Hi Just to clarify, I am on one only for the two week period. I don't feel any different when I am off the pill nor when I am on the pill except for the changes in hemoglobin. John
Sent from my iPad > On Jun 28, 2015, at 1:40 PM, 'Icandoallttc' via CMLHope > <[email protected]> wrote: > > John how do you feel when you are off the meds? Can you tell the > difference?? Thanks. > > Prayers & Blessings Jeanie 🐟🐟18,s > Dx 1/2004 > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > >> On Jun 27, 2015, at 6:49 PM, John Barrons <[email protected]> wrote: >> >> Hi Jeanie and everyone. I have been on ponatinib for almost three years. I >> am only on one pill, 15mg, for two weeks. Prior to last Wednesday, I was off >> the pill for three weeks. I have noticed my spleen has increased in size and >> is a little sore. As you all know it is on the left side, so in certain >> positions it is a little uncomfortable. It will decrease when my platelet >> number decreases. >> John B >> >> >> Sent from my iPad >> >>> On Jun 27, 2015, at 5:16 PM, 'Icandoallttc' via CMLHope >>> <[email protected]> wrote: >>> >>> Happy Saturday to all. Going into my 7th month on ponatinib. I'm doing >>> well and hanging in their with my faith and pills. I think John and I are >>> the only ones on ponatinib. Is that right? >>> >>> I still have my side pain and will have another ct scan in Sept. >>> >>> Keep praying for those miracles group. >>> >>> Prayers & Blessings Jeanie 🐟🐟18,s >>> Dx 1/2004 >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> Dr Balducci Moffitt Cancer Center >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
