Diagnosed 1999Gleevec 200015 years still no phillies found Date: Fri, 15 Jan 2016 10:18:43 -0500 Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on... From: [email protected] To: [email protected]
Well now I got a much refreshing title. Being that everyone is a leader of this group so does it go to help all of us together. You know that it's been so long that I forgot about Rob. I do hope to hear from him. I also had no idea about his mother having leukemia and I hope that she is doing well. So many new things have happened since we were members and as I remember this group was in fact a yahoo group but I just can't put my finger if it was for sure. Some time has passed and my memory has not been my greatest asset so I would really like to hear from Rob. Just think look at some of the people that were still around then (like yourself) that are still around now. Hey what ever happened to CML will be only be around for 5 years until the "Lukie Dragon" will come and get you. Do you remember that saying a very long time ago? Well that for sure has has changed with all of these advancements using these TKI's and what is coming down the pipe next. I'm telling you it will be that, no matter what you are and what you believe in there will come a time near to now that this "Dragon" will meet it's demise. You mark my words. 18's, Marty On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope <[email protected]> wrote: Hi Marty and good to hear from you. We were wondering what happened. I believe the founder and narrator of this group is Rob. His mother had leukemia. Are you there Rob??? Most of us have been here a long time. I believe the group was once a yahoo group. We are all warriors and help each other when we can. This makes my 12 th year and I joined the group early on. And yes we are all leaders in our own way and pioneers with the tkis so that've can give our knowledge to the new warriors. I fight with faith and pills and I am a Christian. Much love. 💋😇❤️💝💗 My Motto: Faith and PillsJeanie 🐟🐟18,s Dx 1/2004. CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib January 2015Dr Balducci Moffitt Cancer Center On Jan 13, 2016, at 12:38 AM, Marty Gartenberg <[email protected]> wrote: For some reason my message did not come out so I am trying it once more, I do hope it does come through This is directed to Sandi and everyone else. Dearest Sandi, and I really mean that, but for a very special reason. It is not the words that I wright but it is my meaning. You and everyone else here are only here because all of us are meant to be here. Am I strong well maybe I am or I probably wouldn't be here right now. My question to you and everyone else that may be reading this are you also strong. You know what? You have to be because you are battling an awful disease, but my friends just like me am I still here, and are you. You bet we are. So no matter how strong I may be and no matter how strong any of you may be, guess what? We are still here together and until "uncle GOD" determinants otherwise this is where we stay. How many times have I been at deaths door? Now look at what you have. You have life, just as I do and do you know why it's really very simple because about a bit more then a decade ago some mortal man discovered a pill that changed the course of your lives. You, all of you are living proof. So I am not what anyone thinks about me because your living proof just as I am we are all strong in spite of what you think. Am I a leader of this group perhaps I am, however what about each and everyone else. Please try to understand people that are in a group are the power of that group. OK so lately I have a little more activity in my life health wise then normal (whatever that may be) So please lets everyone stop calling me the leader of this group because we all are some a little more some a little bit less but when we all come together we are a force to recon with. Remember 18's Have you ever noticed that I have never left it out before? Who knows maybe there is a reason. 18's is life, at least in my book. Marty -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
