Hi Joyce Did they take tissue during endoscopy and colonoscopy ? He could be bleeding from that. That's the problem. They just don't listen. Keep talking to them. Have you considered ponatinib? Does he have heart problems? So far so good for me. This is my 19th day on ponatinib. He could have developed a mutant for sprycel by now. That's what happened to me. Keep on fighting.
Prayers & Blessings Jeanie 18's 🐠🐠 > On Feb 14, 2015, at 1:36 AM, Joyce Mesnarich <[email protected]> wrote: > > Two years ago my husband had to have 2 pints of blood because of low > hemoglobin. He seems to be heading that way again. They have found blood in > his stool, but could not find any cause for it, following an endoscope of the > esophagus and a colonoscopy. He also takes warfarin (blood thinner) for a > heart condition (A-fib). I am thinking that may be a factor, but no one > wants to talk about that. He has been off of Sprycel for 5 months due to > pleural effusion, but his counts continue to worsen. Go figure!! > Joyce in IL > > >> On Feb 13, 2015, at 7:06 AM, 'Icandoallttc' via CMLHope wrote: >> >> My hemoglobin went to under 8 and I had to have transfusions. I think if >> the onc I had at the time would have taken me off meds my blood would have >> recovered. I was on Tasigna at the time. I take iron and also try to eat >> iron rich foods. >> >> Prayers & Blessings Jeanie 18's 🐠🐠 >> >>> On Feb 13, 2015, at 12:48 AM, Joyce Mesnarich <[email protected]> wrote: >>> >>> Jeanie, >>> You have made my day!! So glad to see your numbers. Does this lower >>> hemoglobin seem to be a fact of life for CMLers? My husband's hemoglobin >>> also is low and he is told to take iron pills (Yuck). Keep on Keepin' on. >>> Joyce in IL >>> >>>> On Feb 12, 2015, at 2:32 PM, 'Icandoallttc' via CMLHope wrote: >>>> >>>> Platelets down to under 400 and WBC were 7: that is a miracle. >>>> From over a million to almost normal. The meds kicked in. Now worried >>>> they might go to low. Hehe. Hemoglobin went down to 12.8 after holding at >>>> 13. Need to ear some iron foods. >>>> Thanks for prayers. >>>> >>>> Prayers & Blessings Jeanie 18's 🐠🐠 >>>> >>>>> On Feb 12, 2015, at 10:57 AM, Suzieq <[email protected]> wrote: >>>>> >>>>> Holly: I am so glad to meet someone who also has Dr. Cashen as their >>>>> doctor. I love Dr. Amanda Cashen and her nurse practitioner, Holly. As >>>>> far as their testing goes, I am assuming that they are going to do all >>>>> of it there from now on. I am glad that they don't have to overnight the >>>>> blood any longer, but I feel I need someone to explain their testing to >>>>> me. These numbers were so different than what I was use to seeing before >>>>> when I tested positive. Then, it was always in the thousandths from the >>>>> other place......this was 0.02%. I think that's what upset me so much, >>>>> the not understanding. And, I didn't have anyone to explain it to me. >>>>> Someone (Beth) here asked me if it was on the "International >>>>> Scale"......I don't know. I am not at home right now, (visiting my mom >>>>> in Florida), but I will check when I get home, if I can remember. >>>>> Thank you all for your kind words. I'm in a much better place mentally >>>>> & emotionally today than I was after opening those results. ***smile*** >>>>> God reminded me by bringing that old McKamey song, "The God on the >>>>> mountain, is still God in the valley" that night while I was feeling >>>>> sorry for myself and doing laundry. LOL!! >>>>> >>>>> Thank you all, >>>>> >>>>> Suzieq >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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