I drove my sister to dialysis so I understand it is a small price to pay. I am the type person that has a problem staying quiet during medical procedures . When I had my first cataract removed the surgeon asked me to stop moving my eye, and I assured him that I was not and could not feel my eye move. For the second surgery he used a block of some sort and there was no problem. During my transfusions I tried to read or play games on my laptop, but I still had to move around. The only real problem I had was work. I could lay down besideit anytime of day. I do apologize for messing up your timetable.
Richard H.. On Monday, February 16, 2015 at 5:40:42 AM UTC-6, wa2yyx wrote: > Hi Richard, > > Well, your giving me more credit then I actually deserve. I lived in that > plastic bubble for seven months, and this would be my first kidney > transplant not my second. My first was the bone marrow one. All of the > blood transfusions were done for and directly after my bone marrow > transplant, and so far, more then twenty five years have passed and I > haven't had anymore. > > As far as dialysis goes, you just have to sit there to stay alive, it is a > small price to pay, don't you think? > > I don't know, maybe I follow that ever ready pink bunny around. > > 18's > > Marty > > On Mon, Feb 16, 2015 at 12:22 AM, Richard H <[email protected] > <javascript:>> wrote: > >> I agree with totally. Since I am inly taking 300mg Gleevec I am presently >> experiencing a different set of various minor side effects. Everything so >> far is minor so no problem. If I start needing help maintaining my >> Hemoglobin I would certainly want to take. I think I was taking about >> 40,000 units a week. I gave myself the shot which was a whole lot better >> than spending 6 hours every three weeks receiving 2 units. I can't wrap my >> mind around how anyone could endure a BMT with at least 3 months in a >> bubble, 96 transfusions during that period, dialysis, , a kidney >> replacement, more transfusions, more dialysis, and are preparing to do a >> second kidney transplant. You are a miracle in progress, and that is why >> you such a valued member of this group,. >> >> 18's >> >> On Richard H. >> >> Sunday, February 15, 2015 at 7:32:08 AM UTC-6, wa2yyx wrote: >> >>> Hi Richard, >>> >>> Just because it didn't work (Procrit/Epogen) for you then that doesn't >>> mean it won't work for you now. That should be discussed with your doctor. >>> There are a lot of contributing factors so you can't really be sure until >>> you have that discussion with your doctor. Possibly you weren't given the >>> proper start up dose? Who knows? >>> >>> Remember, that it may take a week or more for it to start working. If it >>> does it sure beats a transfusion. >>> >>> Yes, I am anxiously awaiting that phone call, hopefully soon. >>> >>> 18's, >>> >>> Marty >>> >>> On Sun, Feb 15, 2015 at 12:26 AM, Richard H <[email protected]> wrote: >>> >>>> Thanks for the info. While I was having my trials with Gleevec, I >>>> did use Procrit/Epogen and it did not work for me. I agree that it should >>>> be tried before doing transfusions. >>>> >>>> 18's and I am getting excited to do a "Happy Dance" when you receive >>>> that phone call. >>>> Richard H. >>>> >>>> >>>> On Saturday, February 14, 2015 at 6:38:25 AM UTC-6, wa2yyx wrote: >>>> >>>>> Hi Jeanie, >>>>> >>>>> Life is a complicated process. >>>>> >>>>> Having hemoglobin counts under 8 is a "hard rock" to chew on. I know >>>>> because my usual hemoglobin counts are usually under 10 but since my >>>>> kidneys no longer produce the hormone that goes into the bone marrow to >>>>> help produce my hemoglobin my doctors give me a shot of either Procrit or >>>>> Epogen (usually epogen because it costs less but still does the job it is >>>>> designed for) to help my hemoglobin rise. With those shots my counts get >>>>> up >>>>> to eleven or so and last a couple of months. However your hemoglobin >>>>> level >>>>> has to be monitored because to much epogen/procrit can cause a stroke. >>>>> >>>>> In my case it may be different because my kidneys are what is causing >>>>> this problem and as soon as I receive a kidney transplant the kidney >>>>> should >>>>> hopefully take care of this problem and relieve me of any further procrit >>>>> or epogen. >>>>> >>>>> Until then I must live on a complicated sky walking wire. If I were to >>>>> get any blood transfusions then my antigens may become more then zero >>>>> which >>>>> they are now in spite of having 96 blood transfusions during and right >>>>> after my bone marrow transplant which was more then 25 years ago, which >>>>> is >>>>> not the best result for a kidney transplant. >>>>> >>>>> However all of my doctors are amazed as to why I am still zero antigen >>>>> level with all of my previous blood, platelet, and globulin >>>>> transfusions/infusions Sometimes things may come back to bite me in the >>>>> Azz, but hey, at least I got these 25 years so far. >>>>> >>>>> This seems to avoid any blood transfusions, but everyone is different >>>>> so why don't you ask your onc about this? (a regimen of either procrit or >>>>> epogen) >>>>> >>>>> I mean how much have I learned by going through all of this? And how >>>>> much more will I be able to learn by going through a kidney transplant? I >>>>> hope a lot more for a long time. >>>>> >>>>> 18's Jeanie and everyone else, you just keep on keeping on things will >>>>> get better. >>>>> >>>>> I love all of you! >>>>> >>>>> Marty >>>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to CMLHope-u...@ >>>> googlegroups.com >>>> For more options, visit this group at http://groups.google.com/ >>>> group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send >>>> an email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> >>> >>> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> <javascript:> >> To unsubscribe from this group, send email to >> [email protected] <javascript:> >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected] <javascript:>. >> For more options, visit https://groups.google.com/d/optout. >> > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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