Hi Jeanie, Thanks for posting! I was surprised to hear that you suffered from ear pain too, I had that as well, with blooding ears, but I never thought that this could be linked to Gleevec.... As for the palate: I never check it, do not feel any pain either, so I do not know since when it has got this funny colour. I visited my dentist there months ago and then nothing strange could be seen... I am still afraid that it could be mouth cancer... They will call me on Tuesday from the hospital, telling me if they think a biopsy is needed...Keep my fingers crossed... My blood was checked last week, nothing special!! Thanks again, Rien
Op donderdag 15 januari 2015 heeft 'Icandoallttc' via CMLHope < cmlhope@googlegroups.com> het volgende geschreven: > Hi Rien > In my 11 years on tki's nothing surprises me anymore!!! > I recently suffered from terrible jaw and ear pain. It finally went away > but my blood counts went way up. > Have you bruise your mouth? > Has this been going on for a long time? > Sometimes a wait and see might work. > Keep a close check on you CBC And CPN. > Good luck Jeanie > > > Sent from my iPhone > > On Jan 13, 2015, at 10:40 AM, Rien Jonkers <rien16...@gmail.com > <javascript:_e(%7B%7D,'cvml','rien16...@gmail.com');>> wrote: > > Hello CML-warriors, > > It has been a long time since I sent messages to you, but I have continued > reading all the topics with much interest. > And now I have a question myself: > > I have been taking Gleevec since March 2003 and I was very happy as I > heard that I could participate in a European study, meaning that I could > stop taking the pills since December 2014. > The acr-bcr-results were fine, but now they discovered something very > strange. My dentist saw that my palate was partly blue. He had never seen > such a thing before and he sent me to the oral surgeon/oncologist, whose > reaction was more or less the same as my dentist's. He had never seen such > a thing either. He thought it could be a side effect caused by Gleevec (but > I do not take it aanymore!!). He will now ask his colleagues hematologists > if this could indeed be the case. If they do not have an answer, he will do > a biopsy, because it could be an oral cancer, even if the color does not > correspond with the diagnosis and there is not any swelling. > Does anyone have any idea what this blue/violet spot on the palate could > be? > > Thank you very much in advance for your reactions!! > > Greetings from the rainy Netherlands, > > Rien Jonkers > > -- > > *Dr. Marinus Jonkers* > > *Ravenhoflaan 5* > > *NL- 4706 WD Roosendaal* > > *Tel. +31 165 8 22128* > > *117 Bd de la 1ère Armée, no. 21* > > *F – 83330 Le Beausset* > > *Tél. +33 494 06 01 87* > > *email: rien16...@gmail.com > <javascript:_e(%7B%7D,'cvml','rien16...@gmail.com');>* > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > <javascript:_e(%7B%7D,'cvml','CMLHope@googlegroups.com');> > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope-unsubscr...@googlegroups.com');> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope%2bunsubscr...@googlegroups.com');>. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > <javascript:_e(%7B%7D,'cvml','CMLHope@googlegroups.com');> > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope-unsubscr...@googlegroups.com');> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope%2bunsubscr...@googlegroups.com');>. > For more options, visit https://groups.google.com/d/optout. > -- *Dr. Marinus Jonkers* *Ravenhoflaan 5* *NL- 4706 WD Roosendaal* *Tel. +31 165 8 22128* *117 Bd de la 1ère Armée, no. 21* *F – 83330 Le Beausset* *Tél. +33 494 06 01 87* *email: rien16...@gmail.com <rien16...@gmail.com>* -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
