Hi Richard, I just got my pacemaker and will go to the hospital this Monday morning to have my staples removed. What a difference that pacemaker has on me. No more a-fibs but the ones that are still there are very mild and the doctor tells me I shouldn't worry and not to be concerned.
18's, Marty On Wed, Mar 23, 2016 at 11:48 PM, Richard H <[email protected]> wrote: > I don't call ins. I have a pacemaker machine I use and call in the report > (electronic recording of what it is doing) every 3 months and I go to the > office once a year for a face to face with the big machine to have it read > by a technician.. > > Richard H. > > On Wednesday, March 23, 2016 at 9:34:39 AM UTC-5, Icandoallttc wrote: >> >> Hi Richard and thanks for the update. I didn't know they still did call >> ins. >> I feel my mom wouldn't be here if she hadn't had her pacemaker. >> She never had to have the battery replaced. >> She was overweight when she had it put in and the doctor told her to lose >> weight. He said it was like putting a volts wagon battery in a Cadillac. >> She did lose weight after being overweight all her life. Just changed her >> way of eating. >> Good luck all. >> >> My Motto: Faith and Pills❤️ >> With 💗Jeanie 🐟🐟18,s Chi >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >> On Mar 22, 2016, at 11:50 PM, Richard H <[email protected]> wrote: >> >> Welcome to the pacemaker club. I have had one for about 8 years. Scar >> tissue built up in my heart from 5 by-passes in1991. I see my heart Dr. >> Thursday and I will hear about the battery life left. I think it is about >> 2 years left and I have to report in by phone 3 times and 1 visit a year.. >> Wonderful piece of engineering. >> >> I found an increase in energy by the I got home (overnight stay)). >> >> We'll just keep on keeping on. >> >> 18's >> >> Richard H. >> >> On Monday, March 21, 2016 at 11:48:00 PM UTC-5, wa2yyx wrote: >>> >>> Hi Susan, >>> >>> Yes I am finally home. Left the hospital at 3:00 PM and it took my wife >>> about one hour to drive back home. The pacemaker is in and adjusted and >>> fine tuned. Amazing how these work. No more fainting spells which only >>> would last for only 2 seconds so I haven't actually fainted. I was always >>> been able to keep my eyes open and hear as well as even hearing and talking >>> Have some pain where they made the incision but some Tylenol PM should >>> help me sleep, nothing I can't handle. >>> >>> Thank you for asking about me. >>> >>> 18's, >>> >>> Marty >>> >>> On Mon, Mar 21, 2016 at 7:25 PM, 'Susan Zimmerman' via CMLHope < >>> [email protected]> wrote: >>> >>>> Love you to pieces, Marty! Hope you comfortably home by now. An update >>>> for me, please! >>>> >>>> 18's, >>>> >>>> Susan F. Zimmerman >>>> "All who humble themselves before the Lord shall be given every >>>> blessing, and shall have wonderful peace." Ps.37:11 >>>> ------------------------------ >>>> On Monday, March 21, 2016 Myvety2k via CMLHope <[email protected]> >>>> wrote: >>>> Marty, got my fingers crossed. >>>> >>>> greenie >>>> >>>> In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time, >>>> [email protected] writes: >>>> >>>> Hi Beth, >>>> >>>> I am actually still in the hospital but maybe today I will be getting >>>> out just have to wait for the doctors when they make their rounds. I will >>>> keep everyone updated. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> bkbarney via CMLHope <[email protected]> wrote: >>>> Dear Marty, >>>> So glad you are out of the hospital! And Peg, you are so right about >>>> what you said to Jeanie...Hope everyone is doing as well as possible. >>>> Thinking of all of you...love, and 18's Beth >>>> >>>> -----Original Message----- >>>> From: 'Icandoallttc' via CMLHope <[email protected]> >>>> To: peg <[email protected]> >>>> Cc: CMLHope <[email protected]> >>>> Sent: Fri, Mar 18, 2016 11:19 am >>>> Subject: [CMLHope] Re: Dizzy all day >>>> >>>> Thanks Peg, >>>> You are so right. I was reading the side effects of ponatinib and i >>>> was thinking I have to take this??! >>>> Well yes I do and blood clots and heart problems are right up there >>>> high on the list. >>>> My potassium tends to be high also and you can get heart problems from >>>> that. >>>> Just have to fight on and thanks again. >>>> >>>> >>>> >>>> My Motto: Faith and Pills❤️ >>>> With 💗Jeanie 🐟🐟18,s Chi >>>> Dx 1/2004. CML Leukemia >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib January 2015 >>>> Dr Balducci Moffitt Cancer Center >>>> >>>> On Mar 18, 2016, at 12:00 PM, peg <[email protected]> wrote: >>>> >>>> >>>> Hi Jeanie, >>>> >>>> I was traveling on business this week and just checked in and am >>>> wondering if you are feeling better? >>>> >>>> I had to caution another cancer patient recently not to write off >>>> sudden changes as normal...caused by treatment, age, etc. The new >>>> generation of meds to treat CML and other cancers can have side effects >>>> that can be deadly if not caught in time. Sprycel was a really good >>>> example of this. Prior to the FDA warning that it can cause deadly >>>> pulmonary hypertension no one was paying attention to folks that were >>>> already on it. When one of our CML warriors started feeling weak and >>>> dizzy, even her doctor dismissed it, for months, until she collapsed and >>>> woke up in the cardiac care unit. She almost died, and had a long road to >>>> recovery. Her spreading the word saved other lives! Everyone should know >>>> their meds, know what the symptoms are of the dangerous side effects and >>>> alert their doctor if those symptoms present. It doesn't hurt to tell the >>>> doctor you are concerned it is a side effect of your meds, you would be >>>> surprised how many doctors are not familiar with the side effects of the >>>> meds they are prescribing! >>>> >>>> I think those of us living with cancer or any other chronic disease are >>>> kind of stoic and don't whine a lot...but sometimes we should. >>>> >>>> *Note to Marty...since I am sure you are reading this...you are in my >>>> prayers!!* >>>> >>>> Fight on, >>>> Peg >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because 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