Hi Sherri. Good to hear from you. I took gleevec for over 5 years and then it quit working for me. I too had every side effect you could have with. However it saved my life so I thank God I was able to get it. I then took tasigna which my body could never adjust to. Then I was on sprycel for almost 6 years and now I am back to square 1. It has been a long battle and I still fighting. I am so thankful for all my cml warriors. You have helped me in my fight daily.
Prayers & Blessings Jeanie 🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠. 18,s > On Mar 20, 2015, at 2:35 AM, sherri swanson <[email protected]> > wrote: > > Hi Jeanie, > > Glad to hear the weather is good in FL. The weather here north of Chicago > isn't that bad, but it is to cold for me. I like it nice and warm. But today > is the first day of spring and I'm excited. I take Gleevec and understand > what you mean about side effects. I've had every side effect there is to have > with Gleevec and I've been on it for 13 years and still have effects. But I'm > not complaining. > > Here's to Spring! > > L'chaim > > Sherri > >> On Thu, Mar 19, 2015 at 1:22 PM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> Hi Sherri. >> The weather is great here in fl. Spring has sprung with blossoms all over >> the yard. This is my favorite time of the year. I also roam around my yard >> every day and the fragrance of the blooms is heavenly. >> Time to order my third refill for ponatinib. I believe it's working good; >> just dealing with side effects. >> I hope every one is good. John are you still off med? >> >> Prayers & Blessings Jeanie >> <emoji_u1f420.png><emoji_u1f420.png><emoji_u1f420.png><emoji_u1f420.png><emoji_u1f420.png><emoji_u1f420.png><emoji_u1f420.png><emoji_u1f420.png><emoji_u1f420.png><emoji_u1f420.png><emoji_u1f420.png><emoji_u1f420.png>. >> 18,s >> >>> On Mar 11, 2015, at 5:27 AM, sherri swanson <[email protected]> >>> wrote: >>> >>> Hi Susan >>> You're right about it being great news that we get up every day. And now >>> that spring is in sight and the days are getting longer, that makes getting >>> up even brighter. Our snow here in northern Illinois is melting fast too. >>> It is going to be in the upper 50s most of this week also. Hey I'm with >>> your pup! I go out and roam around in the front yard, only I do it just to >>> get some fresh air LOL! >>> I hope you have a good trip when you come to Chicago in April. At least the >>> weather should be nice. Here's to hoping they don't screw it up. >>> I have insomnia so there will be no sleeping for me. But for the rest of >>> you, I hope you all had a restful night. >>> L'chaim, >>> Sherri >>> >>>> On Tue, Mar 10, 2015 at 10:54 PM, Richard H <[email protected]> wrote: >>>> I will be praying for you. >>>> >>>> Richard H. >>>> >>>> >>>>> On Tuesday, March 10, 2015 at 5:31:27 AM UTC-5, greenie wrote: >>>>> Hi Group, As of last Tuesday I have lost 5 pounds and I don't know why. >>>>> Been eating O. K. so I went to my Reg. Doctor yesterday and I'm going >>>>> over to get some blood work at 7 a.m. Comprehensive metabolic panel, cbc >>>>> (no diff), vitamin B12 level and TSH, Ultrasensitive. Also he want's me >>>>> to have a colonoscopy to screen for colon cancer Friday. I really don't >>>>> need 2 different kinds of cancer so I'm worried. Will let you all know >>>>> what happens. >>>>> >>>>> greenie >>>>> >>>>> In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time, >>>>> [email protected] writes: >>>>> Richard, That is great news about the your haemoglobin. I also think >>>>> it's great that your drs are talking to one another. That is so >>>>> important. >>>>> Last week, I had to get a transfusion as my counts were so low. I went to >>>>> my onc and he did the usual blood draw and my WBC was 2.4. That was >>>>> enough to send me over to the hospital for type and cross match and a >>>>> transfusion. >>>>> >>>>> I too am eager to hear about Marty and pray for him everyday. >>>>> >>>>> Sherri >>>>> >>>>>> On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope >>>>>> <[email protected]> wrote: >>>>>> Richard, excellent news and I'm happy to hear that your hemoglobin has >>>>>> stabilized. Glad that your doctors are in sync, too, because that will >>>>>> certainly make your life easier. Yay! >>>>>> >>>>>> Marcie >>>>>> >>>>>> Sent from my iPhone >>>>>> >>>>>>> On Mar 10, 2015, at 12:15 AM, Richard H <[email protected]> wrote: >>>>>>> >>>>>>> I visited my VA ONC today and both ONCs are bck on the same page. The >>>>>>> better news is it appears that my hemoglobin has stabilized at 10.5. we >>>>>>> are going to move forward with the testing program until the end of >>>>>>> May. Another piece of news that makes me very happy is that both ONC's >>>>>>> works at Kansas University Cancer Center. The VA contracts it's Doctors >>>>>>> and Fellows (Doctors in training). They can access all my records at >>>>>>> both offices with the new Cerner Medical Systems that are being >>>>>>> installed world wide. >>>>>>> >>>>>>> I am anxiously waiting for more news from Marty, and him keeping him my >>>>>>> prayers. >>>>>>> >>>>>>> Richard H. >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to [email protected] >>>>>>> To unsubscribe from this group, send email to >>>>>>> [email protected] >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email to [email protected]. 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it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google 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