Hehe Thanks for that John. That could be causing the rash. I will ask my onc about it. I've never had gout but they say it is to wash out all dead cells being dumped into your system so you won't get gout. Have a good day.
Prayers & Blessings Jeanie 18's 🐠🐠 > On Feb 8, 2015, at 11:14 AM, John Barrons <[email protected]> wrote: > > Hi Jeanie: I did have rash when I was put on Allipurinol for uric acid > reduction. I think it was over a lot of my body. I was then put on colchicine > and have been on it quite a while. It have have no side effects from it. The > uric acid has changed my feet as they have become a little larger and I had > to get other shoes. I have in the past had severe pain in my toes from gout > from time to time. I haven't had bad pain for quite a while, but I do get > zingers from time to time. I try to watch my diet like very little red wine > and red meat. Mostly Scotch and water. I know...... Too much info John > > Sent from my iPad > >> On Feb 8, 2015, at 10:21 AM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> >> I forgot to say that I have developed a rash on upper part of both legs--not >> itching or ect--John did you have a rash? >> >> Prayers & Blessings Jeanie 18's 🐠🐠 >> >>> On Feb 8, 2015, at 9:13 AM, Icandoallttc <[email protected]> wrote: >>> >>> Hi Joyce >>> So good to hear from you. This is me 13th day on ponatinib. I can't say >>> I'm feeling better but am not worse. No bad side effects as of yet. My >>> platelets are slow coming down. Yes time and patience is needed now. >>> This is the third time I have been in crisis so I'm praying this medicine >>> will put me back into remission. Thanks for the uplift. >>> >>> Prayers & Blessings Jeanie 18's 🐠🐠 >>> >>>> On Feb 7, 2015, at 7:17 PM, Joyce Mesnarich <[email protected]> wrote: >>>> >>>> Jeanie, >>>> Glad to hear that platelets are on the way down! Just takes a bit more >>>> patience and prayers. Are you feeling better? I know you just started >>>> ponatinib. >>>> God bless and keep you, >>>> Joyce in IL >>>> >>>> >>>> >>>>> On Feb 6, 2015, at 9:03 AM, 'Icandoallttc' via CMLHope wrote: >>>>> >>>>> Good morning everyone >>>>> My blood results are in and my platelets came down a little--1050 >>>>> million--WBC still at 14--still fighting. >>>>> >>>>> Prayers & Blessings Jeanie 18's 🐠🐠 >>>>> >>>>>> On Feb 4, 2015, at 4:35 PM, bkbarney via CMLHope >>>>>> <[email protected]> wrote: >>>>>> >>>>>> >>>>>> Good you have a few options to work with...Hopefully this one will work >>>>>> for you in a bit of time. I am championing your warrior spirit!! >>>>>> >>>>>> Take care, >>>>>> 18's Beth >>>>>> >>>>>> -----Original Message----- >>>>>> From: 'Icandoallttc' via CMLHope <[email protected]> >>>>>> To: cmlhope <[email protected]> >>>>>> Sent: Wed, Feb 4, 2015 7:07 am >>>>>> Subject: Re: [CMLHope] Ponatinib >>>>>> >>>>>> 11 years for me--still fighting !!! 9th day on ponatinib. Sure hope it >>>>>> starts working. My onc says it's my last choice but there is one more >>>>>> tki I haven't tried--bositinib--not sure if spelling. >>>>>> Thanks for the uplift. >>>>>> >>>>>> Prayers & Blessings Jeanie 18's >>>>>> >>>>>> On Feb 4, 2015, at 12:56 AM, bkbarney via CMLHope >>>>>> <[email protected]> wrote: >>>>>> >>>>>>> Thanks Greenie. You too are my inspiration.Fifteen years!!! God bless >>>>>>> Dr. Druker! Five years for me February 12th. I was diagnosed at 48. >>>>>>> >>>>>>> Take good care and enjoy the warmth! Beth >>>>>>> >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: Myvety2k via CMLHope <[email protected]> >>>>>>> To: cmlhope <[email protected]> >>>>>>> Sent: Tue, Feb 3, 2015 8:31 pm >>>>>>> Subject: Re: [CMLHope] Ponatinib >>>>>>> >>>>>>> Beth, get out the heating pad make sure it's a big one they make >>>>>>> different sizes. I go fishing under the bridge going over to Sanibel >>>>>>> sometimes. If you do come down here we will get together that's for >>>>>>> sure. Just get better. My son Derek's wife Ruby, she has a massage >>>>>>> and yoga wellness studio 118 North Clinton St., Suite 102 in Chicago. >>>>>>> It's called Massage Evolved. website (massageevolved.com). They >>>>>>> started a little over a year ago and seem to be doing very good. He >>>>>>> called me over the weekend and told me about the snow. You miss >>>>>>> Florida and I'm sorry I don't miss North West Indiana because of that >>>>>>> weather. Summer is just to short up their, Grace and my bones can't >>>>>>> take it. Plus getting sick with a cold. But Grace want's so purchase >>>>>>> a small house or condo up their for the summer so we would miss the >>>>>>> real hot months down here. It would only be for 4 to 5 months. That >>>>>>> way we could visit with our grand kids and our kids. >>>>>>> >>>>>>> I can remember when I first found out that I had CML, it was to weeks >>>>>>> before xmas 1998. I asked the doctor at that time how much time I had >>>>>>> and she said between 1 1/2 to 2 years. She put me on hydra then she >>>>>>> sent me to Northwestern to see doctor Tallman and he put me in a study >>>>>>> with interferon which almost killed me it was that bad. They stopped >>>>>>> it after 3 months because I told him I couldn't take be that sick >>>>>>> anymore. So they stopped the study early..I wanted to die, a short time >>>>>>> he called me to put me in another study called STI571. Their was only >>>>>>> 8 of us and I was the only one from Indiana plus the oldest of the 7. >>>>>>> The study had 200 people from the US and this was the only country >>>>>>> using STI571. And here I am after 15 years still driving everyone >>>>>>> crazy. It's funny how things turn out, I call it faith. >>>>>>> >>>>>>> You just got to hang in their things will get better it won't happen >>>>>>> over night. >>>>>>> >>>>>>> greenie >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> In a message dated 2/3/2015 6:03:14 P.M. Eastern Standard Time, >>>>>>> [email protected] writes: >>>>>>> >>>>>>> Greenie, >>>>>>> >>>>>>> It's snowing again here in Chicago land..hopefully only a couple of >>>>>>> inches..to add to the 20 plus already on the ground. I have been down >>>>>>> with a bad cold this week...but I watched my neighbors son--- 23 year >>>>>>> old..trying to dig out people- including me! .snow drifts were waist >>>>>>> high! It's crazy...and now..it also got very cold...below zero wind >>>>>>> chills last night..so lots of ice...ah winter.... >>>>>>> >>>>>>> I was dreaming last night about the causeway between Fort Myers and >>>>>>> Sanibel...watching the Osprey soar, seeing dolphin in the water...the >>>>>>> pelicans sitting on wood stumps along the water...snowy egrets..and >>>>>>> then I woke up!!! Must get back there soon one day...maybe at the >>>>>>> end of this year...hope to meet you when I do. >>>>>>> >>>>>>> Will look to hear from you about your test results tomorrow. >>>>>>> >>>>>>> Take care, Beth >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: Myvety2k via CMLHope <[email protected]> >>>>>>> To: cmlhope <[email protected]> >>>>>>> Sent: Tue, Feb 3, 2015 5:57 am >>>>>>> Subject: Re: [CMLHope] Ponatinib >>>>>>> >>>>>>> Hi Beth, I received a call from my son Derek about the snow he lives in >>>>>>> North Chicago. I hope I never have to move back north, can't handle >>>>>>> the cold and snow. >>>>>>> >>>>>>> greenie >>>>>>> >>>>>>> In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time, >>>>>>> [email protected] writes: >>>>>>> Dear Skip and Jeanie, Thinking of you both as you navigate new >>>>>>> terrains. Hope the ponatinib works soon Jeanie and sorry you are >>>>>>> struggling Skip. Do let us know if you what you decide regarding >>>>>>> ponatinib. I think about it also. ... >>>>>>> >>>>>>> Greenie, hope you and your wife are feeling much better. >>>>>>> >>>>>>> Snow here in Chicago. 21 inches, drifts up to my waist when I opened my >>>>>>> front door this morning. Now work today..have a cold so it was a good >>>>>>> day to bunker down here. >>>>>>> >>>>>>> Blessings and love to all. Beth >>>>>>> >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: Myvety2k via CMLHope <[email protected]> >>>>>>> To: cmlhope <[email protected]> >>>>>>> Sent: Mon, Feb 2, 2015 3:45 pm >>>>>>> Subject: Re: [CMLHope] Ponatinib >>>>>>> >>>>>>> Jeanie, it's a good thing we don't get snow or ice here in Florida >>>>>>> because the way these people drive here the insurances companies would >>>>>>> go out of business in one day. They can't drive here when the roads >>>>>>> are dry. >>>>>>> >>>>>>> greenie >>>>>>> >>>>>>> In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time, >>>>>>> [email protected] writes: >>>>>>> Thanks Skip-I've never had blood counts that low--always battling high >>>>>>> ones. >>>>>>> Wow! That storm sounds neat! >>>>>>> We never get sleet and snow in Florida. I saw a sleet and snow storm >>>>>>> in my visit to Switzerland. My kids loved it and were playing in it. >>>>>>> I wasn't that brave--I went inside hehe. >>>>>>> I hope you get your platelets soon. >>>>>>> >>>>>>> Prayers & Blessings Jeanie 18's >>>>>>> >>>>>>> On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope" >>>>>>> <[email protected]> wrote: >>>>>>> >>>>>>>> I am so sorry you counts vary so much mine have been doing that now >>>>>>>> for a few years, Fri my HGB was 79.. my wbc was 1.5, .. plts was 17 .. >>>>>>>> neut 0.3... ANC 0.279 normally I would get somePLTS tomorrow but we >>>>>>>> have another big storm going to hit tonight and will have freezing >>>>>>>> rain in morning and all the snow will turn to ice.. so we will hold >>>>>>>> off until Wed. I am sorry for not posting much but I find using the >>>>>>>> computer very makes me very tired lately. still thinking about >>>>>>>> Ponatinib, this is my fourth year without anything except blood and >>>>>>>> platelet infusions >>>>>>>> Skip Duffie >>>>>>>> >>>>>>>> >>>>>>>> My brother lives in Naples, I live in South Fort Myers min. from the >>>>>>>> beach. The weather will be Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69 >>>>>>>> and Sat 68. Below normal should be in the low 80's BUT better then >>>>>>>> SNOW> >>>>>>>> >>>>>>>> Greenie >>>>>>>> >>>>>>>> In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard Time, >>>>>>>> [email protected] writes: >>>>>>>> Hi I am OK I had my counts done last Wednesday and my platelets were >>>>>>>> 35 and white blood cells 2.8 and neutrofils were 1.5. Hemoglobin 135. >>>>>>>> I am still off the drug and have another check this coming Wednesday. >>>>>>>> I will go back on the drug then and probably at 2 or three a week. My >>>>>>>> wife and I will be coming to Naples Florida to visit friends for a >>>>>>>> week or so. I hope it will be warm. Have your counts come down ? >>>>>>>> >>>>>>>> Sent from my iPad >>>>>>>> >>>>>>>> > On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope >>>>>>>> > <[email protected]> wrote: >>>>>>>> > >>>>>>>> > Hi John >>>>>>>> > I go to Moffitt cancer center. How are you? >>>>>>>> > >>>>>>>> > Prayers & Blessings Jeanie 18's >>>>>>>> > >>>>>>>> >> On Jan 31, 2015, at 10:47 AM, John Barrons <[email protected]> wrote: >>>>>>>> >> >>>>>>>> >> Hi Jeanie: Where are getting treated? John >>>>>>>> >> >>>>>>>> >> Sent from my iPad >>>>>>>> >> >>>>>>>> >> -- >>>>>>>> >> -- >>>>>>>> >> [CMLHope] >>>>>>>> >> A support group of http://cmlhope.com >>>>>>>> >> ------------------------------------------------- >>>>>>>> >> >>>>>>>> >> You received this message because you are subscribed to >>>>>>>> >> the Google Groups "CMLHope" group. >>>>>>>> >> To post to this group, send email to [email protected] >>>>>>>> >> To unsubscribe from this group, send email to >>>>>>>> >> [email protected] >>>>>>>> >> For more options, visit this group at >>>>>>>> >> http://groups.google.com/group/CMLHope >>>>>>>> >> --- >>>>>>>> >> You received this message because you are subscribed to the Google >>>>>>>> >> Groups "CMLHope" group. >>>>>>>> >> To unsubscribe from this group and stop receiving emails from it, >>>>>>>> >> send an email to [email protected]. >>>>>>>> >> For more options, visit https://groups.google.com/d/optout. >>>>>>>> > >>>>>>>> > -- >>>>>>>> > -- >>>>>>>> > [CMLHope] 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