I also have problems with platelets and WBC. They go way too high. Only on Tasigna did they drop too Lowe. Go figure. We are all unique in how we respond to the tkis. Moffitt tomorrow. I am hoping for good results. 5 months on ponatinib.
Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan <[email protected]> wrote: > > I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. > Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg > per day and now taking 50mg per day. One moth of Sprycel medication and two > months rest for platelet recovery. This is how current medication is going > on. I take papaya leaf tea everyday to improve platelets. > >> On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <[email protected]> wrote: >> Does anyone have problems maintaining their platelet level? >> Mine fall down to almost ZERO, which is a dangerous place to be. I am >> covered with big purple bruises and petechiae and look like I have been in a >> bar fight. Even a light scratch on my skin brings the blood to the surface. >> It is called Thrombocytopenia. My red cells also plummet and I had 6 blood >> transfusions last week. >> My confidence waivers a little as it seems they don't really know what to do >> about me. I have lots of complications. More specialists on the horizon, but >> every step forward is followed by 3 steps back. I am on massive prednisone >> for the moment. >> Can anyone share info on this? >> Angie in Canada.... >> Gleevec pioneer since 2001 >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
