Hi every one, I hope this Friday finds you guys all keeping the faith and doing well.
I have been taking ponatinib now for 4 months. You are supposed to reach a good response in 6 months with a 12 month steady response. My blood is almost back to normal but I have had a lot of side effects. Rash Dry skin. Bad Rash High blood pressure Constipation Headaches There is a chance of blood clots and heart problems and more. The blood pressure meds don't work well with me and I have tried a lot. Any suggestions? Hang I'm there Marty. Maybe next year we will both feel like traveling the world. Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On Mar 10, 2015, at 6:31 AM, Myvety2k via CMLHope <[email protected]> > wrote: > > Hi Group, As of last Tuesday I have lost 5 pounds and I don't know why. > Been eating O. K. so I went to my Reg. Doctor yesterday and I'm going over to > get some blood work at 7 a.m. Comprehensive metabolic panel, cbc (no diff), > vitamin B12 level and TSH, Ultrasensitive. Also he want's me to have a > colonoscopy to screen for colon cancer Friday. I really don't need 2 > different kinds of cancer so I'm worried. Will let you all know what happens. > > greenie > > In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time, > [email protected] writes: > Richard, That is great news about the your haemoglobin. I also think it's > great that your drs are talking to one another. That is so important. > Last week, I had to get a transfusion as my counts were so low. I went to my > onc and he did the usual blood draw and my WBC was 2.4. That was enough to > send me over to the hospital for type and cross match and a transfusion. > > I too am eager to hear about Marty and pray for him everyday. > > Sherri > >> On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope >> <[email protected]> wrote: >> Richard, excellent news and I'm happy to hear that your hemoglobin has >> stabilized. Glad that your doctors are in sync, too, because that will >> certainly make your life easier. Yay! >> >> Marcie >> >> Sent from my iPhone >> >>> On Mar 10, 2015, at 12:15 AM, Richard H <[email protected]> wrote: >>> >>> I visited my VA ONC today and both ONCs are bck on the same page. The >>> better news is it appears that my hemoglobin has stabilized at 10.5. we are >>> going to move forward with the testing program until the end of May. >>> Another piece of news that makes me very happy is that both ONC's works at >>> Kansas University Cancer Center. The VA contracts it's Doctors and Fellows >>> (Doctors in training). They can access all my records at both offices with >>> the new Cerner Medical Systems that are being installed world wide. >>> >>> I am anxiously waiting for more news from Marty, and him keeping him my >>> prayers. >>> >>> Richard H. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
