No I have not heard of this. If this is true then I just collected another odd duck in my collection. I still have my appendix.
On Wednesday, January 20, 2016 at 12:46:52 PM UTC-6, Icandoallttc wrote: > > Yes I had the rash and boils and ect. Then I was put in Tasigna. It was > awful for me. Sprycel was the best as far as side effects. > I just saw a show that your appendix was your immune systems fighter and > if you didn't have one you could get leukemia and ect. My appendix was > taken out when I had my gall bladder removed. Anyone else heard this!!? > > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Jan 20, 2016, at 1:18 PM, perk <[email protected] <javascript:>> wrote: > > When I was first diagnosed, I was put on Gleevec and I broke out in a > severe rash, as well as many other uncomfortable side effects. I was then > put on Sprycel and while it has some of the same side effects, it is > manageable and tolerable. I have lived with it for 7 years. Now there are > other options. Find one that works for you and have a good life! > > JD in TX > > On Saturday, January 16, 2016 at 12:27:27 PM UTC-6, candles wrote: >> >> Today is my 1 yr anniversary of being diagnosed with CML, I'm here but >> not happily. So many side effects. Makes you wonder if it's worth it >> >> Sent from my iPhone >> >> On Jan 16, 2016, at 12:23 AM, Pete Pabon <[email protected]> wrote: >> >> *Diagnosed 1999* >> *Gleevec 2000* >> >> *15 years still no phillies found* >> >> ------------------------------ >> Date: Fri, 15 Jan 2016 10:18:43 -0500 >> Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on... >> From: [email protected] >> To: [email protected] >> >> Well now I got a much refreshing title. Being that everyone is a leader >> of this group so does it go to help all of us together. >> >> You know that it's been so long that I forgot about Rob. I do hope to >> hear from him. I also had no idea about his mother having leukemia and I >> hope that she is doing well. >> >> So many new things have happened since we were members and as I remember >> this group was in fact a yahoo group but I just can't put my finger if it >> was for sure. Some time has passed and my memory has not been my greatest >> asset so I would really like to hear from Rob. >> >> Just think look at some of the people that were still around then (like >> yourself) that are still around now. Hey what ever happened to CML will be >> only be around for 5 years until the "Lukie Dragon" will come and get you. >> >> >> Do you remember that saying a very long time ago? Well that for sure has >> has changed with all of these advancements using these TKI's and what is >> coming down the pipe next. >> >> I'm telling you it will be that, no matter what you are and what you >> believe in there will come a time near to now that this "Dragon" will meet >> it's demise. >> >> You mark my words. >> >> 18's, >> >> Marty >> >> On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope < >> [email protected]> wrote: >> >> Hi Marty and good to hear from you. We were wondering what happened. >> I believe the founder and narrator of this group is Rob. His mother had >> leukemia. Are you there Rob??? >> Most of us have been here a long time. I believe the group was once a >> yahoo group. >> We are all warriors and help each other when we can. >> This makes my 12 th year and I joined the group early on. >> And yes we are all leaders in our own way and pioneers with the tkis so >> that've can give our knowledge to the new warriors. >> I fight with faith and pills and I am a Christian. >> Much love. >> [image: Kiss mark][image: Smiling Face with Halo][image: Heavy black >> heart]️[image: Heart with ribbon][image: Growing heart] >> >> My Motto: Faith and Pills >> Jeanie [image: Fish][image: Fish]18,s >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >> On Jan 13, 2016, at 12:38 AM, Marty Gartenberg <[email protected]> wrote: >> >> For some reason my message did not come out so I am trying it once more, >> I do hope it does come through >> >> This is directed to Sandi and everyone else. >> >> Dearest Sandi, and I really mean that, but for a very special reason. It >> is not the words that I wright but it is my meaning. You and everyone else >> here are only here because all of us are meant to be here. Am I strong well >> maybe I am or I probably wouldn't be here right now. >> >> >> My question to you and everyone else that may be reading this are you >> also strong. You know what? You have to be because you are battling an >> awful disease, but my friends just like me am I still here, and are you. >> You bet we are. >> >> >> >> So no matter how strong I may be and no matter how strong any of you may >> be, guess what? We are still here together and until "uncle GOD" >> determinants otherwise this is where we stay. >> >> >> How many times have I been at deaths door? Now look at what you have. You >> have life, just as I do and do you know why it's really very simple because >> about a bit more then a decade ago some mortal man discovered a pill that >> changed the course of your lives. You, all of you are living proof. >> >> >> >> So I am not what anyone thinks about me because your living proof just as >> I am we are all strong in spite of what you think. >> >> >> Am I a leader of this group perhaps I am, however what about each and >> everyone else. Please try to understand people that are in a group are the >> power of that group. >> >> >> OK so lately I have a little more activity in my life health wise then >> normal (whatever that may be) >> >> >> >> So please lets everyone stop calling me the leader of this group because >> we all are some a little more some a little bit less but when we all come >> together we are a force to recon with. >> >> >> Remember 18's Have you ever noticed that I have never left it out before? >> Who knows maybe there is a reason. 18's is life, at least in my book. >> >> >> Marty >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
