So glad to hear the good news! That hour must have been a long one after 
discharge. You'll be playing tennis in no time!!

Love, hugs and 18's



Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Tuesday, March 22, 2016 Myvety2k via CMLHope <[email protected]> 
wrote:

Thanks for the good news Marty.

 

greenie

 

In a message dated 3/22/2016 12:47:59 A.M. Eastern Daylight Time, 
[email protected] writes:

Hi Susan, 


Yes I am finally home. Left the hospital at 3:00 PM and it took my wife about 
one hour to drive back home. The pacemaker is in and adjusted and fine tuned. 
Amazing how these work. No more fainting spells which only would last for only 
2 seconds so I haven't actually fainted. I was always been able to keep my eyes 
open and hear as well as even hearing and talking   Have some pain where they 
made the incision but some Tylenol PM should help me sleep, nothing I can't 
handle.


Thank you for asking about me.   


18's,


Marty


On Mon, Mar 21, 2016 at 7:25 PM, 'Susan Zimmerman' via CMLHope 
<[email protected]> wrote:

Love you to pieces, Marty! Hope you comfortably home by now. An update for me, 
please!

18's,

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Monday, March 21, 2016 Myvety2k via CMLHope <[email protected]> wrote:

Marty, got my fingers crossed.

 

greenie

 

In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time, 
[email protected] writes:

Hi Beth, 

I am actually still in the hospital but maybe today I will be getting out just 
have to wait for the doctors when they make their rounds. I will keep everyone 
updated.

18's,

Marty

bkbarney via CMLHope <[email protected]> wrote:
Dear Marty, 

So glad you are out of the hospital! And Peg, you are so right about what you 
said to Jeanie...Hope everyone is doing as well as possible. Thinking of all of 
you...love, and 18's Beth

-----Original Message-----

From: 'Icandoallttc' via CMLHope <[email protected]>
To: peg <[email protected]>
Cc: CMLHope <[email protected]>
Sent: Fri, Mar 18, 2016 11:19 am
Subject: [CMLHope] Re: Dizzy all day

Thanks Peg,

You are so right.  I was reading the side effects of ponatinib and i was 
thinking I have to take this??!

Well yes I do and blood clots and heart problems are right up there high on the 
list. 

My potassium tends to be high also and you can get heart problems from that. 

Just have to fight on and thanks again. 




My Motto: Faith and Pills❤️ 

With 💗Jeanie 🐟🐟18,s Chi 

Dx 1/2004. CML Leukemia

Started Gleevec 2/2004

Started Tasigna  9/2009

Started Sprycel 11/2009

Started Ponatinib January 2015

Dr Balducci Moffitt Cancer Center


On Mar 18, 2016, at 12:00 PM, peg <[email protected]> wrote:


Hi Jeanie,  


I was traveling on business this week and just checked in and am wondering if 
you are feeling better?  


I had to caution another cancer patient recently not to write off sudden 
changes as normal...caused by treatment, age, etc.  The new generation of meds 
to treat CML and other cancers can have side effects that can be deadly if not 
caught in time.  Sprycel was a really good example of this. Prior to the FDA 
warning that it can cause deadly pulmonary hypertension no one was paying 
attention to folks that were already on it.  When one of our CML warriors 
started feeling weak and dizzy, even her doctor dismissed it, for months, until 
she collapsed and woke up in the cardiac care unit.  She almost died, and had a 
long road to recovery. Her spreading the word saved other lives!   Everyone 
should know their meds, know what the symptoms are of the dangerous side 
effects and alert their doctor if those symptoms present. It doesn't hurt to 
tell the doctor you are concerned it is a side effect of your meds, you would 
be surprised how many doctors are not familiar with the side effects of the 
meds they are prescribing!  


I think those of us living with cancer or any other chronic disease are kind of 
stoic and don't whine a lot...but sometimes we should. 


Note to Marty...since I am sure you are reading this...you are in my prayers!!


Fight on,

Peg

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