I agree with totally. Since I am inly taking 300mg Gleevec I am presently experiencing a different set of various minor side effects. Everything so far is minor so no problem. If I start needing help maintaining my Hemoglobin I would certainly want to take. I think I was taking about 40,000 units a week. I gave myself the shot which was a whole lot better than spending 6 hours every three weeks receiving 2 units. I can't wrap my mind around how anyone could endure a BMT with at least 3 months in a bubble, 96 transfusions during that period, dialysis, , a kidney replacement, more transfusions, more dialysis, and are preparing to do a second kidney transplant. You are a miracle in progress, and that is why you such a valued member of this group,.
18's On Richard H. Sunday, February 15, 2015 at 7:32:08 AM UTC-6, wa2yyx wrote: > Hi Richard, > > Just because it didn't work (Procrit/Epogen) for you then that doesn't > mean it won't work for you now. That should be discussed with your doctor. > There are a lot of contributing factors so you can't really be sure until > you have that discussion with your doctor. Possibly you weren't given the > proper start up dose? Who knows? > > Remember, that it may take a week or more for it to start working. If it > does it sure beats a transfusion. > > Yes, I am anxiously awaiting that phone call, hopefully soon. > > 18's, > > Marty > > On Sun, Feb 15, 2015 at 12:26 AM, Richard H <[email protected] > <javascript:>> wrote: > >> Thanks for the info. While I was having my trials with Gleevec, I >> did use Procrit/Epogen and it did not work for me. I agree that it should >> be tried before doing transfusions. >> >> 18's and I am getting excited to do a "Happy Dance" when you receive that >> phone call. >> Richard H. >> >> >> On Saturday, February 14, 2015 at 6:38:25 AM UTC-6, wa2yyx wrote: >> >>> Hi Jeanie, >>> >>> Life is a complicated process. >>> >>> Having hemoglobin counts under 8 is a "hard rock" to chew on. I know >>> because my usual hemoglobin counts are usually under 10 but since my >>> kidneys no longer produce the hormone that goes into the bone marrow to >>> help produce my hemoglobin my doctors give me a shot of either Procrit or >>> Epogen (usually epogen because it costs less but still does the job it is >>> designed for) to help my hemoglobin rise. With those shots my counts get up >>> to eleven or so and last a couple of months. However your hemoglobin level >>> has to be monitored because to much epogen/procrit can cause a stroke. >>> >>> In my case it may be different because my kidneys are what is causing >>> this problem and as soon as I receive a kidney transplant the kidney should >>> hopefully take care of this problem and relieve me of any further procrit >>> or epogen. >>> >>> Until then I must live on a complicated sky walking wire. If I were to >>> get any blood transfusions then my antigens may become more then zero which >>> they are now in spite of having 96 blood transfusions during and right >>> after my bone marrow transplant which was more then 25 years ago, which is >>> not the best result for a kidney transplant. >>> >>> However all of my doctors are amazed as to why I am still zero antigen >>> level with all of my previous blood, platelet, and globulin >>> transfusions/infusions Sometimes things may come back to bite me in the >>> Azz, but hey, at least I got these 25 years so far. >>> >>> This seems to avoid any blood transfusions, but everyone is different so >>> why don't you ask your onc about this? (a regimen of either procrit or >>> epogen) >>> >>> I mean how much have I learned by going through all of this? And how >>> much more will I be able to learn by going through a kidney transplant? I >>> hope a lot more for a long time. >>> >>> 18's Jeanie and everyone else, you just keep on keeping on things will >>> get better. >>> >>> I love all of you! >>> >>> Marty >>> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> <javascript:> >> To unsubscribe from this group, send email to >> [email protected] <javascript:> >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected] <javascript:>. >> For more options, visit https://groups.google.com/d/optout. >> > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
