Thanks for the info. While I was having my trials with Gleevec, I did use Procrit/Epogen and it did not work for me. I agree that it should be tried before doing transfusions.
18's and I am getting excited to do a "Happy Dance" when you receive that phone call. Richard H. On Saturday, February 14, 2015 at 6:38:25 AM UTC-6, wa2yyx wrote: > Hi Jeanie, > > Life is a complicated process. > > Having hemoglobin counts under 8 is a "hard rock" to chew on. I know > because my usual hemoglobin counts are usually under 10 but since my > kidneys no longer produce the hormone that goes into the bone marrow to > help produce my hemoglobin my doctors give me a shot of either Procrit or > Epogen (usually epogen because it costs less but still does the job it is > designed for) to help my hemoglobin rise. With those shots my counts get up > to eleven or so and last a couple of months. However your hemoglobin level > has to be monitored because to much epogen/procrit can cause a stroke. > > In my case it may be different because my kidneys are what is causing this > problem and as soon as I receive a kidney transplant the kidney should > hopefully take care of this problem and relieve me of any further procrit > or epogen. > > Until then I must live on a complicated sky walking wire. If I were to get > any blood transfusions then my antigens may become more then zero which > they are now in spite of having 96 blood transfusions during and right > after my bone marrow transplant which was more then 25 years ago, which is > not the best result for a kidney transplant. > > However all of my doctors are amazed as to why I am still zero antigen > level with all of my previous blood, platelet, and globulin > transfusions/infusions Sometimes things may come back to bite me in the > Azz, but hey, at least I got these 25 years so far. > > This seems to avoid any blood transfusions, but everyone is different so > why don't you ask your onc about this? (a regimen of either procrit or > epogen) > > I mean how much have I learned by going through all of this? And how much > more will I be able to learn by going through a kidney transplant? I hope a > lot more for a long time. > > 18's Jeanie and everyone else, you just keep on keeping on things will get > better. > > I love all of you! > > Marty > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
