Jeanie,
I know you have been dealing with that pain for a long time. Medicine has come
so far and yet the Good Lord holds some secrets from us. I hope in Sept they
will get a clue as to the pain's cause.
Joyce in IL
On Jul 24, 2015, at 11:20 AM, 'Icandoallttc' via CMLHope wrote:
> Just wanted to say that I take OTC pain killers and have tried prescription
> ones. I have a right side pain that won't go away and they can't find out
> what it is. Nothing seems to help the pain.
> They are doing a ct scan in Sept to see if they can find it but they have
> already done that with no luck. Blessings
>
> My Motto: Faith and Pills
> Jeanie 🐟🐟18,s
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jul 24, 2015, at 12:14 PM, "'Icandoallttc' via CMLHope"
> <[email protected]> wrote:
>
>> Hi Joyce.
>> It looks like your liver counts are 1-10% common to increase on that drug.
>> Read the information that comes with the meds. Read the whole document
>> through.
>> They will stabilize as well as other side effects.
>> It seems I will go from one side effect to another as time passes.
>> Fight on. Good luck.
>>
>> My Motto: Faith and Pills
>> Jeanie 🐟🐟18,s
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>>
>> On Jul 23, 2015, at 11:43 PM, Joyce Mesnarich <[email protected]> wrote:
>>
>>> Jeanie,
>>> Thanks for your interest and suggestion. We have gone over all his other
>>> meds with doctors and nothing should affect the liver. He doesn't take any
>>> OVC pain meds, or any pain meds. And he does not drink alcohol. The
>>> primary doctor says that the drug information for bosulif says it can cause
>>> liver problems, but Dr Talpaz is less certain of that and he is the
>>> specialist. He says he is watching it closely and I guess we will just
>>> trust him. Wayne is getting blood tests every other week locally and they
>>> are sent to Dr Talpaz. The liver enzyme levels seem to have stabilized,
>>> although they are elevated. As you say, faith and pills. One of Wayne's
>>> mottos is "Better living through chemistry". LOL I think that used to be
>>> part of a TV ad for a large chemical company, maybe Du Pont or Monsanto.
>>>
>>> Joyce in IL
>>>
>>>
>>> On Jul 23, 2015, at 11:32 AM, 'Icandoallttc' via CMLHope wrote:
>>>
>>>> Be careful with his diet. Ovc pain pills hurt the liver as well as other
>>>> drugs we take. Ask your pharmacy if any other drugs he take are hurting
>>>> his liver. It's hard but maybe they can figure out something.
>>>> Good luck.
>>>>
>>>> My Motto: Faith and Pills
>>>> Jeanie 🐟🐟18,s
>>>> Dx 1/2004. CML Leukemia
>>>> Started Gleevec 2/2004
>>>> Started Tasigna 9/2009
>>>> Started Sprycel 11/2009
>>>> Started Ponatinib January 2015
>>>> Dr Balducci Moffitt Cancer Center
>>>>
>>>> On Jul 22, 2015, at 2:01 PM, lrc lrc <[email protected]> wrote:
>>>>
>>>>> Joyce does he drink alcohol?
>>>>>
>>>>> On Jul 22, 2015 1:43 PM, "margood18 via CMLHope"
>>>>> <[email protected]> wrote:
>>>>> Joyce, so glad to hear that your husband's PCR is lower and I hope that
>>>>> his liver function will steady. Best wishes to both of you.
>>>>>
>>>>> Marcie
>>>>>
>>>>>
>>>>> -----Original Message-----
>>>>> From: Joyce Mesnarich <[email protected]>
>>>>> To: cmlhope <[email protected]>
>>>>> Sent: Wed, Jul 22, 2015 12:16 pm
>>>>> Subject: [CMLHope] New results
>>>>>
>>>>> Hello everyone. I have not had time to contribute for awhile. But I
>>>>> must let
>>>>> you all know the results of my husband's PCR at his last visit to Dr
>>>>> Talpaz. He
>>>>> was taken off Sprycel due to pleural effusion and we were hoping his
>>>>> undetectable would hold....but it did not. He was subsequently put on
>>>>> bosulif
>>>>> and not showing much improvement after 3 months. So his dosage was
>>>>> changed from
>>>>> 100 mg to 200 mg. And now, after 3 more months, his PCR went from 8.7 to
>>>>> 0.127!! Hopefully in another 3 months he will once again reach
>>>>> undetectable.
>>>>>
>>>>> The downside of his test results is that the liver function
>>>>> tests have increased a lot. The doctor will not really say that bosulif
>>>>> is to
>>>>> blame, but nothing else has changed. Has anyone of you CML warriors had
>>>>> any
>>>>> problems with the liver while on TKI's? Was there any treatment to help
>>>>> the
>>>>> liver?
>>>>>
>>>>> God bless you all.
>>>>>
>>>>> Joyce in IL
>>>>>
>>>>>
>>>>> --
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>>>>
>>>>
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>>>
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