Hi Jeanie: I did have rash when I was put on Allipurinol for uric acid 
reduction. I think it was over a lot of my body. I was then put on colchicine 
and have been on it quite a while. It have have no side effects from it. The 
uric acid has changed my feet as they have become a little larger and I had to 
get other shoes. I have in the past had severe pain in my toes from gout from 
time to time. I haven't had bad pain for quite a while, but I do get zingers 
from time to time. I try to watch my diet like very little red wine and red 
meat. Mostly Scotch and water. I know...... Too much info John

Sent from my iPad

> On Feb 8, 2015, at 10:21 AM, 'Icandoallttc' via CMLHope 
> <[email protected]> wrote:
> 
> I forgot to say that I have developed a rash on upper part of both legs--not 
> itching or ect--John did you have a rash?
> 
> Prayers & Blessings Jeanie 18's 🐠🐠
> 
>> On Feb 8, 2015, at 9:13 AM, Icandoallttc <[email protected]> wrote:
>> 
>> Hi Joyce 
>> So good to hear from you.  This is me 13th day on ponatinib.   I can't say 
>> I'm feeling better but am not worse.  No bad side effects as of yet.  My 
>> platelets are slow coming down.  Yes time and patience is needed now.  
>> This is the third time I have been in crisis so I'm praying this medicine 
>> will put me back into remission.   Thanks for the uplift. 
>> 
>> Prayers & Blessings Jeanie 18's 🐠🐠
>> 
>>> On Feb 7, 2015, at 7:17 PM, Joyce Mesnarich <[email protected]> wrote:
>>> 
>>> Jeanie,
>>> Glad to hear that platelets are on the way down!  Just takes a bit more 
>>> patience and prayers.  Are you feeling better?  I know you just started 
>>> ponatinib.
>>>       God bless and keep you,
>>>               Joyce in IL
>>> 
>>> 
>>> 
>>>> On Feb 6, 2015, at 9:03 AM, 'Icandoallttc' via CMLHope wrote:
>>>> 
>>>> Good morning everyone
>>>> My blood results are in and my platelets came down a little--1050 
>>>> million--WBC still at 14--still fighting. 
>>>> 
>>>> Prayers & Blessings Jeanie 18's 🐠🐠
>>>> 
>>>>> On Feb 4, 2015, at 4:35 PM, bkbarney via CMLHope 
>>>>> <[email protected]> wrote:
>>>>> 
>>>>> 
>>>>> Good you have a few options to work with...Hopefully this one will work 
>>>>> for you in a bit of time. I am championing your warrior spirit!! 
>>>>> 
>>>>> Take care, 
>>>>> 18's Beth
>>>>> 
>>>>> -----Original Message-----
>>>>> From: 'Icandoallttc' via CMLHope <[email protected]>
>>>>> To: cmlhope <[email protected]>
>>>>> Sent: Wed, Feb 4, 2015 7:07 am
>>>>> Subject: Re: [CMLHope] Ponatinib
>>>>> 
>>>>> 11 years for me--still fighting !!!  9th day on ponatinib.  Sure hope it 
>>>>> starts working. My onc says it's my last choice but there is one more tki 
>>>>> I haven't tried--bositinib--not sure if spelling.  
>>>>> Thanks for the uplift. 
>>>>> 
>>>>> Prayers & Blessings Jeanie 18's
>>>>> 
>>>>> On Feb 4, 2015, at 12:56 AM, bkbarney via CMLHope 
>>>>> <[email protected]> wrote:
>>>>> 
>>>>>> Thanks Greenie. You too  are my inspiration.Fifteen years!!! God bless 
>>>>>> Dr. Druker! Five years for me February 12th. I was diagnosed at 48. 
>>>>>> 
>>>>>> Take good care and enjoy the warmth! Beth
>>>>>> 
>>>>>> 
>>>>>> -----Original Message-----
>>>>>> From: Myvety2k via CMLHope <[email protected]>
>>>>>> To: cmlhope <[email protected]>
>>>>>> Sent: Tue, Feb 3, 2015 8:31 pm
>>>>>> Subject: Re: [CMLHope] Ponatinib
>>>>>> 
>>>>>> Beth, get out the heating pad make sure it's a big one they make 
>>>>>> different sizes. I go fishing under the bridge going over to Sanibel 
>>>>>> sometimes.  If you do come down here we will get together that's for 
>>>>>> sure.  Just get better.   My son Derek's wife Ruby, she has a massage 
>>>>>> and yoga wellness studio 118 North Clinton St., Suite 102 in Chicago.  
>>>>>> It's called Massage Evolved.  website  (massageevolved.com).  They 
>>>>>> started a little over a year ago and seem to be doing very good.  He 
>>>>>> called me over the weekend and told me about the snow.  You miss Florida 
>>>>>> and I'm sorry I don't miss North West Indiana because of that weather.  
>>>>>> Summer is just to short up their, Grace and my bones can't take it.  
>>>>>> Plus getting sick with a cold.  But Grace want's  so purchase a small 
>>>>>> house or condo up their for the summer so we would miss the real hot 
>>>>>> months down here.  It would only be for 4 to 5 months.  That way we 
>>>>>> could visit with our grand kids and our kids.
>>>>>>  
>>>>>> I can remember when I first found out that I had CML, it was to weeks 
>>>>>> before xmas 1998.  I asked the doctor at that time how much time I had 
>>>>>> and she said between 1 1/2 to 2 years.  She put me on hydra then she 
>>>>>> sent me to Northwestern to see doctor Tallman and he put me in a study 
>>>>>> with interferon which almost killed me it was that bad.  They stopped it 
>>>>>> after 3 months because I told him I couldn't take be that sick anymore. 
>>>>>> So they stopped the study early..I wanted to die, a short time he called 
>>>>>> me to put me in another study called STI571.  Their was only 8 of us and 
>>>>>> I was the only one from Indiana plus the oldest of the 7.  The study had 
>>>>>> 200 people from the US and this was the only country using STI571.  And 
>>>>>> here I am after 15 years still driving everyone crazy.  It's funny how 
>>>>>> things turn out, I call it faith.
>>>>>>  
>>>>>> You just got to hang in their things will get better it won't happen 
>>>>>> over night.
>>>>>>  
>>>>>> greenie
>>>>>>  
>>>>>>  
>>>>>>  
>>>>>>  
>>>>>>  
>>>>>> In a message dated 2/3/2015 6:03:14 P.M. Eastern Standard Time, 
>>>>>> [email protected] writes:
>>>>>> 
>>>>>> Greenie,
>>>>>> 
>>>>>> It's snowing again here in Chicago land..hopefully only a couple of 
>>>>>> inches..to add to the 20 plus already on the ground. I have been down 
>>>>>> with a bad cold this week...but I watched my neighbors son--- 23 year 
>>>>>> old..trying to dig out people- including me!   .snow drifts were waist 
>>>>>> high! It's crazy...and now..it also got very cold...below zero wind 
>>>>>> chills last night..so lots of ice...ah winter....
>>>>>> 
>>>>>> I was dreaming last night about the causeway between Fort Myers and 
>>>>>> Sanibel...watching the Osprey soar, seeing dolphin in the water...the 
>>>>>> pelicans sitting on wood stumps along the water...snowy egrets..and then 
>>>>>> I woke up!!!  Must get back there soon one day...maybe at the end of 
>>>>>> this year...hope to meet you when I do.
>>>>>> 
>>>>>> Will look to hear from you about your test results tomorrow.
>>>>>> 
>>>>>> Take care, Beth
>>>>>> 
>>>>>> -----Original Message-----
>>>>>> From: Myvety2k via CMLHope <[email protected]>
>>>>>> To: cmlhope <[email protected]>
>>>>>> Sent: Tue, Feb 3, 2015 5:57 am
>>>>>> Subject: Re: [CMLHope] Ponatinib
>>>>>> 
>>>>>> Hi Beth, I received a call from my son Derek about the snow he lives in 
>>>>>> North Chicago.  I hope I never have to move back north, can't handle the 
>>>>>> cold and snow.
>>>>>>  
>>>>>> greenie
>>>>>>  
>>>>>> In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time, 
>>>>>> [email protected]    writes:
>>>>>> Dear Skip and Jeanie, Thinking of you both as you navigate new terrains. 
>>>>>> Hope the ponatinib works soon Jeanie and sorry you are struggling Skip. 
>>>>>> Do let us know if you what you decide regarding ponatinib. I think about 
>>>>>> it also. ...
>>>>>> 
>>>>>> Greenie, hope you and your wife are feeling much better. 
>>>>>> 
>>>>>> Snow here in Chicago. 21 inches, drifts up to my waist when I opened my 
>>>>>> front door this morning. Now work today..have a cold so it was a good 
>>>>>> day to bunker down here.
>>>>>> 
>>>>>> Blessings and love to all. Beth
>>>>>> 
>>>>>> 
>>>>>> -----Original Message-----
>>>>>> From: Myvety2k via CMLHope <[email protected]>
>>>>>> To: cmlhope <[email protected]>
>>>>>> Sent: Mon, Feb 2, 2015 3:45 pm
>>>>>> Subject: Re: [CMLHope] Ponatinib
>>>>>> 
>>>>>> Jeanie, it's a good thing we don't get snow or ice here in Florida 
>>>>>> because the way these people drive here the insurances companies would 
>>>>>> go out of business in one day.  They can't drive here when the roads are 
>>>>>> dry.
>>>>>>  
>>>>>> greenie
>>>>>>  
>>>>>> In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time, 
>>>>>> [email protected] writes:
>>>>>> Thanks Skip-I've never had blood counts that low--always battling high 
>>>>>> ones. 
>>>>>>  Wow!  That storm sounds neat!
>>>>>> We never get sleet and snow in Florida.   I saw a sleet and snow storm 
>>>>>> in my visit to Switzerland.  My kids loved it and were playing in it.  I 
>>>>>> wasn't that brave--I went inside hehe. 
>>>>>> I hope you get your platelets soon. 
>>>>>> 
>>>>>> Prayers & Blessings Jeanie 18's
>>>>>> 
>>>>>> On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope" 
>>>>>> <[email protected]> wrote:
>>>>>> 
>>>>>>> I am so sorry you counts vary so much mine have been doing that now for 
>>>>>>> a few years, Fri my HGB was 79.. my wbc was 1.5, .. plts was 17 .. neut 
>>>>>>> 0.3... ANC 0.279 normally I would get somePLTS tomorrow but we have 
>>>>>>> another big storm going to hit tonight and will have freezing rain in 
>>>>>>> morning and all the snow will turn to ice.. so we will hold off until 
>>>>>>> Wed.  I am sorry for not posting much but I find using the computer 
>>>>>>> very makes me very tired lately. still thinking about Ponatinib, this 
>>>>>>> is my fourth year without anything except blood and platelet infusions
>>>>>>> Skip Duffie
>>>>>>>  
>>>>>>>    
>>>>>>> My brother lives in Naples, I live in South Fort Myers min. from the 
>>>>>>> beach.  The weather will be Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69 
>>>>>>> and Sat 68. Below normal should be in the low 80's BUT better then SNOW>
>>>>>>>  
>>>>>>> Greenie
>>>>>>>  
>>>>>>> In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard Time, 
>>>>>>> [email protected] writes:
>>>>>>> Hi I am OK I had my counts done last Wednesday and my platelets were 35 
>>>>>>> and white blood cells 2.8 and neutrofils were 1.5. Hemoglobin 135. I am 
>>>>>>> still off the drug and have another check this coming Wednesday. I will 
>>>>>>> go back on the drug then and probably at 2 or three a week. My wife and 
>>>>>>> I will be coming to Naples Florida to visit friends for a week or so. I 
>>>>>>> hope it will be warm. Have your counts come down ?
>>>>>>> 
>>>>>>> Sent from my iPad
>>>>>>> 
>>>>>>> > On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope 
>>>>>>> > <[email protected]> wrote:
>>>>>>> > 
>>>>>>> > Hi John 
>>>>>>> > I go to Moffitt cancer center.   How are you?
>>>>>>> > 
>>>>>>> > Prayers & Blessings Jeanie 18's 
>>>>>>> > 
>>>>>>> >> On Jan 31, 2015, at 10:47 AM, John Barrons <[email protected]> wrote:
>>>>>>> >> 
>>>>>>> >> Hi Jeanie: Where are getting treated? John
>>>>>>> >> 
>>>>>>> >> Sent from my iPad
>>>>>>> >> 
>>>>>>> >> -- 
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>>>>>>> >> [CMLHope]
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