They put you to sleep for that? Sounds like overkill to me. My doc just gives me a local (needle in the bum), then does the bma. Two days of very mild discomfort - that's it. Am I missing something?
On Wednesday, January 14, 2015 at 10:57:13 AM UTC-5, Icandoallttc wrote: > > They put you to sleep for Bma. > > Sent from my iPhone > > On Jan 14, 2015, at 10:56 AM, "'Icandoallttc' via CMLHope" < > [email protected] <javascript:>> wrote: > > Hi it's not me who lost their dad-- I lost mine many years ago. > I am still so nauseas. > Hanging in there. > Doing Bma fri. > Blessings > Jeanie > > > Sent from my iPhone > > On Jan 13, 2015, at 4:06 AM, sherri swanson <[email protected] > <javascript:>> wrote: > > Jeanie, > > I'm so sorry for your loss. You will always have them in your heart. > I lost my parent a long time ago but I miss them as if it were yesterday. > When I read your message, I looked at their photo and asked them to take > good care of your dad. > > L'chaim, > > Sherri > > > On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope < > [email protected] <javascript:>> wrote: > > Thank you Greenie > I need that. > Blessings > Jeanie > > Sent from my iPhone > > On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope <[email protected] > <javascript:>> wrote: > > Hi Jeanie, hang in their, I'm thinking good thoughts and passing them > on to you. > > greenie > > In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, > [email protected] <javascript:> writes: > > Thanks Susan. > I'm hanging in there!!! > Blessings. > Jeanie<emoji_u1f41f.png><emoji_u1f41f.png><emoji_u1f41f.png> > > Sent from my iPhone > > On Jan 11, 2015, at 11:17 PM, "'Susan Zimmerman' via CMLHope" < > [email protected] <javascript:>> wrote: > > Awwwww Marcie! > > I am so sorry for your loss, dear one. I know you've been being a good > caregiver for several years to your dad. You will be rewarded some day for > that. My heart hurts for you, so will surely be lifting you in prayer. No > matter what the age, the loss is huge when we are the ones left behind. It > was so kind of your rabbi to mention your CML battle. I pray you stop > having those horrible cramps, too. Traveling mercies for you all. > > And Jeanie, also know what it's like to have a bad day from hydrea. Many > (including me) felt like they have the flu with the nausea, and I pray this > will not last long at all. A new day is coming, and I sure do hope your > doc puts you on something that works! (maybe bosulif?) Here's wishing you > the best, dear one. > > Love and 18's, > > Susan > > -----Original Message----- > From: 'Marcie Goodman' via CMLHope <[email protected] <javascript:>> > To: cmlhope <[email protected] <javascript:>> > Sent: Sun, Jan 11, 2015 10:59 pm > Subject: Re: [CMLHope] Jeanie's relapse > > Hi Jeanie, > > So sorry you are having a tough time. I'm praying for you to have good > test results and a much better week. > > My 94 year old father passed away on Friday, funeral was today. During > evening prayers our rabbi asked that everyone pray for not only my father > and our family but for our group struggling with the impact of CML. My dad > hated the fact that I had this illness and knew that I had such a wonderful > online support family. > > So lots of prayers for you and all of us headed out from Baltimore all > week! > > Much love, > > Marcie > > Sent from my iPhone > > On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope < > [email protected] <javascript:>> wrote: > > Hi Marty. > I feel so bad today!!! > Thinks it's from the hydrea. > I will print that out and keep it close. > I love psalms also. > Keep praying. > Jeanie 18's > > Sent from my iPhone > > On Jan 11, 2015, at 8:05 AM, Marty Gartenberg <[email protected] > <javascript:>> wrote: > > Jeanie, I know that your feeling low right now but things will work out > for you. You must have this in your heart and I know that you do. FOCUS. > > This was something that was given to me by one of my close friends when I > had to live in that plastic bubble for all of those many months. I would > read it all the time and I am now passing it on to you, and it is being > sent to you from my heart because I remember my doubts but then again I > also remember my strengths. > > EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF > CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN > YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET > (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. > WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF > MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING > INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU > THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. > EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE > BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE > SUCCESSFUL OUTCOME... > FOCUS... > > Yes Jeanie you just keep on focusing because you are much more powerful > then you think. > > Now you know why I keep on sending 18's. > > 18's, > > Marty > > On Sat, Jan 10, 2015 at 10:38 AM, 'Icandoallttc' via CMLHope < > [email protected] <javascript:>> wrote: > > Hi Marty > Thanks for you uplifting message. > I am back to square one with my counts-- > 700 thousand platelets > 163.28 WBC > ANC high > Creatine high > Potassium high > Took me off sprycel. > Allipurinoll 2 pills > Hydrea 3 twice a day > Yes I will fight!!! > Just so tired. > I think dr will put me on new drug mon. > Got to see if there is a mutant. > Prays and love to all. > 18's. <emoji_u1f41f.png> > Jeanie > > > Sent from my iPhone > > On Jan 10, 2015, at 4:31 AM, sherri swanson <[email protected] > <javascript:>> wrote: > > Hi Richard, > > If it's one thing I got, It's Attitude! At least that's what my mom would > tell me when I was a teenager. LOL > > Sorry to hear about the car. This cold weather can be brutal on a car's > battery. Glad you were able to get a new and now you’re good to go. > > Uor wind chills have been bad too. And we have some open fields so there > is nothing to block that wind. The other morning it was so cold that the > water froze in our community and none of had any water for awhile. It's a > good thing I'm an early raiser and I took my shower while we had water. > > Currently, it is -7 with a wind chill of -25 where I live and it isn't > going to be above zero until 9 am. That's cold. > > Stay warm Richard and think spring! > > L'chaim, > > Sherri > > On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <[email protected] > <javascript:>> wrote: > > Hi Jeanie, > > So many things effect your kidneys. The simple ageing factor is just one > of them. Some medicines will also contribute to kidney function probably > some of these TKI's. Mine finally gave out from all of the chemotherapy and > radiation I had more then 25 years ago. > > I can make a suggestion: If you are not diabetic try drinking cranberry > juice. Not the ones that are mixed up with juices like grape juice. Ocean > Spray has pure cranberry juice so you might want to try it. Even if you are > diabetic they also make a light cranberry juice. > > You know what? You have been through so much that this is only a bump in > the road for you, and so it is for me. > > We have two choices. One, continue to fight and the other is not an option > for me or you. > That is why I always end any of my posts with 18's. You just hang in there > sweetie. > > Marty > > On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope < > [email protected] <javascript:>> wrote: > > Hi Sherri, > I think the tki's contribute to kidney disease. I think that I am in the > beginning of the disease and I have been on tki's for 11 years now. > Hang in in there; blessings > Jeanie<3 > > In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, > [email protected] <javascript:> writes: > > Hi Marty, > > Thanks for the prayers and right back at ya. > > I've been struggling with my kidney disease for many years and didn't know > it, and then one day voilà the doctors found that there was a problem and > that I'd been fighting it for years hence the diagnoses of Chronic Kidney > Disease. And the funny thing is, I'm the only one in my entire family that > has any of these diseases. My family had its share of health issues from > heart disease to diabetes. But never anything like what I have. All my > doctors just shake their heads. I tell them that I like to keep things > interesting. And what they like is that I have a sense of humor. And at > this point, it is much better to joke and laugh than to worry and cry. > While I still take what I have seriously, I'm just happy to be here. > > I would be a lot happier if the weather here would warm up. For crying out > loud it was -5 here yesterday and I was out in it. Now that is one hearty > person or a very foolish one. The jury is still out on that one. Today it > is going to be a balmy 8. Woohoo! A heat wave. And, again I'll be out in > it as I have to go and get a Rx that I need. > > L'chaim, > > Sherri > > On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <[email protected] > <javascript:>> wrote: > > Dear Sherri, > > Yes, you are a fighter and it takes one to know one. I pray that > everything turns out well for you. > > And you are correct that all of the radiation and chemotherapy did destroy > both of my kidneys. It has been over 25 years that I had my BMT. It took > many years for my kidneys to fail and that is probably why most transplant > centers will usually not use total body radiation any more unless it is > really needed. > > 18's, > > Marty > > On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson <[email protected] > <javascript:>> wrote: > > Hi Marty, > > The doctors are trying to treat the different illnesses that are included > in my condition. There are so many and they do so many different things, > that I am happy just to to be here. I agree that as we get older there are > some unusual things that that find us. But in the long run, we all got > something. I'm a survivor. It's what I do. So when I found out on Monday > that I have a large mass on my thyroid, I told my doctor I guess we're > going to be busy this winter. At least I'm not an alarmist. <35C.png> > > I too have trouble with my kidneys. Not to the extend that you do, I'm > working to keep myself at the current level of stage III Kidney Disease. > Some days, I'm good others, not so much. Lately I've not been doing so > good and I've had to go and buy new shoes as my feet have been so swollen > that my current size no longer fit. I wear compression socks all the time > as well. > > My Nephrologist ran some blood work and found that my sodium was very low > and and so was a bunch of other levels. Now, he is an alarmist. If I even > look like I'm getting a cold he freaks out. I love him dearly, and I do > what he says, but I can't sneeze without him making me go see my GP or the > Oncologist or whatever doctor he thinks I need to see. > > I've heard that when you have a BMT and have to have radiation and chemo, > sometimes kidney failure is possible. How long have you been on the list > for transplant? > > Well, I'm glad that you are here and that you are strong. You're an > inspiration to all of us. Thanks for all you do Marty. > > L'chaim > > Sherri > > On Thu, Jan 8, 2015 at 10:07 AM, Marty Gartenberg <[email protected] > <javascript:>> wrote: > > Hi again Sherri, > > Hopefully you will be able to be treated for this condition. It seems that > as most of us get older we start suffering from some very unusual things, > but that is the price we must pay to remain alive. We just have to do > whatever we can to keep on going because we have no other choice. > > My kidneys failed four years ago and I must be on dialysis because it is > keeping me alive until I can hopefully receive a kidney transplant. > > This happened because when I received a bone marrow transplant more then > 25 years all of the radiation and chemotherapy started to destroy my > kidneys, but i'm still alive today because of it. We all have our own > battles in life and that is just the way it is. > > I wish you much health and happiness in this New Year. > > 18's, > > Marty > > On Thu, Jan 8, 2015 at 5:19 AM, sherri swanson <[email protected] > <javascript:>> wrote: > > Hi Marty, > > Happy New Year. I hope you are well. Thanks for the research I enjoyed > article. I could only wish it was as simple as being as side effect of my > TKI. In my case, nothing is ever simple LOL. What I have is called > Autonomic Neuropathy. Basically, my Autonomic Nervous System has > malfunctioned. Here is a link for you to read if you would like to. > > http://en.wikipedia.org/wiki/Dysautonomia > > In a nutshell, Autonomic Neuropathy is a nerve disorder that affects > involuntary body functions, including heart rate, blood pressure, > perspiration and digestion. > It isn't a specific disease. Autonomic Neuropathy refers to damage to the > autonomic nerves. This damage disrupts signals between the brain and > portions of the autonomic nervous system, such as the heart, blood vessels > and sweat glands. This can cause decreased or abnormal performance of one > or more involuntary body functions. > Autonomic Neuropathy can be a complication of a number of diseases and > conditions. And some medications can cause autonomic neuropathy as a side > effect. Signs, symptoms and treatment of autonomic neuropathy vary > depending on the cause, and on which nerves are affected. > L'Chaim, > Sherri > > > > On Wed, Jan 7, 2015 at 7:02 PM, Marty Gartenberg > > ... -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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