Hi Skip, With all that you have been through and still going through you are the longest surviving CML patient that I know of. 37 years and counting, but who is counting, you just keep on going on.
This is for you to continue on 18's dear Skip. Marty On Sun, Jun 14, 2015 at 9:05 AM, 'Skip Duffie' via CMLHope < cmlhope@googlegroups.com> wrote: > > I have had very low platelets and ANC and RBC and plus some others plus > high Ferritin counts over 7000 most weeks I have critical platelets and > white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 > log reduction. I fell fine been doing this for 37 years I tell you this as > I want all to know Low counts should looked but not to spoil your day > Zevie was astounded when I send him on of my blood reports with 1.0 white > 88 RBC 0zero platelets ANC of 0.20 > hooe this helps > Skip Dx 1977 > > Sent from Yahoo Mail on Android > <https://overview.mail.yahoo.com/mobile/?.src=Android> > ------------------------------ > *From*:"'Icandoallttc' via CMLHope" <cmlhope@googlegroups.com> > *Date*:Tue, May 19, 2015 at 9:01 AM > *Subject*:Re: [CMLHope] Platelets > > I also have problems with platelets and WBC. They go way too high. Only > on Tasigna did they drop too Lowe. Go figure. We are all unique in how we > respond to the tkis. > Moffitt tomorrow. I am hoping for good results. > 5 months on ponatinib. > > Prayers & Blessings Jeanie [image: 🐟][image: 🐟]18,s > Dx 1/2004 > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > > On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan <graga...@gmail.com> wrote: > > I have problems with platelet count. Diagnosed in 2012 Started with > Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started > with 140mg per day and now taking 50mg per day. One moth of Sprycel > medication and two months rest for platelet recovery. This is how current > medication is going on. I take papaya leaf tea everyday to improve > platelets. > > On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <esd...@rogers.com> wrote: > >> Does anyone have problems maintaining their platelet level? >> Mine fall down to almost ZERO, which is a dangerous place to be. I am >> covered with big purple bruises and petechiae and look like I have been in >> a bar fight. Even a light scratch on my skin brings the blood to the >> surface. It is called Thrombocytopenia. My red cells also plummet and I had >> 6 blood transfusions last week. >> My confidence waivers a little as it seems they don't really know what to >> do about me. I have lots of complications. More specialists on the horizon, >> but every step forward is followed by 3 steps back. I am on massive >> prednisone for the moment. >> Can anyone share info on this? >> Angie in Canada.... >> Gleevec pioneer since 2001 >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
