Thanks for the good news Marty.
 
greenie
 
 
In a message dated 3/22/2016 12:47:59 A.M. Eastern Daylight Time,  
[email protected] writes:

 
Hi Susan, 


Yes I am finally home. Left the hospital at 3:00 PM and it took my wife  
about one hour to drive back home. The pacemaker is in and adjusted and fine  
tuned. Amazing how these work. No more fainting spells which only  would 
last for only 2 seconds so I haven't actually fainted. I was always  been able 
to keep my eyes open and hear as well as even hearing and talking  Have some 
pain where they made the incision but some Tylenol PM  should help me 
sleep, nothing I can't handle.


Thank you for asking about me.   


18's,


Marty


On Mon, Mar 21, 2016 at 7:25 PM, 'Susan Zimmerman' via  CMLHope 
<[email protected]_ (mailto:[email protected]) > wrote:

Love you to pieces, Marty! Hope you comfortably home by now. An  update for 
me, please! 
18's, 
Susan F. Zimmerman
"All who humble themselves before the Lord  shall be given every blessing, 
and shall have wonderful peace." Ps.37:11 

 
____________________________________
 
On  Monday, March 21, 2016 Myvety2k via CMLHope <[email protected]_ 
(mailto:[email protected]) > wrote:

 
Marty, got my fingers crossed.
 
greenie
 
 
In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time, 
[email protected]_ (mailto:[email protected])  writes:

Hi  Beth, 

I am actually still in the hospital but maybe today I will  be getting out 
just have to wait for the doctors when they make their  rounds. I will keep 
everyone  updated.

18's,

Marty

bkbarney via CMLHope <[email protected]_ 
(mailto:[email protected]) > wrote:
Dear Marty,  
So glad you are out of the hospital! And Peg, you are so right about  what 
you said to Jeanie...Hope everyone is doing as well as possible.  Thinking 
of all of you...love, and 18's Beth

-----Original  Message-----

From: 'Icandoallttc' via CMLHope <[email protected]_ 
(mailto:[email protected]) >
To: peg <[email protected]_ (mailto:[email protected]) >
Cc: CMLHope <[email protected]_ (mailto:[email protected]) >
Sent: Fri, Mar 18, 2016  11:19 am
Subject: [CMLHope] Re: Dizzy all day


 
Thanks Peg,
You are so right.  I was reading the side effects of ponatinib  and i was 
thinking I have to take this??!
Well yes I do and blood clots and heart problems are right up there  high 
on the list. 
My potassium tends to be high also and you can get heart problems  from 
that. 
Just have to fight on and thanks again. 




My Motto: Faith and Pills❤️  
With 💗Jeanie 🐟🐟18,s Chi  
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center



On Mar 18, 2016, at 12:00 PM, peg <[email protected]_ 
(mailto:[email protected]) > wrote:





Hi Jeanie,   


I was traveling on business this week and just checked in and am  wondering 
if you are feeling better?  


I had to caution another cancer patient recently not to write off  sudden 
changes as normal...caused by treatment, age, etc.  The new  generation of 
meds to treat CML and other cancers can have side effects  that can be deadly 
if not caught in time.  Sprycel was a really  good example of this. Prior to 
the FDA warning that it can cause deadly  pulmonary hypertension no one was 
paying attention to folks that were  already on it.  When one of our CML 
warriors started feeling weak  and dizzy, even her doctor dismissed it, for 
months, until she collapsed  and woke up in the cardiac care unit.  She almost 
died, and had a  long road to recovery. Her spreading the word saved other 
lives!    Everyone should know their meds, know what the symptoms are of the 
 dangerous side effects and alert their doctor if those symptoms present.  
It doesn't hurt to tell the doctor you are concerned it is a side effect  of 
your meds, you would be surprised how many doctors are not familiar  with 
the side effects of the meds they are prescribing!  


I think those of us living with cancer or any other chronic disease  are 
kind of stoic and don't whine a lot...but sometimes we should.  


Note to Marty...since I am sure you are reading this...you are  in my 
prayers!!


Fight on,
Peg







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