Thanks Greenie I think the new meds will work. It's just going to take time--patience and hope must kick in. Going next thurs for blood work and pet scan. Did you get your results?
Prayers & Blessings Jeanie 18's 🐠🐠 > On Feb 6, 2015, at 10:58 AM, Myvety2k via CMLHope <cmlhope@googlegroups.com> > wrote: > > Jeanie, I'm sure had to here that good news. Give some time I'm sure they > get lower. > > greenie > > In a message dated 2/6/2015 10:04:03 A.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Good morning everyone > My blood results are in and my platelets came down a little--1050 > million--WBC still at 14--still fighting. > > Prayers & Blessings Jeanie 18's 🐠🐠 > >> On Feb 4, 2015, at 4:35 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> >> wrote: >> >> >> Good you have a few options to work with...Hopefully this one will work for >> you in a bit of time. I am championing your warrior spirit!! >> >> Take care, >> 18's Beth >> >> -----Original Message----- >> From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Wed, Feb 4, 2015 7:07 am >> Subject: Re: [CMLHope] Ponatinib >> >> 11 years for me--still fighting !!! 9th day on ponatinib. Sure hope it >> starts working. My onc says it's my last choice but there is one more tki I >> haven't tried--bositinib--not sure if spelling. >> Thanks for the uplift. >> >> Prayers & Blessings Jeanie 18's >> >>> On Feb 4, 2015, at 12:56 AM, bkbarney via CMLHope >>> <cmlhope@googlegroups.com> wrote: >>> >>> Thanks Greenie. You too are my inspiration.Fifteen years!!! God bless Dr. >>> Druker! Five years for me February 12th. I was diagnosed at 48. >>> >>> Take good care and enjoy the warmth! Beth >>> >>> >>> -----Original Message----- >>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>> To: cmlhope <cmlhope@googlegroups.com> >>> Sent: Tue, Feb 3, 2015 8:31 pm >>> Subject: Re: [CMLHope] Ponatinib >>> >>> Beth, get out the heating pad make sure it's a big one they make different >>> sizes. I go fishing under the bridge going over to Sanibel sometimes. If >>> you do come down here we will get together that's for sure. Just get >>> better. My son Derek's wife Ruby, she has a massage and yoga wellness >>> studio 118 North Clinton St., Suite 102 in Chicago. It's called Massage >>> Evolved. website (massageevolved.com). They started a little over a year >>> ago and seem to be doing very good. He called me over the weekend and told >>> me about the snow. You miss Florida and I'm sorry I don't miss North West >>> Indiana because of that weather. Summer is just to short up their, Grace >>> and my bones can't take it. Plus getting sick with a cold. But Grace >>> want's so purchase a small house or condo up their for the summer so we >>> would miss the real hot months down here. It would only be for 4 to 5 >>> months. That way we could visit with our grand kids and our kids. >>> >>> I can remember when I first found out that I had CML, it was to weeks >>> before xmas 1998. I asked the doctor at that time how much time I had and >>> she said between 1 1/2 to 2 years. She put me on hydra then she sent me to >>> Northwestern to see doctor Tallman and he put me in a study with interferon >>> which almost killed me it was that bad. They stopped it after 3 months >>> because I told him I couldn't take be that sick anymore. So they stopped >>> the study early..I wanted to die, a short time he called me to put me in >>> another study called STI571. Their was only 8 of us and I was the only one >>> from Indiana plus the oldest of the 7. The study had 200 people from the >>> US and this was the only country using STI571. And here I am after 15 >>> years still driving everyone crazy. It's funny how things turn out, I call >>> it faith. >>> >>> You just got to hang in their things will get better it won't happen >>> over night. >>> >>> greenie >>> >>> >>> >>> >>> >>> In a message dated 2/3/2015 6:03:14 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> >>> Greenie, >>> >>> It's snowing again here in Chicago land..hopefully only a couple of >>> inches..to add to the 20 plus already on the ground. I have been down with >>> a bad cold this week...but I watched my neighbors son--- 23 year >>> old..trying to dig out people- including me! .snow drifts were waist >>> high! It's crazy...and now..it also got very cold...below zero wind chills >>> last night..so lots of ice...ah winter.... >>> >>> I was dreaming last night about the causeway between Fort Myers and >>> Sanibel...watching the Osprey soar, seeing dolphin in the water...the >>> pelicans sitting on wood stumps along the water...snowy egrets..and then I >>> woke up!!! Must get back there soon one day...maybe at the end of this >>> year...hope to meet you when I do. >>> >>> Will look to hear from you about your test results tomorrow. >>> >>> Take care, Beth >>> >>> -----Original Message----- >>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>> To: cmlhope <cmlhope@googlegroups.com> >>> Sent: Tue, Feb 3, 2015 5:57 am >>> Subject: Re: [CMLHope] Ponatinib >>> >>> Hi Beth, I received a call from my son Derek about the snow he lives in >>> North Chicago. I hope I never have to move back north, can't handle the >>> cold and snow. >>> >>> greenie >>> >>> In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> Dear Skip and Jeanie, Thinking of you both as you navigate new terrains. >>> Hope the ponatinib works soon Jeanie and sorry you are struggling Skip. Do >>> let us know if you what you decide regarding ponatinib. I think about it >>> also. ... >>> >>> Greenie, hope you and your wife are feeling much better. >>> >>> Snow here in Chicago. 21 inches, drifts up to my waist when I opened my >>> front door this morning. Now work today..have a cold so it was a good day >>> to bunker down here. >>> >>> Blessings and love to all. Beth >>> >>> >>> -----Original Message----- >>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>> To: cmlhope <cmlhope@googlegroups.com> >>> Sent: Mon, Feb 2, 2015 3:45 pm >>> Subject: Re: [CMLHope] Ponatinib >>> >>> Jeanie, it's a good thing we don't get snow or ice here in >>> Florida because the way these people drive here the insurances companies >>> would go out of business in one day. They can't drive here when the roads >>> are dry. >>> >>> greenie >>> >>> In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> Thanks Skip-I've never had blood counts that low--always battling high >>> ones. >>> Wow! That storm sounds neat! >>> We never get sleet and snow in Florida. I saw a sleet and snow storm in >>> my visit to Switzerland. My kids loved it and were playing in it. I >>> wasn't that brave--I went inside hehe. >>> I hope you get your platelets soon. >>> >>> Prayers & Blessings Jeanie 18's >>> >>>> On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope" >>>> <cmlhope@googlegroups.com> wrote: >>>> >>>> I am so sorry you counts vary so much mine have been doing that now for a >>>> few years, Fri my HGB was 79.. my wbc was 1.5, .. plts was 17 .. neut >>>> 0.3... ANC 0.279 normally I would get somePLTS tomorrow but we have >>>> another big storm going to hit tonight and will have freezing rain in >>>> morning and all the snow will turn to ice.. so we will hold off until Wed. >>>> I am sorry for not posting much but I find using the computer very makes >>>> me very tired lately. still thinking about Ponatinib, this is my fourth >>>> year without anything except blood and platelet infusions >>>> Skip Duffie >>>> >>>> >>>> My brother lives in Naples, I live in South Fort Myers min. from the >>>> beach. The weather will be Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69 and >>>> Sat 68. Below normal should be in the low 80's BUT better then SNOW> >>>> >>>> Greenie >>>> >>>> In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard Time, >>>> jl...@rogers.com writes: >>>> Hi I am OK I had my counts done last Wednesday and my platelets were 35 >>>> and white blood cells 2.8 and neutrofils were 1.5. Hemoglobin 135. I am >>>> still off the drug and have another check this coming Wednesday. I will go >>>> back on the drug then and probably at 2 or three a week. My wife and I >>>> will be coming to Naples Florida to visit friends for a week or so. I hope >>>> it will be warm. Have your counts come down ? >>>> >>>> Sent from my iPad >>>> >>>> > On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope >>>> > <cmlhope@googlegroups.com> wrote: >>>> > >>>> > Hi John >>>> > I go to Moffitt cancer center. How are you? >>>> > >>>> > Prayers & Blessings Jeanie 18's >>>> > >>>> >> On Jan 31, 2015, at 10:47 AM, John Barrons <jl...@rogers.com> wrote: >>>> >> >>>> >> Hi Jeanie: Where are getting treated? John >>>> >> >>>> >> Sent from my iPad >>>> >> >>>> >> -- >>>> >> -- >>>> >> [CMLHope] >>>> >> A support group of http://cmlhope.com >>>> >> ------------------------------------------------- >>>> >> >>>> >> You received this message because you are subscribed >>>> >> to the Google Groups "CMLHope" group. >>>> >> To post to this group, send email to CMLHope@googlegroups.com >>>> >> To unsubscribe from this group, send email to >>>> >> cmlhope-unsubscr...@googlegroups.com >>>> >> For more options, visit this group at >>>> >> http://groups.google.com/group/CMLHope >>>> >> --- >>>> >> You received this message because you are subscribed >>>> >> to the Google Groups "CMLHope" group. >>>> >> To unsubscribe from this group and stop receiving emails from it, send >>>> >> an email to cmlhope+unsubscr...@googlegroups.com. >>>> >> For more options, visit https://groups.google.com/d/optout. >>>> > >>>> > -- >>>> > -- >>>> > [CMLHope] >>>> > A support group of http://cmlhope.com >>>> > 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