John how do you feel when you are off the meds? Can you tell the difference?? Thanks.
Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jun 27, 2015, at 6:49 PM, John Barrons <[email protected]> wrote: > > Hi Jeanie and everyone. I have been on ponatinib for almost three years. I am > only on one pill, 15mg, for two weeks. Prior to last Wednesday, I was off the > pill for three weeks. I have noticed my spleen has increased in size and is a > little sore. As you all know it is on the left side, so in certain positions > it is a little uncomfortable. It will decrease when my platelet number > decreases. > John B > > > Sent from my iPad > >> On Jun 27, 2015, at 5:16 PM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> >> Happy Saturday to all. Going into my 7th month on ponatinib. I'm doing >> well and hanging in their with my faith and pills. I think John and I are >> the only ones on ponatinib. Is that right? >> >> I still have my side pain and will have another ct scan in Sept. >> >> Keep praying for those miracles group. >> >> Prayers & Blessings Jeanie 🐟🐟18,s >> Dx 1/2004 >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
