Yes I had the rash and boils and ect. Then I was put in Tasigna. It was awful for me. Sprycel was the best as far as side effects. I just saw a show that your appendix was your immune systems fighter and if you didn't have one you could get leukemia and ect. My appendix was taken out when I had my gall bladder removed. Anyone else heard this!!?
My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jan 20, 2016, at 1:18 PM, perk <[email protected]> wrote: > > When I was first diagnosed, I was put on Gleevec and I broke out in a severe > rash, as well as many other uncomfortable side effects. I was then put on > Sprycel and while it has some of the same side effects, it is manageable and > tolerable. I have lived with it for 7 years. Now there are other options. > Find one that works for you and have a good life! > > JD in TX > >> On Saturday, January 16, 2016 at 12:27:27 PM UTC-6, candles wrote: >> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not >> happily. So many side effects. Makes you wonder if it's worth it >> >> Sent from my iPhone >> >>> On Jan 16, 2016, at 12:23 AM, Pete Pabon <[email protected]> wrote: >>> >>> Diagnosed 1999 >>> Gleevec 2000 >>> 15 years still no phillies found >>> >>> >>> Date: Fri, 15 Jan 2016 10:18:43 -0500 >>> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on... >>> From: [email protected] >>> To: [email protected] >>> >>> Well now I got a much refreshing title. Being that everyone is a leader of >>> this group so does it go to help all of us together. >>> >>> You know that it's been so long that I forgot about Rob. I do hope to hear >>> from him. I also had no idea about his mother having leukemia and I hope >>> that she is doing well. >>> >>> So many new things have happened since we were members and as I remember >>> this group was in fact a yahoo group but I just can't put my finger if it >>> was for sure. Some time has passed and my memory has not been my greatest >>> asset so I would really like to hear from Rob. >>> >>> Just think look at some of the people that were still around then (like >>> yourself) that are still around now. Hey what ever happened to CML will be >>> only be around for 5 years until the "Lukie Dragon" will come and get you. >>> >>> >>> Do you remember that saying a very long time ago? Well that for sure has >>> has changed with all of these advancements using these TKI's and what is >>> coming down the pipe next. >>> >>> I'm telling you it will be that, no matter what you are and what you >>> believe in there will come a time near to now that this "Dragon" will meet >>> it's demise. >>> >>> You mark my words. >>> >>> 18's, >>> >>> Marty >>> >>> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope >>> <[email protected]> wrote: >>> Hi Marty and good to hear from you. We were wondering what happened. >>> I believe the founder and narrator of this group is Rob. His mother had >>> leukemia. Are you there Rob??? >>> Most of us have been here a long time. I believe the group was once a >>> yahoo group. >>> We are all warriors and help each other when we can. >>> This makes my 12 th year and I joined the group early on. >>> And yes we are all leaders in our own way and pioneers with the tkis so >>> that've can give our knowledge to the new warriors. >>> I fight with faith and pills and I am a Christian. >>> Much love. >>> ️ >>> >>> My Motto: Faith and Pills >>> Jeanie 18,s >>> Dx 1/2004. CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> Dr Balducci Moffitt Cancer Center >>> >>> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg <[email protected]> wrote: >>> >>> For some reason my message did not come out so I am trying it once more, I >>> do hope it does come through >>> >>> This is directed to Sandi and everyone else. >>> >>> Dearest Sandi, and I really mean that, but for a very special reason. It is >>> not the words that I wright but it is my meaning. You and everyone else >>> here are only here because all of us are meant to be here. Am I strong well >>> maybe I am or I probably wouldn't be here right now. >>> >>> >>> My question to you and everyone else that may be reading this are you also >>> strong. You know what? You have to be because you are battling an awful >>> disease, but my friends just like me am I still here, and are you. You bet >>> we are. >>> >>> >>> >>> So no matter how strong I may be and no matter how strong any of you may >>> be, guess what? We are still here together and until "uncle GOD" >>> determinants otherwise this is where we stay. >>> >>> >>> How many times have I been at deaths door? Now look at what you have. You >>> have life, just as I do and do you know why it's really very simple because >>> about a bit more then a decade ago some mortal man discovered a pill that >>> changed the course of your lives. You, all of you are living proof. >>> >>> >>> >>> So I am not what anyone thinks about me because your living proof just as I >>> am we are all strong in spite of what you think. >>> >>> >>> Am I a leader of this group perhaps I am, however what about each and >>> everyone else. Please try to understand people that are in a group are the >>> power of that group. >>> >>> >>> OK so lately I have a little more activity in my life health wise then >>> normal (whatever that may be) >>> >>> >>> >>> So please lets everyone stop calling me the leader of this group because we >>> all are some a little more some a little bit less but when we all come >>> together we are a force to recon with. >>> >>> >>> Remember 18's Have you ever noticed that I have never left it out before? >>> Who knows maybe there is a reason. 18's is life, at least in my book. >>> >>> >>> Marty >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
