I have had 4 or 5 endoscopies. They put you completely out so you don't have
to try to swallow the tube or anything like that. Two times I had a mild sore
throat afterwards for about a day. The other times I didn't even have that.
You will have to have someone to drive you home. Any other questions?
Joyce in IL
On Jan 14, 2015, at 4:23 PM, 'Icandoallttc' via CMLHope wrote:
> Anyone have an endoscopy ? Jeanie🐝🐝
>
> Sent from my iPhone
>
> On Jan 14, 2015, at 2:14 PM, "'Icandoallttc' via CMLHope"
> <[email protected]> wrote:
>
>> Maybe they can find out why my side is hurting.
>> Blessing everyone
>> Jeanie🐝🐝
>>
>> Sent from my iPhone
>>
>> On Jan 14, 2015, at 10:57 AM, "'Icandoallttc' via CMLHope"
>> <[email protected]> wrote:
>>
>>> They put you to sleep for Bma.
>>>
>>> Sent from my iPhone
>>>
>>> On Jan 14, 2015, at 10:56 AM, "'Icandoallttc' via CMLHope"
>>> <[email protected]> wrote:
>>>
>>>> Hi it's not me who lost their dad-- I lost mine many years ago.
>>>> I am still so nauseas.
>>>> Hanging in there.
>>>> Doing Bma fri.
>>>> Blessings
>>>> Jeanie
>>>>
>>>>
>>>> Sent from my iPhone
>>>>
>>>> On Jan 13, 2015, at 4:06 AM, sherri swanson <[email protected]>
>>>> wrote:
>>>>
>>>>> Jeanie,
>>>>>
>>>>> I'm so sorry for your loss. You will always have them in your heart.
>>>>> I lost my parent a long time ago but I miss them as if it were yesterday.
>>>>> When I read your message, I looked at their photo and asked them to take
>>>>> good care of your dad.
>>>>>
>>>>> L'chaim,
>>>>>
>>>>> Sherri
>>>>>
>>>>>
>>>>> On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope
>>>>> <[email protected]> wrote:
>>>>> Thank you Greenie
>>>>> I need that.
>>>>> Blessings
>>>>> Jeanie
>>>>>
>>>>> Sent from my iPhone
>>>>>
>>>>> On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope
>>>>> <[email protected]> wrote:
>>>>>
>>>>>> Hi Jeanie, hang in their, I'm thinking good thoughts and passing them
>>>>>> on to you.
>>>>>>
>>>>>> greenie
>>>>>>
>>>>>> In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time,
>>>>>> [email protected] writes:
>>>>>> Thanks Susan.
>>>>>> I'm hanging in there!!!
>>>>>> Blessings.
>>>>>> Jeanie<emoji_u1f41f.png><emoji_u1f41f.png><emoji_u1f41f.png>
>>>>>>
>>>>>> Sent from my iPhone
>>>>>>
>>>>>> On Jan 11, 2015, at 11:17 PM, "'Susan Zimmerman' via CMLHope"
>>>>>> <[email protected]> wrote:
>>>>>>
>>>>>>> Awwwww Marcie!
>>>>>>>
>>>>>>> I am so sorry for your loss, dear one. I know you've been being a good
>>>>>>> caregiver for several years to your dad. You will be rewarded some day
>>>>>>> for that. My heart hurts for you, so will surely be lifting you in
>>>>>>> prayer. No matter what the age, the loss is huge when we are the ones
>>>>>>> left behind. It was so kind of your rabbi to mention your CML battle.
>>>>>>> I pray you stop having those horrible cramps, too. Traveling mercies
>>>>>>> for you all.
>>>>>>>
>>>>>>> And Jeanie, also know what it's like to have a bad day from hydrea.
>>>>>>> Many (including me) felt like they have the flu with the nausea, and I
>>>>>>> pray this will not last long at all. A new day is coming, and I sure
>>>>>>> do hope your doc puts you on something that works! (maybe bosulif?)
>>>>>>> Here's wishing you the best, dear one.
>>>>>>>
>>>>>>> Love and 18's,
>>>>>>>
>>>>>>> Susan
>>>>>>>
>>>>>>> -----Original Message-----
>>>>>>> From: 'Marcie Goodman' via CMLHope <[email protected]>
>>>>>>> To: cmlhope <[email protected]>
>>>>>>> Sent: Sun, Jan 11, 2015 10:59 pm
>>>>>>> Subject: Re: [CMLHope] Jeanie's relapse
>>>>>>>
>>>>>>> Hi Jeanie,
>>>>>>>
>>>>>>> So sorry you are having a tough time. I'm praying for you to have good
>>>>>>> test results and a much better week.
>>>>>>>
>>>>>>> My 94 year old father passed away on Friday, funeral was today. During
>>>>>>> evening prayers our rabbi asked that everyone pray for not only my
>>>>>>> father and our family but for our group struggling with the impact of
>>>>>>> CML. My dad hated the fact that I had this illness and knew that I had
>>>>>>> such a wonderful online support family.
>>>>>>>
>>>>>>> So lots of prayers for you and all of us headed out from Baltimore all
>>>>>>> week!
>>>>>>>
>>>>>>> Much love,
>>>>>>>
>>>>>>> Marcie
>>>>>>>
>>>>>>> Sent from my iPhone
>>>>>>>
>>>>>>> On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope
>>>>>>> <[email protected]> wrote:
>>>>>>>
>>>>>>>> Hi Marty.
>>>>>>>> I feel so bad today!!!
>>>>>>>> Thinks it's from the hydrea.
>>>>>>>> I will print that out and keep it close.
>>>>>>>> I love psalms also.
>>>>>>>> Keep praying.
>>>>>>>> Jeanie 18's
>>>>>>>>
>>>>>>>> Sent from my iPhone
>>>>>>>>
>>>>>>>> On Jan 11, 2015, at 8:05 AM, Marty Gartenberg <[email protected]> wrote:
>>>>>>>>
>>>>>>>>> Jeanie, I know that your feeling low right now but things will work
>>>>>>>>> out for you. You must have this in your heart and I know that you do.
>>>>>>>>> FOCUS.
>>>>>>>>>
>>>>>>>>> This was something that was given to me by one of my close friends
>>>>>>>>> when I had to live in that plastic bubble for all of those many
>>>>>>>>> months. I would read it all the time and I am now passing it on to
>>>>>>>>> you, and it is being sent to you from my heart because I remember my
>>>>>>>>> doubts but then again I also remember my strengths.
>>>>>>>>>
>>>>>>>>> EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF
>>>>>>>>> CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO
>>>>>>>>> BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY
>>>>>>>>> WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT
>>>>>>>>> IS WHAT YOU WILL GET.
>>>>>>>>> WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR
>>>>>>>>> STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU
>>>>>>>>> BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO
>>>>>>>>> BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE
>>>>>>>>> AREA OF POSSIBILITY.
>>>>>>>>> EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT
>>>>>>>>> THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES
>>>>>>>>> THE SUCCESSFUL OUTCOME...
>>>>>>>>> FOCUS...
>>>>>>>>>
>>>>>>>>> Yes Jeanie you just keep on focusing because you are much more
>>>>>>>>> powerful then you think.
>>>>>>>>>
>>>>>>>>> Now you know why I keep on sending 18's.
>>>>>>>>>
>>>>>>>>> 18's,
>>>>>>>>>
>>>>>>>>> Marty
>>>>>>>>>
>>>>>>>>> On Sat, Jan 10, 2015 at 10:38 AM, 'Icandoallttc' via CMLHope
>>>>>>>>> <[email protected]> wrote:
>>>>>>>>> Hi Marty
>>>>>>>>> Thanks for you uplifting message.
>>>>>>>>> I am back to square one with my counts--
>>>>>>>>> 700 thousand platelets
>>>>>>>>> 163.28 WBC
>>>>>>>>> ANC high
>>>>>>>>> Creatine high
>>>>>>>>> Potassium high
>>>>>>>>> Took me off sprycel.
>>>>>>>>> Allipurinoll 2 pills
>>>>>>>>> Hydrea 3 twice a day
>>>>>>>>> Yes I will fight!!!
>>>>>>>>> Just so tired.
>>>>>>>>> I think dr will put me on new drug mon.
>>>>>>>>> Got to see if there is a mutant.
>>>>>>>>> Prays and love to all.
>>>>>>>>> 18's. <emoji_u1f41f.png>
>>>>>>>>> Jeanie
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> Sent from my iPhone
>>>>>>>>>
>>>>>>>>> On Jan 10, 2015, at 4:31 AM, sherri swanson
>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>
>>>>>>>>>> Hi Richard,
>>>>>>>>>>
>>>>>>>>>> If it's one thing I got, It's Attitude! At least that's what my mom
>>>>>>>>>> would tell me when I was a teenager. LOL
>>>>>>>>>>
>>>>>>>>>> Sorry to hear about the car. This cold weather can be brutal on a
>>>>>>>>>> car's battery. Glad you were able to get a new and now you’re good
>>>>>>>>>> to go.
>>>>>>>>>>
>>>>>>>>>> Uor wind chills have been bad too. And we have some open fields so
>>>>>>>>>> there is nothing to block that wind. The other morning it was so
>>>>>>>>>> cold that the water froze in our community and none of had any water
>>>>>>>>>> for awhile. It's a good thing I'm an early raiser and I took my
>>>>>>>>>> shower while we had water.
>>>>>>>>>>
>>>>>>>>>> Currently, it is -7 with a wind chill of -25 where I live and it
>>>>>>>>>> isn't going to be above zero until 9 am. That's cold.
>>>>>>>>>>
>>>>>>>>>> Stay warm Richard and think spring!
>>>>>>>>>>
>>>>>>>>>> L'chaim,
>>>>>>>>>>
>>>>>>>>>> Sherri
>>>>>>>>>>
>>>>>>>>>> On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <[email protected]>
>>>>>>>>>> wrote:
>>>>>>>>>> Hi Jeanie,
>>>>>>>>>>
>>>>>>>>>> So many things effect your kidneys. The simple ageing factor is just
>>>>>>>>>> one of them. Some medicines will also contribute to kidney function
>>>>>>>>>> probably some of these TKI's. Mine finally gave out from all of the
>>>>>>>>>> chemotherapy and radiation I had more then 25 years ago.
>>>>>>>>>>
>>>>>>>>>> I can make a suggestion: If you are not diabetic try drinking
>>>>>>>>>> cranberry juice. Not the ones that are mixed up with juices like
>>>>>>>>>> grape juice. Ocean Spray has pure cranberry juice so you might want
>>>>>>>>>> to try it. Even if you are diabetic they also make a light cranberry
>>>>>>>>>> juice.
>>>>>>>>>>
>>>>>>>>>> You know what? You have been through so much that this is only a
>>>>>>>>>> bump in the road for you, and so it is for me.
>>>>>>>>>>
>>>>>>>>>> We have two choices. One, continue to fight and the other is not an
>>>>>>>>>> option for me or you.
>>>>>>>>>> That is why I always end any of my posts with 18's. You just hang in
>>>>>>>>>> there sweetie.
>>>>>>>>>>
>>>>>>>>>> Marty
>>>>>>>>>>
>>>>>>>>>> On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope
>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>> Hi Sherri,
>>>>>>>>>> I think the tki's contribute to kidney disease. I think that I am
>>>>>>>>>> in the beginning of the disease and I have been on tki's for 11
>>>>>>>>>> years now.
>>>>>>>>>> Hang in in there; blessings
>>>>>>>>>> Jeanie<3
>>>>>>>>>>
>>>>>>>>>> In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time,
>>>>>>>>>> [email protected] writes:
>>>>>>>>>> Hi Marty,
>>>>>>>>>>
>>>>>>>>>> Thanks for the prayers and right back at ya.
>>>>>>>>>>
>>>>>>>>>> I've been struggling with my kidney disease for many years and
>>>>>>>>>> didn't know it, and then one day voilà the doctors found that there
>>>>>>>>>> was a problem and that I'd been fighting it for years hence the
>>>>>>>>>> diagnoses of Chronic Kidney Disease. And the funny thing is, I'm the
>>>>>>>>>> only one in my entire family that has any of these diseases. My
>>>>>>>>>> family had its share of health issues from heart disease to
>>>>>>>>>> diabetes. But never anything like what I have. All my doctors just
>>>>>>>>>> shake their heads. I tell them that I like to keep things
>>>>>>>>>> interesting. And what they like is that I have a sense of humor. And
>>>>>>>>>> at this point, it is much better to joke and laugh than to worry and
>>>>>>>>>> cry. While I still take what I have seriously, I'm just happy to be
>>>>>>>>>> here.
>>>>>>>>>>
>>>>>>>>>> I would be a lot happier if the weather here would warm up. For
>>>>>>>>>> crying out loud it was -5 here yesterday and I was out in it. Now
>>>>>>>>>> that is one hearty person or a very foolish one. The jury is still
>>>>>>>>>> out on that one. Today it is going to be a balmy 8. Woohoo! A heat
>>>>>>>>>> wave. And, again I'll be out in it as I have to go and get a Rx that
>>>>>>>>>> I need.
>>>>>>>>>>
>>>>>>>>>> L'chaim,
>>>>>>>>>>
>>>>>>>>>> Sherri
>>>>>>>>>>
>>>>>>>>>> On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <[email protected]>
>>>>>>>>>> wrote:
>>>>>>>>>> Dear Sherri,
>>>>>>>>>>
>>>>>>>>>> Yes, you are a fighter and it takes one to know one. I pray that
>>>>>>>>>> everything turns out well for you.
>>>>>>>>>>
>>>>>>>>>> And you are correct that all of the radiation and
>>>>>>>>>> chemotherapy did destroy both of my kidneys. It has been over 25
>>>>>>>>>> years that I had my BMT. It took many years for my kidneys to fail
>>>>>>>>>> and that is probably why most transplant centers will usually not
>>>>>>>>>> use total body radiation any more unless it is really needed.
>>>>>>>>>>
>>>>>>>>>> 18's,
>>>>>>>>>>
>>>>>>>>>> Marty
>>>>>>>>>>
>>>>>>>>>> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson
>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>> Hi Marty,
>>>>>>>>>>
>>>>>>>>>> The doctors are trying to treat the different illnesses that are
>>>>>>>>>> included in my condition. There are so many and they do so many
>>>>>>>>>> different things, that I am happy just to to be here. I agree that
>>>>>>>>>> as we get older there are some unusual things that that find us. But
>>>>>>>>>> in the long run, we all got something. I'm a survivor. It's what I
>>>>>>>>>> do. So when I found out on Monday that I have a large mass on my
>>>>>>>>>> thyroid, I told my doctor I guess we're going to be busy this
>>>>>>>>>> winter. At least I'm not an alarmist. <35C.png>
>>>>>>>>>>
>>>>>>>>>> I too have trouble with my kidneys. Not to the extend that you do,
>>>>>>>>>> I'm working to keep myself at the current level of stage III Kidney
>>>>>>>>>> Disease. Some days, I'm good others, not so much. Lately I've not
>>>>>>>>>> been doing so good and I've had to go and buy new shoes as my feet
>>>>>>>>>> have been so swollen that my current size no longer fit. I wear
>>>>>>>>>> compression socks all the time as well.
>>>>>>>>>>
>>>>>>>>>> My Nephrologist ran some blood work and found that my sodium was
>>>>>>>>>> very low and and so was a bunch of other levels. Now, he is an
>>>>>>>>>> alarmist. If I even look like I'm getting a cold he freaks out. I
>>>>>>>>>> love him dearly, and I do what he says, but I can't sneeze without
>>>>>>>>>> him making me go see my GP or the Oncologist or whatever doctor he
>>>>>>>>>> thinks I need to see.
>>>>>>>>>>
>>>>>>>>>> I've heard that when you have a BMT and have to have radiation and
>>>>>>>>>> chemo, sometimes kidney failure is possible. How long have you been
>>>>>>>>>> on the list for transplant?
>>>>>>>>>>
>>>>>>>>>> Well, I'm glad that you are here and that you are strong. You're an
>>>>>>>>>> inspiration to all of us. Thanks for all you do Marty.
>>>>>>>>>>
>>>>>>>>>> L'chaim
>>>>>>>>>>
>>>>>>>>>> Sherri
>>>>>>>>>>
>>>>>>>>>> On Thu, Jan 8, 2015 at 10:07 AM, Marty Gartenberg <[email protected]>
>>>>>>>>>> wrote:
>>>>>>>>>> Hi again Sherri,
>>>>>>>>>>
>>>>>>>>>> Hopefully you will be able to be treated for this condition. It
>>>>>>>>>> seems that as most of us get older we start suffering from some very
>>>>>>>>>> unusual things, but that is the price we must pay to remain alive.
>>>>>>>>>> We just have to do whatever we can to keep on going because we have
>>>>>>>>>> no other choice.
>>>>>>>>>>
>>>>>>>>>> My kidneys failed four years ago and I must be on dialysis because
>>>>>>>>>> it is keeping me alive until I can hopefully receive a kidney
>>>>>>>>>> transplant.
>>>>>>>>>>
>>>>>>>>>> This happened because when I received a bone marrow transplant more
>>>>>>>>>> then 25 years all of the radiation and chemotherapy started to
>>>>>>>>>> destroy my kidneys, but i'm still alive today because of it. We all
>>>>>>>>>> have our own battles in life and that is just the way it is.
>>>>>>>>>>
>>>>>>>>>> I wish you much health and happiness in this New Year.
>>>>>>>>>>
>>>>>>>>>> 18's,
>>>>>>>>>>
>>>>>>>>>> Marty
>>>>>>>>>>
>>>>>>>>>> On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson
>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>> Hi Marty,
>>>>>>>>>>
>>>>>>>>>> Happy New Year. I hope you are well. Thanks for the research I
>>>>>>>>>> enjoyed article. I could only wish it was as simple as being as side
>>>>>>>>>> effect of my TKI. In my case, nothing is ever simple LOL. What I
>>>>>>>>>> have is called Autonomic Neuropathy. Basically, my Autonomic
>>>>>>>>>> Nervous System has malfunctioned. Here is a link for you to read if
>>>>>>>>>> you would like to.
>>>>>>>>>>
>>>>>>>>>> http://en.wikipedia.org/wiki/Dysautonomia
>>>>>>>>>>
>>>>>>>>>> In a nutshell, Autonomic Neuropathy is a nerve disorder that affects
>>>>>>>>>> involuntary body functions, including heart rate, blood pressure,
>>>>>>>>>> perspiration and digestion.
>>>>>>>>>> It isn't a specific disease. Autonomic Neuropathy refers to damage
>>>>>>>>>> to the autonomic nerves. This damage disrupts signals between the
>>>>>>>>>> brain and portions of the autonomic nervous system, such as the
>>>>>>>>>> heart, blood vessels and sweat glands. This can cause decreased or
>>>>>>>>>> abnormal performance of one or more involuntary body functions.
>>>>>>>>>> Autonomic Neuropathy can be a complication of a number of diseases
>>>>>>>>>> and conditions. And some medications can cause autonomic neuropathy
>>>>>>>>>> as a side effect. Signs, symptoms and treatment of autonomic
>>>>>>>>>> neuropathy vary depending on the cause, and on which nerves are
>>>>>>>>>> affected.
>>>>>>>>>> L'Chaim,
>>>>>>>>>> Sherri
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>> On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg <[email protected]>
>>>>>>>>>> wrote:
>>>>>>>>>> Hi Sherri,
>>>>>>>>>>
>>>>>>>>>> I did a little research on your no sweating problem, and it is
>>>>>>>>>> probably a side effect of your TKI treatment.
>>>>>>>>>>
>>>>>>>>>> I also ran across an article which you can read here. It does
>>>>>>>>>> mention something about the lack of sweating. It probably has
>>>>>>>>>> nothing to do with your problem but
>>>>>>>>>> maybe you should read it anyway.
>>>>>>>>>>
>>>>>>>>>> http://en.wikipedia.org/wiki/Fabry_disease
>>>>>>>>>>
>>>>>>>>>> 18's,
>>>>>>>>>>
>>>>>>>>>> Marty
>>>>>>>>>>
>>>>>>>>>> On Wed, Jan 7, 2015 at 5:29 AM, sherri swanson
>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>> Hello,
>>>>>>>>>>
>>>>>>>>>> I've had CML for 12 years and I've taken Gleevec for those 12 years.
>>>>>>>>>> I've also experienced night sweats for many years. At first I was
>>>>>>>>>> told that it was due to menopause because of my age at the time. Go
>>>>>>>>>> figure. When that was no longer an option, the only thing left was
>>>>>>>>>> the Gleevec. Since being dx'd with the CML in 2003, I've been dx'd
>>>>>>>>>> with other chronic illnesses that are just as serious.
>>>>>>>>>>
>>>>>>>>>> With these new illnesses came a new problem. I no longer sweat at
>>>>>>>>>> all. So now I have the complete opposite problem. No matter how hot
>>>>>>>>>> it is, I never sweat. I a way, it's nice because I'm always cold and
>>>>>>>>>> I long for very hot days so I can go out side in the heat. But my
>>>>>>>>>> oncologist has warned me to not do it for very long as I have no way
>>>>>>>>>> to control my body temperature. Unfortunately, it works the same
>>>>>>>>>> way with the cold. My body temperature is a
>>>>>>>>>> constant 95 degrees.
>>>>>>>>>>
>>>>>>>>>> So, in answer to your question, yes, the Gleevec does cause night
>>>>>>>>>> sweats. It is one of its side effects. Unfortunately, I was not able
>>>>>>>>>> to find a remedy for my night sweats other than going to the extreme
>>>>>>>>>> which I do not recommend. <332.png>
>>>>>>>>>>
>>>>>>>>>> I hope everyone has a good New Year and is healthy. Keep my posted
>>>>>>>>>> as to what you find out. Even thought I no long have this issue, I
>>>>>>>>>> would still like to be kept in the loop.
>>>>>>>>>>
>>>>>>>>>> L'chaim
>>>>>>>>>>
>>>>>>>>>> Sherri
>>>>>>>>>>
>>>>>>>>>> On Tue, Jan 6, 2015 at 4:19 PM, 'Marcie Goodman' via CMLHope
>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>> Hello, Susan. Gosh, we are just sweating through this it seems. I
>>>>>>>>>> will see what may be available naturally, as I don't want hormones
>>>>>>>>>> either. Sorry you are experiencing this same problem which I hope to
>>>>>>>>>> solve.
>>>>>>>>>>
>>>>>>>>>> Best wishes to you, Roy and your beautiful family for a blessed New
>>>>>>>>>> Year.
>>>>>>>>>>
>>>>>>>>>> Marcie
>>>>>>>>>>
>>>>>>>>>> Sent from my iPad
>>>>>>>>>>
>>>>>>>>>> On Jan 5, 2015, at 10:17 PM, "'Susan Zimmerman' via CMLHope"
>>>>>>>>>> <[email protected]> wrote:
>>>>>>>>>>
>>>>>>>>>>> Dear Marcie,
>>>>>>>>>>>
>>>>>>>>>>> I have had night sweats for years, intensifying after my dx in
>>>>>>>>>>> 2005. I have day sweats, too.
>>>>>>>>>>> When I stand up for more than five minutes to do anything at all I
>>>>>>>>>>> start profusely sweating from weakness. I think part of this is
>>>>>>>>>>> from the bosulif, but most is from the stroke weakness and need for
>>>>>>>>>>> hormones. I will not take
>>>>>>>>>>> artificial hormones and have not
>>>>>>>>>>> gotten the good kind that are specially made for each person. I
>>>>>>>>>>> totally sympathize with you Marcie. You
>>>>>>>>>>> might want to go to a naturalist doctor about getting a test
>>>>>>>>>>> for hormones and then they will make a compound for you of cream
>>>>>>>>>>> that usually works. Regular md's only know to prescribe the
>>>>>>>>>>> synthetic or horse hormones which do cause cancer. That's my take
>>>>>>>>>>> on it, hope you find some relief!!!
>>>>>>>>>>>
>>>>>>>>>>> Thanks for your always uplifting posts! Happy New Year to you, too!
>>>>>>>>>>> Susan F. Zimmerman
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>> -----Original Message-----
>>>>>>>>>>> From: 'Marcie Goodman' via CMLHope <[email protected]>
>>>>>>>>>>> To: cmlhope <[email protected]>
>>>>>>>>>>> Sent: Mon, Jan 5, 2015 8:41 am
>>>>>>>>>>> Subject: [CMLHope] Night Sweats
>>>>>>>>>>>
>>>>>>>>>>> Happy New Year, dear friends. I'm wondering if any of you suffer
>>>>>>>>>>> with night
>>>>>>>>>>> sweats as a side effect of your TKI. I do, and have, over the
>>>>>>>>>>> years of my
>>>>>>>>>>> treatment. I don't know that it is happening more frequently but
>>>>>>>>>>> the sweats seem
>>>>>>>>>>> to be more intense. Is there anything that you know of that will
>>>>>>>>>>> help?
>>>>>>>>>>>
>>>>>>>>>>> Many thanks for always being there to offer encouragement and
>>>>>>>>>>> assistance.
>>>>>>>>>>>
>>>>>>>>>>> Marcie
>>>>>>>>>>>
>>>>>>>>>>> Sent from my iPad
>>>>>>>>>>>
>>>>>>>>>>> --
>>>>>>>>>>> --
>>>>>>>>>>> [CMLHope]
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>>>>>>>>>>
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>>>>>>>>>> --
>>>>>>>>>> [CMLHope]
>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>> To unsubscribe from this group, send email to
>>>>>>>>>> [email protected]
>>>>>>>>>> For more options, visit this group at
>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>> ---
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it,
>>>>>>>>>> send an email to [email protected].
>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>>
>>>>>>>>>> --
>>>>>>>>>> --
>>>>>>>>>> [CMLHope]
>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>> To unsubscribe from this group, send email to
>>>>>>>>>> [email protected]
>>>>>>>>>> For more options, visit this group at
>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>> ---
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it,
>>>>>>>>>> send an email to [email protected].
>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>>
>>>>>>>>>> --
>>>>>>>>>> --
>>>>>>>>>> [CMLHope]
>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>> To unsubscribe from this group, send email to
>>>>>>>>>> [email protected]
>>>>>>>>>> For more options, visit this group at
>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>> ---
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it,
>>>>>>>>>> send an email to [email protected].
>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>>
>>>>>>>>>> --
>>>>>>>>>> --
>>>>>>>>>> [CMLHope]
>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>> To unsubscribe from this group, send email to
>>>>>>>>>> [email protected]
>>>>>>>>>> For more options, visit this group at
>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>> ---
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it,
>>>>>>>>>> send an email to [email protected].
>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>> --
>>>>>>>>>> --
>>>>>>>>>> [CMLHope]
>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>> To unsubscribe from this group, send email to
>>>>>>>>>> [email protected]
>>>>>>>>>> For more options, visit this group at
>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>> ---
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it,
>>>>>>>>>> send an email to [email protected].
>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>>
>>>>>>>>>> --
>>>>>>>>>> --
>>>>>>>>>> [CMLHope]
>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>> To unsubscribe from this group, send email to
>>>>>>>>>> [email protected]
>>>>>>>>>> For more options, visit this group at
>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>> ---
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it,
>>>>>>>>>> send an email to [email protected].
>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>>
>>>>>>>>>> --
>>>>>>>>>> --
>>>>>>>>>> [CMLHope]
>>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>>> -------------------------------------------------
>>>>>>>>>>
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>>> To unsubscribe from this group, send email to
>>>>>>>>>> [email protected]
>>>>>>>>>> For more options, visit this group at
>>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>>> ---
>>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>>> To unsubscribe from this group and stop receiving emails from it,
>>>>>>>>>> send an email to [email protected].
>>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>
>>>>>>>>> --
>>>>>>>>> --
>>>>>>>>> [CMLHope]
>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>> -------------------------------------------------
>>>>>>>>>
>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>> To unsubscribe from this group, send email to
>>>>>>>>> [email protected]
>>>>>>>>> For more options, visit this group at
>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>> ---
>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>> To unsubscribe from this group and stop receiving emails from it,
>>>>>>>>> send an email to [email protected].
>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>>>
>>>>>>>>> --
>>>>>>>>> --
>>>>>>>>> [CMLHope]
>>>>>>>>> A support group of http://cmlhope.com
>>>>>>>>> -------------------------------------------------
>>>>>>>>>
>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>>> To unsubscribe from this group, send email to
>>>>>>>>> [email protected]
>>>>>>>>> For more options, visit this group at
>>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>>> ---
>>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>>> Groups "CMLHope" group.
>>>>>>>>> To unsubscribe from this group and stop receiving emails from it,
>>>>>>>>> send an email to [email protected].
>>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>> --
>>>>>>>> --
>>>>>>>> [CMLHope]
>>>>>>>> A support group of http://cmlhope.com
>>>>>>>> -------------------------------------------------
>>>>>>>>
>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>> Groups "CMLHope" group.
>>>>>>>> To post to this group, send email to [email protected]
>>>>>>>> To unsubscribe from this group, send email to
>>>>>>>> [email protected]
>>>>>>>> For more options, visit this group at
>>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>>> ---
>>>>>>>> You received this message because you are subscribed to the Google
>>>>>>>> Groups "CMLHope" group.
>>>>>>>> To unsubscribe from this group and stop receiving emails from it, send
>>>>>>>> an email to [email protected].
>>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>
>>>>>>> --
>>>>>>> --
>>>>>>> [CMLHope]
>>>>>>> A support group of http://cmlhope.com
>>>>>>> -------------------------------------------------
>>>>>>>
>>>>>>> You received this message because you are subscribed to the Google
>>>>>>> Groups "CMLHope" group.
>>>>>>> To post to this group, send email to [email protected]
>>>>>>> To unsubscribe from this group, send email to
>>>>>>> [email protected]
>>>>>>> For more options, visit this group at
>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>> ---
>>>>>>> You received this message because you are subscribed to the Google
>>>>>>> Groups "CMLHope" group.
>>>>>>> To unsubscribe from this group and stop receiving emails from it, send
>>>>>>> an email to [email protected].
>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>>
>>>>>>> --
>>>>>>> --
>>>>>>> [CMLHope]
>>>>>>> A support group of http://cmlhope.com
>>>>>>> -------------------------------------------------
>>>>>>>
>>>>>>> You received this message because you are subscribed to the Google
>>>>>>> Groups "CMLHope" group.
>>>>>>> To post to this group, send email to [email protected]
>>>>>>> To unsubscribe from this group, send email to
>>>>>>> [email protected]
>>>>>>> For more options, visit this group at
>>>>>>> http://groups.google.com/group/CMLHope
>>>>>>> ---
>>>>>>> You received this message because you are subscribed to the Google
>>>>>>> Groups "CMLHope" group.
>>>>>>> To unsubscribe from this group and stop receiving emails from it, send
>>>>>>> an email to [email protected].
>>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>
>>>>>> --
>>>>>> --
>>>>>> [CMLHope]
>>>>>> A support group of http://cmlhope.com
>>>>>> -------------------------------------------------
>>>>>>
>>>>>> You received this message because you are subscribed to the Google
>>>>>> Groups "CMLHope" group.
>>>>>> To post to this group, send email to [email protected]
>>>>>> To unsubscribe from this group, send email to
>>>>>> [email protected]
>>>>>> For more options, visit this group at
>>>>>> http://groups.google.com/group/CMLHope
>>>>>> ---
>>>>>> You received this message because you are subscribed to the Google
>>>>>> Groups "CMLHope" group.
>>>>>> To unsubscribe from this group and stop receiving emails from it, send
>>>>>> an email to [email protected].
>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>>
>>>>>> --
>>>>>> --
>>>>>> [CMLHope]
>>>>>> A support group of http://cmlhope.com
>>>>>> -------------------------------------------------
>>>>>>
>>>>>> You received this message because you are subscribed to the Google
>>>>>> Groups "CMLHope" group.
>>>>>> To post to this group, send email to [email protected]
>>>>>> To unsubscribe from this group, send email to
>>>>>> [email protected]
>>>>>> For more options, visit this group at
>>>>>> http://groups.google.com/group/CMLHope
>>>>>> ---
>>>>>> You received this message because you are subscribed to the Google
>>>>>> Groups "CMLHope" group.
>>>>>> To unsubscribe from this group and stop receiving emails from it, send
>>>>>> an email to [email protected].
>>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>
>>>>>
>>>>> --
>>>>> --
>>>>> [CMLHope]
>>>>> A support group of http://cmlhope.com
>>>>> -------------------------------------------------
>>>>>
>>>>> You received this message because you are subscribed to the Google Groups
>>>>> "CMLHope" group.
>>>>> To post to this group, send email to [email protected]
>>>>> To unsubscribe from this group, send email to
>>>>> [email protected]
>>>>> For more options, visit this group at
>>>>> http://groups.google.com/group/CMLHope
>>>>> ---
>>>>> You received this message because you are subscribed to the Google Groups
>>>>> "CMLHope" group.
>>>>> To unsubscribe from this group and stop receiving emails from it, send an
>>>>> email to [email protected].
>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>>
>>>>>
>>>>> --
>>>>> --
>>>>> [CMLHope]
>>>>> A support group of http://cmlhope.com
>>>>> -------------------------------------------------
>>>>>
>>>>> You received this message because you are subscribed to the Google Groups
>>>>> "CMLHope" group.
>>>>> To post to this group, send email to [email protected]
>>>>> To unsubscribe from this group, send email to
>>>>> [email protected]
>>>>> For more options, visit this group at
>>>>> http://groups.google.com/group/CMLHope
>>>>> ---
>>>>> You received this message because you are subscribed to the Google Groups
>>>>> "CMLHope" group.
>>>>> To unsubscribe from this group and stop receiving emails from it, send an
>>>>> email to [email protected].
>>>>> For more options, visit https://groups.google.com/d/optout.
>>>>
>>>> --
>>>> --
>>>> [CMLHope]
>>>> A support group of http://cmlhope.com
>>>> -------------------------------------------------
>>>>
>>>> You received this message because you are subscribed to the Google Groups
>>>> "CMLHope" group.
>>>> To post to this group, send email to [email protected]
>>>> To unsubscribe from this group, send email to
>>>> [email protected]
>>>> For more options, visit this group at
>>>> http://groups.google.com/group/CMLHope
>>>> ---
>>>> You received this message because you are subscribed to the Google Groups
>>>> "CMLHope" group.
>>>> To unsubscribe from this group and stop receiving emails from it, send an
>>>> email to [email protected].
>>>> For more options, visit https://groups.google.com/d/optout.
>>>
>>> --
>>> --
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -------------------------------------------------
>>>
>>> You received this message because you are subscribed to the Google Groups
>>> "CMLHope" group.
>>> To post to this group, send email to [email protected]
>>> To unsubscribe from this group, send email to
>>> [email protected]
>>> For more options, visit this group at http://groups.google.com/group/CMLHope
>>> ---
>>> You received this message because you are subscribed to the Google Groups
>>> "CMLHope" group.
>>> To unsubscribe from this group and stop receiving emails from it, send an
>>> email to [email protected].
>>> For more options, visit https://groups.google.com/d/optout.
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -------------------------------------------------
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To post to this group, send email to [email protected]
>> To unsubscribe from this group, send email to
>> [email protected]
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> ---
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an
>> email to [email protected].
>> For more options, visit https://groups.google.com/d/optout.
>
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -------------------------------------------------
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to [email protected]
> To unsubscribe from this group, send email to
> [email protected]
> For more options, visit this group at http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to [email protected].
> For more options, visit https://groups.google.com/d/optout.
--
--
[CMLHope]
A support group of http://cmlhope.com
-------------------------------------------------
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To post to this group, send email to [email protected]
To unsubscribe from this group, send email to
[email protected]
For more options, visit this group at http://groups.google.com/group/CMLHope
---
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email
to [email protected].
For more options, visit https://groups.google.com/d/optout.
