Thanks John The one pill is just keeping my blood in the normal range. It's funny how we are all different.
Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jun 28, 2015, at 8:02 PM, John Barrons <[email protected]> wrote: > > Hi Just to clarify, I am on one only for the two week period. I don't feel > any different when I am off the pill nor when I am on the pill except for the > changes in hemoglobin. John > > Sent from my iPad > >> On Jun 28, 2015, at 1:40 PM, 'Icandoallttc' via CMLHope >> <[email protected]> wrote: >> >> John how do you feel when you are off the meds? Can you tell the >> difference?? Thanks. >> >> Prayers & Blessings Jeanie 🐟🐟18,s >> Dx 1/2004 >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >>> On Jun 27, 2015, at 6:49 PM, John Barrons <[email protected]> wrote: >>> >>> Hi Jeanie and everyone. I have been on ponatinib for almost three years. I >>> am only on one pill, 15mg, for two weeks. Prior to last Wednesday, I was >>> off the pill for three weeks. I have noticed my spleen has increased in >>> size and is a little sore. As you all know it is on the left side, so in >>> certain positions it is a little uncomfortable. It will decrease when my >>> platelet number decreases. >>> John B >>> >>> >>> Sent from my iPad >>> >>>> On Jun 27, 2015, at 5:16 PM, 'Icandoallttc' via CMLHope >>>> <[email protected]> wrote: >>>> >>>> Happy Saturday to all. Going into my 7th month on ponatinib. I'm doing >>>> well and hanging in their with my faith and pills. I think John and I are >>>> the only ones on ponatinib. Is that right? >>>> >>>> I still have my side pain and will have another ct scan in Sept. >>>> >>>> Keep praying for those miracles group. >>>> >>>> Prayers & Blessings Jeanie 🐟🐟18,s >>>> Dx 1/2004 >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib January 2015 >>>> Dr Balducci Moffitt Cancer Center >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.

