: >>>>>>>>>>>> Hi Marty, >>>>>>>>>>>> >>>>>>>>>>>> Thanks for the prayers and right back at ya. >>>>>>>>>>>> >>>>>>>>>>>> I've been struggling with my kidney disease for many years and >>>>>>>>>>>> didn't know it, and then one day voilà the doctors found that >>>>>>>>>>>> there was a problem and that I'd been fighting it for years hence >>>>>>>>>>>> the diagnoses of Chronic Kidney Disease. And the funny thing is, >>>>>>>>>>>> I'm the only one in my entire family that has any of these >>>>>>>>>>>> diseases. My family had its share of health issues from heart >>>>>>>>>>>> disease to diabetes. But never anything like what I have. All my >>>>>>>>>>>> doctors just shake their heads. I tell them >>>>>>>>>>>> that I like to keep things interesting. And what they like is that >>>>>>>>>>>> I have a sense of humor. And at this point, it is much better to >>>>>>>>>>>> joke and laugh than to worry and cry. While I still take what I >>>>>>>>>>>> have seriously, I'm just happy to be here. >>>>>>>>>>>> >>>>>>>>>>>> I would be a lot happier if the weather here would warm up. For >>>>>>>>>>>> crying out loud it was -5 here yesterday and I was out in it. Now >>>>>>>>>>>> that is one hearty person or a very foolish one. The jury is still >>>>>>>>>>>> out on that one. Today it is going to be a balmy 8. Woohoo! A >>>>>>>>>>>> heat wave. And, again I'll be out in it as I have to go and get a >>>>>>>>>>>> Rx that I need. >>>>>>>>>>>> >>>>>>>>>>>> L'chaim, >>>>>>>>>>>> >>>>>>>>>>>> Sherri >>>>>>>>>>>> >>>>>>>>>>>>> On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg >>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>> Dear Sherri, >>>>>>>>>>>>> >>>>>>>>>>>>> Yes, you are a fighter and it takes one to know one. I pray that >>>>>>>>>>>>> everything turns out well for you. >>>>>>>>>>>>> >>>>>>>>>>>>> And you are correct that all of the radiation and chemotherapy >>>>>>>>>>>>> did destroy both of my kidneys. It has been over 25 years that I >>>>>>>>>>>>> had my BMT. It took many years for my kidneys to fail and that is >>>>>>>>>>>>> probably why most transplant centers will usually not use total >>>>>>>>>>>>> body radiation any more unless it is really needed. >>>>>>>>>>>>> >>>>>>>>>>>>> 18's, >>>>>>>>>>>>> >>>>>>>>>>>>> Marty >>>>>>>>>>>>> >>>>>>>>>>>>> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson >>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>>> Hi Marty, >>>>>>>>>>>>>> >>>>>>>>>>>>>> The doctors are trying to treat the different illnesses that are >>>>>>>>>>>>>> included in my condition. There are so many and they do so many >>>>>>>>>>>>>> different things, that I am happy just to to be here. I agree >>>>>>>>>>>>>> that as we get older there are some unusual things that that >>>>>>>>>>>>>> find us. But in the long run, we all got something. I'm a >>>>>>>>>>>>>> survivor. It's what I do. So when I found out on Monday that I >>>>>>>>>>>>>> have a large mass on my thyroid, I told my doctor I guess we're >>>>>>>>>>>>>> going to be busy this winter. At least I'm not an alarmist. >>>>>>>>>>>>>> <35C.png> >>>>>>>>>>>>>> >>>>>>>>>>>>>> I too have trouble with my kidneys. Not to the extend that you >>>>>>>>>>>>>> do, I'm working to keep myself at the current level of stage III >>>>>>>>>>>>>> Kidney Disease. Some days, I'm good others, not so much. Lately >>>>>>>>>>>>>> I've not been doing so good and I've had to go and buy new shoes >>>>>>>>>>>>>> as my feet have been so swollen that my current size no longer >>>>>>>>>>>>>> fit. I wear compression socks all the time as well. >>>>>>>>>>>>>> >>>>>>>>>>>>>> My Nephrologist ran some blood work and found that my sodium was >>>>>>>>>>>>>> very low and and so was a bunch of other levels. Now, he is an >>>>>>>>>>>>>> alarmist. If I even look like I'm getting a cold he freaks out. >>>>>>>>>>>>>> I love him dearly, and I do what he says, but I can't sneeze >>>>>>>>>>>>>> without him making me go see my GP or the Oncologist or whatever >>>>>>>>>>>>>> doctor he thinks I need to see. >>>>>>>>>>>>>> >>>>>>>>>>>>>> I've heard that when you have a BMT and have to have radiation >>>>>>>>>>>>>> and chemo, sometimes kidney failure is possible. How long have >>>>>>>>>>>>>> you been on the list for transplant? >>>>>>>>>>>>>> >>>>>>>>>>>>>> Well, I'm glad that you are here and that you are strong. You're >>>>>>>>>>>>>> an inspiration to all of us. Thanks for all you do Marty. >>>>>>>>>>>>>> >>>>>>>>>>>>>> L'chaim >>>>>>>>>>>>>> >>>>>>>>>>>>>> Sherri >>>>>>>>>>>>>> >>>>>>>>>>>>>> On Thu, Jan 8, 2015 at 10:07 AM, Marty Gartenberg >>>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>>>> Hi again Sherri, >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> Hopefully you will be able to be treated for this condition. It >>>>>>>>>>>>>>> seems that as most of us get older we start suffering from some >>>>>>>>>>>>>>> very unusual things, but that is the >>>>>>>>>>>>>>> price we must pay to remain alive. We just have to do whatever >>>>>>>>>>>>>>> we can to keep on going because we have no other choice. >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> My kidneys failed four years ago and I must be on dialysis >>>>>>>>>>>>>>> because it is keeping me alive until I can hopefully receive a >>>>>>>>>>>>>>> kidney transplant. >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> This happened because when I received a bone marrow transplant >>>>>>>>>>>>>>> more then 25 years all of the radiation and chemotherapy >>>>>>>>>>>>>>> started to destroy my kidneys, but i'm >>>>>>>>>>>>>>> still alive today because of it. We all have our own >>>>>>>>>>>>>>> battles in life and that is just the way it is. >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> I wish you much health and happiness in this New Year. >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> 18's, >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> Marty >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson >>>>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>>>>> Hi Marty, >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> Happy New Year. I hope you are well. Thanks for the research I >>>>>>>>>>>>>>>> enjoyed article. I could only wish it was as simple as being >>>>>>>>>>>>>>>> as side effect of my TKI. In my case, >>>>>>>>>>>>>>>> nothing is ever simple LOL. What I have is called Autonomic >>>>>>>>>>>>>>>> Neuropathy. Basically, my Autonomic Nervous System has >>>>>>>>>>>>>>>> malfunctioned. Here is a link for you to read if you would >>>>>>>>>>>>>>>> like to. >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> http://en.wikipedia.org/wiki/Dysautonomia >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> In a nutshell, Autonomic Neuropathy is a nerve disorder that >>>>>>>>>>>>>>>> affects involuntary body functions, including heart rate, >>>>>>>>>>>>>>>> blood pressure, perspiration and digestion. >>>>>>>>>>>>>>>> It isn't a specific disease. Autonomic Neuropathy refers to >>>>>>>>>>>>>>>> damage to the autonomic nerves. This damage disrupts signals >>>>>>>>>>>>>>>> between the brain and portions of the autonomic nervous >>>>>>>>>>>>>>>> system, such as the heart, blood vessels and sweat glands. >>>>>>>>>>>>>>>> This can cause decreased or abnormal performance of one or >>>>>>>>>>>>>>>> more involuntary body functions. >>>>>>>>>>>>>>>> Autonomic Neuropathy can be a complication of a number of >>>>>>>>>>>>>>>> diseases and conditions. And some medications can cause >>>>>>>>>>>>>>>> autonomic neuropathy as a side effect. Signs, symptoms and >>>>>>>>>>>>>>>> treatment of autonomic neuropathy vary depending on the cause, >>>>>>>>>>>>>>>> and on which nerves are affected. >>>>>>>>>>>>>>>> L'Chaim, >>>>>>>>>>>>>>>> Sherri >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg >>>>>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>>>>>> Hi Sherri, >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> I did a little research on your no sweating problem, and it >>>>>>>>>>>>>>>>> is probably a side effect of your TKI treatment. >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> I also ran across an article which you can read here. It does >>>>>>>>>>>>>>>>> mention something about the lack of sweating. It probably has >>>>>>>>>>>>>>>>> nothing to do with your problem but maybe you should read it >>>>>>>>>>>>>>>>> anyway. >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> http://en.wikipedia.org/wiki/Fabry_disease >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> 18's, >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> Marty >>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson >>>>>>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>>>>>>> Hello, >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>> I've had CML for 12 years and I've taken Gleevec for those >>>>>>>>>>>>>>>>>> 12 years. I've also experienced night sweats for >>>>>>>>>>>>>>>>>> many years. At first I was told that it >>>>>>>>>>>>>>>>>> was due to menopause because of my age at the time. Go >>>>>>>>>>>>>>>>>> figure. When that was no longer an option, the only thing >>>>>>>>>>>>>>>>>> left was the Gleevec. Since being dx'd with the CML in 2003, >>>>>>>>>>>>>>>>>> I've been dx'd with other chronic illnesses that are just as >>>>>>>>>>>>>>>>>> serious. >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>> With these new illnesses came a new problem. I no longer >>>>>>>>>>>>>>>>>> sweat at all. So now I have the complete opposite problem. >>>>>>>>>>>>>>>>>> No matter how hot it is, I never sweat. I a way, it's nice >>>>>>>>>>>>>>>>>> because I'm always cold and I >>>>>>>>>>>>>>>>>> long for very hot days so I can go out side in the heat. But >>>>>>>>>>>>>>>>>> my oncologist has warned me to not do it for very long as I >>>>>>>>>>>>>>>>>> have no way to control my body temperature. Unfortunately, >>>>>>>>>>>>>>>>>> it works the same way with the cold. My body temperature is >>>>>>>>>>>>>>>>>> a constant 95 degrees. >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>> So, in answer to your question, yes, the Gleevec does cause >>>>>>>>>>>>>>>>>> night sweats. It is one of its side effects. Unfortunately, >>>>>>>>>>>>>>>>>> I was not able to find a remedy for my night sweats other >>>>>>>>>>>>>>>>>> than going to the extreme which I do not recommend. <332.png> >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>> I hope everyone has a good New Year and is healthy. Keep my >>>>>>>>>>>>>>>>>> posted as to what you find out. Even thought I no long have >>>>>>>>>>>>>>>>>> this issue, I would still >>>>>>>>>>>>>>>>>> like to be kept in the loop. >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>> L'chaim >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>> Sherri >>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope >>>>>>>>>>>>>>>>>> <[email protected]> wrote: >>>>>>>>>>>>>>>>>>> Hello, Susan. Gosh, we are just sweating through this it >>>>>>>>>>>>>>>>>>> seems. I will see what may be available naturally, as I >>>>>>>>>>>>>>>>>>> don't want hormones either. Sorry you are experiencing this >>>>>>>>>>>>>>>>>>> same problem which I hope to solve. >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> Best wishes to you, Roy and your beautiful family for a >>>>>>>>>>>>>>>>>>> blessed New Year. >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> Marcie >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>> Sent from my iPad >>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via >>>>>>>>>>>>>>>>>>>> CMLHope" <[email protected]> wrote: >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> Dear Marcie, >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> I have had night sweats for years, intensifying after my >>>>>>>>>>>>>>>>>>>> dx in 2005. I have day >>>>>>>>>>>>>>>>>>>> sweats, too. When I stand up for more than five minutes >>>>>>>>>>>>>>>>>>>> to do anything at all I start profusely sweating from >>>>>>>>>>>>>>>>>>>> weakness. I think part of this is from the bosulif, but >>>>>>>>>>>>>>>>>>>> most is from the stroke weakness and need for hormones. I >>>>>>>>>>>>>>>>>>>> will not take artificial hormones and have not gotten the >>>>>>>>>>>>>>>>>>>> good kind that are specially made for each person. I >>>>>>>>>>>>>>>>>>>> totally sympathize with you >>>>>>>>>>>>>>>>>>>> Marcie. You might want to go to a naturalist doctor about >>>>>>>>>>>>>>>>>>>> getting a test for hormones and then they will make a >>>>>>>>>>>>>>>>>>>> compound for you of cream that usually works. Regular >>>>>>>>>>>>>>>>>>>> md's only know to prescribe the synthetic or horse >>>>>>>>>>>>>>>>>>>> hormones which do cause cancer. That's my take on it, hope >>>>>>>>>>>>>>>>>>>> you find some relief!!! >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> Thanks for your always uplifting posts! Happy New Year to >>>>>>>>>>>>>>>>>>>> you, too! >>>>>>>>>>>>>>>>>>>> Susan F. Zimmerman >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> -----Original Message----- >>>>>>>>>>>>>>>>>>>> From: 'Marcie Goodman' via CMLHope >>>>>>>>>>>>>>>>>>>> <[email protected]> >>>>>>>>>>>>>>>>>>>> To: cmlhope <[email protected]> >>>>>>>>>>>>>>>>>>>> Sent: Mon, Jan 5, 2015 8:41 am >>>>>>>>>>>>>>>>>>>> Subject: [CMLHope] Night Sweats >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> Happy New Year, dear friends. I'm wondering if any of you >>>>>>>>>>>>>>>>>>>> suffer with night >>>>>>>>>>>>>>>>>>>> sweats as a side effect of your TKI. I do, and have, over >>>>>>>>>>>>>>>>>>>> the years of my >>>>>>>>>>>>>>>>>>>> treatment. I don't know that it is happening more >>>>>>>>>>>>>>>>>>>> frequently but the sweats seem >>>>>>>>>>>>>>>>>>>> to be more intense. Is there anything that you know of >>>>>>>>>>>>>>>>>>>> that will help? >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> Many thanks for always being there to offer encouragement >>>>>>>>>>>>>>>>>>>> and assistance. >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> Marcie >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> Sent from my iPad >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> -- >>>>>>>>>>>>>>>>>>>> -- >>>>>>>>>>>>>>>>>>>> [CMLHope] >>>>>>>>>>>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>> You received this message because you are subscribed to >>>>>>>>>>>>>>>>>>>> the Google Groups >>>>>>>>>>>>>>>>>>>> "CMLHope" group. >>>>>>>>>>>>>>>>>>>> To post to this group, send email to >>>>>>>>>>>>>>>>>>>> [email protected] >>>>>>>>>>>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>>>>>>>>>>> [email protected] >>>>>>>>>>>>>>>>>>>> For more options, visit this group at 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are subscribed to the >>>>>>>>>>>>>>> Google Groups "CMLHope" group. >>>>>>>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>>>>>> [email protected] >>>>>>>>>>>>>>> For more options, visit this group at >>>>>>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>>>>>> --- >>>>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>>>> Google Groups "CMLHope" group. >>>>>>>>>>>>>>> To unsubscribe from this group and stop receiving emails from >>>>>>>>>>>>>>> it, send an email to [email protected]. >>>>>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>>>>>> >>>>>>>>>>>>>> -- >>>>>>>>>>>>>> -- >>>>>>>>>>>>>> [CMLHope] >>>>>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>>>>> >>>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>>> Google Groups "CMLHope" group. >>>>>>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>>>>> [email protected] >>>>>>>>>>>>>> For more options, visit this group at >>>>>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>>>>> --- >>>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>>> Google Groups "CMLHope" group. >>>>>>>>>>>>>> To unsubscribe from this group and stop receiving emails from >>>>>>>>>>>>>> it, send an email to [email protected]. >>>>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>>>>> >>>>>>>>>>>>> -- >>>>>>>>>>>>> -- >>>>>>>>>>>>> [CMLHope] >>>>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>>>> >>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>> Google Groups "CMLHope" group. >>>>>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>>>> [email protected] >>>>>>>>>>>>> For more options, visit this group at >>>>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>>>> --- >>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>> Google Groups "CMLHope" group. >>>>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>>>>> send an email to [email protected]. >>>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>>>> >>>>>>>>>>>> -- >>>>>>>>>>>> -- >>>>>>>>>>>> [CMLHope] >>>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>>> >>>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>>> To post to this group, send email to >>>>>>>>>>>> [email protected] >>>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>>> [email protected] >>>>>>>>>>>> For more options, visit this group at >>>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>>> --- >>>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>>>> send an email to [email protected]. >>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>>>> -- >>>>>>>>>>>> -- >>>>>>>>>>>> [CMLHope] >>>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>>> >>>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>>> [email protected] >>>>>>>>>>>> For more options, visit this group at >>>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>>> --- >>>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>>>> send an email to [email protected]. >>>>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>>> >>>>>>>>>>> -- >>>>>>>>>>> -- >>>>>>>>>>> [CMLHope] >>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>> >>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>> [email protected] >>>>>>>>>>> For more options, visit this group at >>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>> --- >>>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>>> send an email to [email protected]. >>>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>> >>>>>>>>>> -- >>>>>>>>>> -- >>>>>>>>>> [CMLHope] >>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>> ------------------------------------------------- >>>>>>>>>> >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>> [email protected] >>>>>>>>>> For more options, visit this group at >>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>> --- >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>> send an email to [email protected]. >>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>> >>>>>>>>> -- >>>>>>>>> -- >>>>>>>>> [CMLHope] >>>>>>>>> A support group of http://cmlhope.com >>>>>>>>> ------------------------------------------------- >>>>>>>>> >>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>> Groups "CMLHope" group. >>>>>>>>> To post to this group, send email to [email protected] >>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>> [email protected] >>>>>>>>> For more options, visit this group at >>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>> --- >>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>> Groups "CMLHope" group. >>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>> send an email to [email protected]. >>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>> >>>>>>>> -- >>>>>>>> -- >>>>>>>> [CMLHope] >>>>>>>> A support group of http://cmlhope.com >>>>>>>> ------------------------------------------------- >>>>>>>> >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To post to this group, send email to [email protected] >>>>>>>> To unsubscribe from this group, send email to >>>>>>>> [email protected] >>>>>>>> For more options, visit this group at >>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>>> an email to [email protected]. >>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to [email protected] >>>>>>> To unsubscribe from this group, send email to >>>>>>> [email protected] >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email to [email protected]. >>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to [email protected] >>>>>> To unsubscribe from this group, send email to >>>>>> [email protected] >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to [email protected]. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to [email protected] >>>>>> To unsubscribe from this group, send email to >>>>>> [email protected] >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to [email protected]. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
