Hi John and of course each and every one of you. John, I went to the hospital yesterday morning for my usual blood work and also saw my infectious disease doctor.
Since my CMV virus has been dropping off he decided to drop my anti virus medicine to half the amount and then hopefully these terrible mouth sores will become better. Other then that my Creatnine level is doing very well, in fact it is better On Sat, Feb 13, 2016 at 7:12 AM, John Barrons <[email protected]> wrote: > Hi Jeanie: my ponatinib was increased in the hospital to get the wbc count > down. My oncologist did not think I had gone into Blast phase and he was > right. He did not do a pcr test, but the counts came back down to my normal > fairly quickly. Thanks for asking. JohN B > > Sent from my iPad > > On Feb 12, 2016, at 5:24 PM, 'Icandoallttc' via CMLHope < > [email protected]> wrote: > > I hope every thing will be good John. Did they treat your CML while you > were in the hospital? Did they increase your ponatinib to get the counts > down? > Do they do PCR test on your blood? > I got a bill from Moffitt and it was over $2000. I found out it is the PCR > test that's so expensive. They never gave me the results from it. > My insurance paid most of the bill. > Blessings. > > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Feb 12, 2016, at 4:04 PM, Marty Gartenberg <[email protected]> wrote: > > Ok, let's see what happens at your next blood test. > I just had one this morning and sorry to say my WBC was only 1.87 so that > puts me having a problem with immunity but I know that it is coming from > the CMV virus that I am having so I have to be very careful until the > reduced medication starts to work again. In the mean time I have gotten > some terrible mouth sores just like I got when I had the bone marrow > transplant caused by all of the Chemo and radiation. Something that I will > never forget. Believe it or not that was by far the worst part of it. > However I just try not to complain about it. And do you know why? I'm still > alive today. > > And now you know what 18's stands for... Life! > > So I bid you many more 18's. > > Marty > > On Fri, Feb 12, 2016 at 5:49 AM, John Barrons <[email protected]> wrote: > >> Hi My wbc last Tuesday were 4.2, platelets 43 and hemo 103. I will next >> have a cbc a week this Tuesday. John >> >> Sent from my iPad >> >> On Feb 12, 2016, at 6:59 AM, Marty Gartenberg <[email protected]> wrote: >> >> Hi John, >> >> What are your WBC now? I know a man who lives in Canada a very long time >> ago actually more then 35 years ago and he never took any TKI's but he did >> take something and it did "burn out his Leukemia" but unfortunately he has >> to have blood transfusions I think every two weeks. He is the longest >> surviving person in this world. >> >> I probably am in there as well logging in going on 27 years after having >> a bone marrow transplant. >> >> Different people react to different things and sometimes some of them >> defies the logic of these things that are just meant to be. Hey you seem to >> be one of them👍 >> Good luck to you! >> >> Remember what 18's stands for. >> >> Marty >> >> On Thu, Feb 11, 2016 at 8:01 AM, <[email protected]> wrote: >> >>> I am taking ponatinib like Jeanie in Tampa. I need to take only one pill >>> a week to keep the counts low. the counts do fluctuate from time to time. >>> There does not seem to an answer for the white blood cells to have >>> increased so suddenly. My oncologist did not think it was a change to blast >>> phase. So I go once a week or once every two weeks to check them. John B. >>> >>> >>> On Wednesday, February 10, 2016 11:06 PM, Marty Gartenberg < >>> [email protected]> wrote: >>> >>> >>> Hi John, >>> >>> First let me say hello to your wife, and believe me I personally know >>> what she has been going through. >>> >>> Now what I can't understand why your white blood count went over >>> 100,000. And what pill have you been taking? Usually you need to be taking >>> more then 1 pill and that should be every day. So John I am really puzzled. >>> >>> I wish you as well as your wife the very best, because of mainly what >>> you wrote. Yes, life is good. >>> >>> If you have been reading any of my posts I always end them with 18's >>> which is a symbol for life. >>> >>> 18's, >>> >>> Marty >>> >>> On Wed, Feb 10, 2016 at 4:45 PM, John Barrons <[email protected]> wrote: >>> >>> Hi Jeanie and to all: Well, where do I start. Before last Christmas, I >>> was not feeling very well. My oncologist said if I felt worse go to >>> emergency, which I did on Dec 26. I had pneumonia and as I result my heart >>> was having trouble. In addition, my white blood count went over 100,000. I >>> was in hospital until Jan 16 when I was transferred to a rehab centre to >>> gain back some strength. I arrived back at home last Saturday, so glad to >>> be home I can't begin to say. All is well as far as the things that were >>> wrong. Mind you I have to gain a lot of weight back. The leukemia is back >>> to normal and I am on 1 pill per week. That was along time to be away and I >>> was difficult for my wife also. Life is good John B >>> >>> Sent from my iPad >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com/ >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to mailto:cmlhope%[email protected] >>> <cmlhope%[email protected]>. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com/ >>> ------------------------------------------------- >>> >>> You received this message because you 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