Wow!!! 17 awake!!! You are truly a warrior Marty!! My hip is quite sore today. Dr lowered my hydrea to once a day. Said my counts were coming down too fast. Blessings Jeanie 18's 🐟🐟
Sent from my iPhone > On Jan 17, 2015, at 8:16 AM, "'Icandoallttc' via CMLHope" > <[email protected]> wrote: > > > > Sent from my iPhone > Is anyone on ponatinib? Did your insurance pay for it? > I have Humana part D > Thanks > Jeanie >> On Jan 17, 2015, at 12:52 AM, bkbarney via CMLHope >> <[email protected]> wrote: >> >> great news that the BMB went so easily.. I know at Moffit they put you out >> for them..up here in Chicago..they just do locals!!! I am staying hopeful >> for you Jeannie...sending good thoughts. B >> >> >> -----Original Message----- >> From: Marty Gartenberg <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Fri, Jan 16, 2015 6:26 pm >> Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week. >> >> Hi Jeanie, >> >> Wow, your "lucky" for a better word to use. I had 17 of them and was never >> put out OUCH x 17<33A.gif> >> >> 18's, >> >> Marty >> >>> On Fri, Jan 16, 2015 at 10:54 AM, 'Icandoallttc' via CMLHope >>> <[email protected]> wrote: >>> Finished Bma --waiting on doctor-- great he had to attend computer seminar. >>> >>> Every thing went very well-- was asleep about 20 minutes. >>> >>> Went down and had breakfast--coffee finally!!!! >>> Blessings >>> Jeanie<emoji_u1f41d.png> >>> >>> Sent from my iPhone >>> >>> On Jan 16, 2015, at 5:20 AM, "'Icandoallttc' via CMLHope" >>> <[email protected]> wrote: >>> >>>> Hi Beth. >>>> Thanks for the uplift. We took aspirin for years before they told us to >>>> eat with them. My dad and brother has ulcers. >>>> Hard to heal. >>>> My brother ended up having one-half his tummy out. >>>> I feel I might have them. >>>> Blessings >>>> Jeanie❤️ >>>> >>>> >>>> Sent from my iPhone >>>> >>>> On Jan 15, 2015, at 5:29 PM, bkbarney via CMLHope >>>> <[email protected]> wrote: >>>> >>>>> >>>>> good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for >>>>> results of endoscopies, I had a small stomach ulcer..the result of taking >>>>> NSAIDS on an empty stomach... to battle a broken hand. it was years ago >>>>> but Iearned my lesson. >>>>> I never take any pain med without food. >>>>> >>>>> thinking of you. big hug,. Beth >>>>> -----Original Message----- >>>>> From: 'Icandoallttc' via CMLHope <[email protected]> >>>>> To: cmlhope <[email protected]> >>>>> Sent: Thu, Jan 15, 2015 12:34 pm >>>>> Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week. >>>>> >>>>> Hi all and thanks so much for the updates in endoscopy. >>>>> Did anyone have anything discovered during the procedure? >>>>> I have had an ongoing pain in my right side. I am hoping they can solve >>>>> the mystery. >>>>> Getting the Bma early in the morning. No food or drink after midnight. >>>>> Sure will miss my morning cup if coffee. >>>>> They also want to do a ct scan but put that off for a couple of weeks. >>>>> I had one done last year. >>>>> Blessings >>>>> Jeanie >>>>> >>>>> >>>>> Sent from my iPhone >>>>> >>>>> On Jan 15, 2015, at 12:43 AM, Richard H <[email protected]> wrote: >>>>> >>>>>> You are correct about both. One time, I had both back to back. The Dr. >>>>>> didn't care for my remark about using clean equipment so now they >>>>>> schedule them at different times. >>>>>> >>>>>>> On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote: >>>>>>> Yes Jeannie, I have had an endoscopy....NO problem...at least for me. >>>>>>> Twilight meds, remember nothing....not even a sore throat >>>>>>> afterwards....I've had two of them. several years apart. Hope yours >>>>>>> goes as well as mine. Easier on the body than a colonoscopy. Good luck >>>>>>> with the bone marrow biopsy Friday. glad they will take a good look at >>>>>>> what is going on and can reset from there...So sorry you are so >>>>>>> nauseated.....Take good care...and jeannie, if you feel at all like >>>>>>> talking, happy to listen. Feel free to email me at personal email and I >>>>>>> can give you phone number. >>>>>>> >>>>>>> Beth >>>>>>> >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: 'Icandoallttc' via CMLHope <[email protected]> >>>>>>> To: cmlhope <[email protected]> >>>>>>> Sent: Wed, Jan 14, 2015 4:23 pm >>>>>>> Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next >>>>>>> week. >>>>>>> >>>>>>> Anyone have an endoscopy ? Jeanie >>>>>>> >>>>>>> Sent from my iPhone >>>>>>> >>>>>>> On Jan 14, 2015, at 2:14 PM, "'Icandoallttc' via CMLHope" >>>>>>> <[email protected]> wrote: >>>>>>> >>>>>>> Maybe they can find out why my side is hurting. >>>>>>> Blessing everyone >>>>>>> Jeanie >>>>>>> >>>>>>> Sent from my iPhone >>>>>>> >>>>>>> On Jan 14, 2015, at 10:57 AM, "'Icandoallttc' via CMLHope" >>>>>>> <[email protected]> wrote: >>>>>>> >>>>>>> They put you to sleep for Bma. >>>>>>> >>>>>>> Sent from my iPhone >>>>>>> >>>>>>> On Jan 14, 2015, at 10:56 AM, "'Icandoallttc' via CMLHope" >>>>>>> <[email protected]> wrote: >>>>>>> >>>>>>> Hi it's not me who lost their dad-- I lost mine many years ago. >>>>>>> I am still so nauseas. >>>>>>> Hanging in there. >>>>>>> Doing Bma fri. >>>>>>> Blessings >>>>>>> Jeanie >>>>>>> >>>>>>> >>>>>>> Sent from my iPhone >>>>>>> >>>>>>> On Jan 13, 2015, at 4:06 AM, sherri swanson <[email protected]> >>>>>>> wrote: >>>>>>> >>>>>>> Jeanie, >>>>>>> >>>>>>> I'm so sorry for your loss. You will always have them in your heart. >>>>>>> I lost my parent a long time ago but I miss them as if it were >>>>>>> yesterday. When I read your message, I looked at their photo and asked >>>>>>> them to take good care of your dad. >>>>>>> >>>>>>> L'chaim, >>>>>>> >>>>>>> Sherri >>>>>>> >>>>>>> >>>>>>> On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope >>>>>>> <[email protected]> wrote: >>>>>>> Thank you Greenie >>>>>>> I need that. >>>>>>> Blessings >>>>>>> Jeanie >>>>>>> >>>>>>> Sent from my iPhone >>>>>>> >>>>>>> On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope >>>>>>> <[email protected]> wrote: >>>>>>> >>>>>>> Hi Jeanie, hang in their, I'm thinking good thoughts and passing them >>>>>>> on to you. >>>>>>> >>>>>>> greenie >>>>>>> >>>>>>> In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, >>>>>>> [email protected] writes: >>>>>>> Thanks Susan. >>>>>>> I'm hanging in there!!! >>>>>>> Blessings. >>>>>>> Jeanie<emoji_u1f41f.png><emoji_u1f41f.png><emoji_u1f41f.png> >>>>>>> >>>>>>> Sent from my iPhone >>>>>>> >>>>>>> On Jan 11, 2015, at 11:17 PM, "'Susan Zimmerman' via CMLHope" >>>>>>> <[email protected]> wrote: >>>>>>> >>>>>>> Awwwww Marcie! >>>>>>> >>>>>>> I am so sorry for your loss, dear one. I know you've been being a good >>>>>>> caregiver for several years to your dad. You will be rewarded >>>>>>> some day for that. My heart hurts for you, so will surely be lifting >>>>>>> you in prayer. No matter what the age, the loss is huge when we are >>>>>>> the ones left behind. It was so kind of your rabbi to mention your CML >>>>>>> battle. I pray you stop having those horrible cramps, too. Traveling >>>>>>> mercies for you all. >>>>>>> >>>>>>> And Jeanie, also know what it's like to have a bad day from hydrea. >>>>>>> Many (including me) felt like they have the flu with the nausea, and I >>>>>>> pray this will not last long at all. A new day is coming, and I sure >>>>>>> do hope your doc puts you on something that works! (maybe bosulif?) >>>>>>> Here's wishing you the best, dear one. >>>>>>> >>>>>>> Love and 18's, >>>>>>> >>>>>>> Susan >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: 'Marcie Goodman' via CMLHope <[email protected]> >>>>>>> To: cmlhope <[email protected]> >>>>>>> Sent: Sun, Jan 11, 2015 10:59 pm >>>>>>> Subject: Re: [CMLHope] Jeanie's relapse >>>>>>> >>>>>>> Hi Jeanie, >>>>>>> >>>>>>> So sorry you are having a tough time. I'm praying for you to have good >>>>>>> test results and a much better week. >>>>>>> >>>>>>> My 94 year old father passed away on Friday, funeral was today. During >>>>>>> evening prayers our rabbi asked that everyone pray for not only my >>>>>>> father and our family but for our group struggling with the impact of >>>>>>> CML. My dad hated the fact that I had this illness and knew that I had >>>>>>> such a wonderful online support family. >>>>>>> >>>>>>> So lots of prayers for you and all of us headed out from Baltimore all >>>>>>> week! >>>>>>> >>>>>>> Much love, >>>>>>> >>>>>>> Marcie >>>>>>> >>>>>>> Sent from my iPhone >>>>>>> >>>>>>> On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope >>>>>>> <[email protected]> wrote: >>>>>>> >>>>>>> Hi Marty. >>>>>>> I feel so bad today!!! >>>>>>> Thinks it's from the hydrea. >>>>>>> I will print that out and keep it close. >>>>>>> I love psalms also. >>>>>>> Keep praying. >>>>>>> Jeanie 18's >>>>>>> >>>>>>> Sent from my iPhone >>>>>>> >>>>>>> On Jan 11, 2015, at 8:05 AM, Marty Gartenberg <[email protected]> wrote: >>>>>>> >>>>>>> Jeanie, I know that your feeling low right now but things will work out >>>>>>> for you. You must have this in your heart and I know that you do. FOCUS. >>>>>>> >>>>>>> This was something that was given to me by one of my close friends when >>>>>>> I had to live in that plastic bubble for all of those many months. I >>>>>>> would read it all the time and I am now passing it on to you, and it is >>>>>>> being sent to you from my heart because I remember my doubts but then >>>>>>> again I also remember my strengths. >>>>>>> >>>>>>> EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF >>>>>>> CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE >>>>>>> IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL >>>>>>> GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS >>>>>>> WHAT YOU WILL GET. >>>>>>> WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES >>>>>>> OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING >>>>>>> EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE >>>>>>> THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF >>>>>>> POSSIBILITY. >>>>>>> EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE >>>>>>> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE >>>>>>> SUCCESSFUL OUTCOME... >>>>>>> FOCUS... >>>>>>> >>>>>>> Yes Jeanie you just keep on focusing because you are much more powerful >>>>>>> then you think. >>>>>>> >>>>>>> Now you know why I keep on sending 18's. >>>>>>> >>>>>>> 18's, >>>>>>> >>>>>>> Marty >>>>>>> >>>>>>> On Sat, Jan 10, 2015 at 10:38 AM, 'Icandoallttc' via CMLHope >>>>>>> <[email protected]> wrote: >>>>>>> Hi Marty >>>>>>> Thanks for you uplifting message. >>>>>>> I am back to square one with my counts-- >>>>>>> 700 thousand platelets >>>>>>> 163.28 WBC >>>>>>> ANC high >>>>>>> Creatine high >>>>>>> Potassium high >>>>>>> Took me off sprycel. >>>>>>> Allipurinoll 2 pills >>>>>>> Hydrea 3 twice a day >>>>>>> Yes I will fight!!! >>>>>>> Just so tired. >>>>>>> I think dr will put me on new drug mon. >>>>>>> Got to see if there is a mutant. >>>>>>> Prays and love to all. >>>>>>> 18's. <emoji_u1f41f.png> >>>>>>> Jeanie >>>>>>> >>>>>>> >>>>>>> Sent from my iPhone >>>>>>> >>>>>>> On Jan 10, 2015, at 4:31 AM, sherri swanson <[email protected]> >>>>>>> wrote: >>>>>>> >>>>>>> Hi Richard, >>>>>>> >>>>>>> If it's one thing I got, It's Attitude! At least that's >>>>>>> what my mom would tell me when I was a teenager. LOL >>>>>>> >>>>>>> Sorry to hear about the car. This cold weather can be >>>>>>> brutal on a car's battery. Glad you were able to get a new and now >>>>>>> you’re good to go. >>>>>>> >>>>>>> Uor wind chills have been bad too. And we have some open fields so >>>>>>> there is nothing to block that wind. The other morning it was so cold >>>>>>> that the water froze in our community and none of had any >>>>>>> water for awhile. It's a good thing I'm an early raiser and I took my >>>>>>> shower while we had water. >>>>>>> >>>>>>> Currently, it is -7 with a wind chill of -25 where I live and it isn't >>>>>>> going to be above zero until 9 am. That's cold. >>>>>>> >>>>>>> Stay warm Richard and think spring! >>>>>>> >>>>>>> L'chaim, >>>>>>> >>>>>>> Sherri >>>>>>> >>>>>>> On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <[email protected]> >>>>>>> wrote: >>>>>>> Hi Jeanie, >>>>>>> >>>>>>> So many things effect your kidneys. The simple ageing factor is just >>>>>>> one of them. Some medicines will also contribute to kidney function >>>>>>> probably some of these TKI's. Mine finally gave out from all of the >>>>>>> chemotherapy and radiation I had more then 25 years ago. >>>>>>> >>>>>>> I can make a suggestion: If you are not diabetic try drinking cranberry >>>>>>> juice. Not the ones that are mixed up with juices like grape juice. >>>>>>> Ocean Spray has pure cranberry juice so you might want to try it. Even >>>>>>> if you are diabetic they also make a light cranberry juice. >>>>>>> >>>>>>> You know what? You have been through so much that this is only a bump >>>>>>> in the road for you, and so it is for me. >>>>>>> >>>>>>> We have two choices. One, continue to fight and the other is not an >>>>>>> option for me or you. >>>>>>> That is why I always end any of my posts with 18's. You just hang in >>>>>>> there sweetie. >>>>>>> >>>>>>> Marty >>>>>>> >>>>>>> On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope >>>>>>> <[email protected]> wrote: >>>>>>> Hi Sherri, >>>>>>> I think the tki's contribute to kidney disease. I think that I am in >>>>>>> the beginning of the disease and I have been on tki's for 11 years now. >>>>>>> Hang in in there; blessings >>>>>>> Jeanie<3 >>>>>>> >>>>>>> In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, >>>>>>> [email protected] writes: >>>>>>> Hi Marty, >>>>>>> >>>>>>> Thanks for the prayers and right back at ya. >>>>>>> >>>>>>> I've been struggling with my kidney disease for many years and didn't >>>>>>> know it, and then one day voilà the doctors found that there was a >>>>>>> problem and that I'd been fighting it for years hence the diagnoses of >>>>>>> Chronic Kidney Disease. And the funny thing is, I'm the only one in my >>>>>>> entire family that has any of these diseases. My family had its share >>>>>>> of health issues from heart disease to diabetes. But never anything >>>>>>> like what I have. All my doctors just shake their heads. I tell them >>>>>>> that I like to keep things interesting. And what they like is that I >>>>>>> have a sense of humor. And at this point, it is much better to joke and >>>>>>> laugh than to worry and cry. While I still take what I have seriously, >>>>>>> I'm just happy to be here. >>>>>>> >>>>>>> I would be a lot happier if the weather here would warm up. For crying >>>>>>> out loud it was -5 here yesterday and I was out in it. Now that is one >>>>>>> hearty person or a very foolish one. The jury is still out on that one. >>>>>>> Today it is going to be a balmy 8. Woohoo! A heat wave. And, again >>>>>>> I'll be out in it as I have to go and get a Rx that I need. >>>>>>> >>>>>>> L'chaim, >>>>>>> >>>>>>> Sherri >>>>>>> >>>>>>> On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <[email protected]> >>>>>>> wrote: >>>>>>> Dear Sherri, >>>>>>> >>>>>>> Yes, you are a fighter and it takes one to know one. I pray that >>>>>>> everything turns out well for you. >>>>>>> >>>>>>> And you are correct that all of the radiation and chemotherapy did >>>>>>> destroy both of my kidneys. It has been over 25 years that I had my >>>>>>> BMT. It took many years for my kidneys to fail and that is probably why >>>>>>> most transplant centers will usually not use total body radiation any >>>>>>> more unless it is really needed. >>>>>>> >>>>>>> 18's, >>>>>>> >>>>>>> Marty >>>>>>> >>>>>>> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson <[email protected]> >>>>>>> wrote: >>>>>>> Hi Marty, >>>>>>> >>>>>>> The doctors are trying to treat the different illnesses that are >>>>>>> included in my condition. There are so many and they do so many >>>>>>> different things, that I am happy just to to be here. I agree that as >>>>>>> we get older there are some unusual things that that find us. But in >>>>>>> the long run, we all got something. I'm a survivor. It's what I do. So >>>>>>> when I found out on Monday that I have a large mass on my thyroid, I >>>>>>> told my doctor I guess we're going to be busy this winter. At least I'm >>>>>>> not an alarmist. <35C.png> >>>>>>> >>>>>>> I too have trouble with my kidneys. Not to the extend that you do, I'm >>>>>>> working to keep myself at the current level of stage III Kidney >>>>>>> Disease. Some days, I'm good others, not so much. Lately I've not been >>>>>>> doing so good and I've had to go and buy new shoes as my feet have been >>>>>>> so swollen that my current size no longer fit. I wear compression socks >>>>>>> all the time as well. >>>>>>> >>>>>>> My Nephrologist ran some blood work and found that my sodium was very >>>>>>> low and and so was a bunch of other levels. Now, he is an alarmist. If >>>>>>> I even look like I'm getting a cold he freaks out. I love him dearly, >>>>>>> and I do what he says, but I can't sneeze without him making me go see >>>>>>> my GP or the Oncologist or whatever doctor he thinks I need to see. >>>>>>> >>>>>>> I've heard that when you have a BMT and have to have radiation and >>>>>>> chemo, sometimes kidney failure is possible. How long have you been on >>>>>>> the list for transplant? >>>>>>> >>>>>>> Well, I'm glad that you are here and that you are strong. You're an >>>>>>> inspiration to all of us. Thanks for all you do Marty. >>>>>>> >>>>>>> L'chaim >>>>>>> >>>>>>> Sherri >>>>>>> >>>>>>> On Thu, Jan 8, 2015 at 10:0 >>>>>>> ... >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to [email protected] >>>>>> To unsubscribe from this group, send email to >>>>>> [email protected] >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to [email protected]. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of 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