I don't call ins. I have a pacemaker machine I use and call in the report (electronic recording of what it is doing) every 3 months and I go to the office once a year for a face to face with the big machine to have it read by a technician..
Richard H. On Wednesday, March 23, 2016 at 9:34:39 AM UTC-5, Icandoallttc wrote: > > Hi Richard and thanks for the update. I didn't know they still did call > ins. > I feel my mom wouldn't be here if she hadn't had her pacemaker. > She never had to have the battery replaced. > She was overweight when she had it put in and the doctor told her to lose > weight. He said it was like putting a volts wagon battery in a Cadillac. > She did lose weight after being overweight all her life. Just changed her > way of eating. > Good luck all. > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Mar 22, 2016, at 11:50 PM, Richard H <[email protected] <javascript:>> > wrote: > > Welcome to the pacemaker club. I have had one for about 8 years. Scar > tissue built up in my heart from 5 by-passes in1991. I see my heart Dr. > Thursday and I will hear about the battery life left. I think it is about > 2 years left and I have to report in by phone 3 times and 1 visit a year.. > Wonderful piece of engineering. > > I found an increase in energy by the I got home (overnight stay)). > > We'll just keep on keeping on. > > 18's > > Richard H. > > On Monday, March 21, 2016 at 11:48:00 PM UTC-5, wa2yyx wrote: >> >> Hi Susan, >> >> Yes I am finally home. Left the hospital at 3:00 PM and it took my wife >> about one hour to drive back home. The pacemaker is in and adjusted and >> fine tuned. Amazing how these work. No more fainting spells which only >> would last for only 2 seconds so I haven't actually fainted. I was always >> been able to keep my eyes open and hear as well as even hearing and talking >> Have some pain where they made the incision but some Tylenol PM should >> help me sleep, nothing I can't handle. >> >> Thank you for asking about me. >> >> 18's, >> >> Marty >> >> On Mon, Mar 21, 2016 at 7:25 PM, 'Susan Zimmerman' via CMLHope < >> [email protected]> wrote: >> >>> Love you to pieces, Marty! Hope you comfortably home by now. An update >>> for me, please! >>> >>> 18's, >>> >>> Susan F. Zimmerman >>> "All who humble themselves before the Lord shall be given every >>> blessing, and shall have wonderful peace." Ps.37:11 >>> ------------------------------ >>> On Monday, March 21, 2016 Myvety2k via CMLHope <[email protected]> >>> wrote: >>> Marty, got my fingers crossed. >>> >>> greenie >>> >>> In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time, >>> [email protected] writes: >>> >>> Hi Beth, >>> >>> I am actually still in the hospital but maybe today I will be getting >>> out just have to wait for the doctors when they make their rounds. I will >>> keep everyone updated. >>> >>> 18's, >>> >>> Marty >>> >>> bkbarney via CMLHope <[email protected]> wrote: >>> Dear Marty, >>> So glad you are out of the hospital! And Peg, you are so right about >>> what you said to Jeanie...Hope everyone is doing as well as possible. >>> Thinking of all of you...love, and 18's Beth >>> >>> -----Original Message----- >>> From: 'Icandoallttc' via CMLHope <[email protected]> >>> To: peg <[email protected]> >>> Cc: CMLHope <[email protected]> >>> Sent: Fri, Mar 18, 2016 11:19 am >>> Subject: [CMLHope] Re: Dizzy all day >>> >>> Thanks Peg, >>> You are so right. I was reading the side effects of ponatinib and i was >>> thinking I have to take this??! >>> Well yes I do and blood clots and heart problems are right up there high >>> on the list. >>> My potassium tends to be high also and you can get heart problems from >>> that. >>> Just have to fight on and thanks again. >>> >>> >>> >>> My Motto: Faith and Pills❤️ >>> With 💗Jeanie 🐟🐟18,s Chi >>> Dx 1/2004. CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib January 2015 >>> Dr Balducci Moffitt Cancer Center >>> >>> On Mar 18, 2016, at 12:00 PM, peg <[email protected]> wrote: >>> >>> >>> Hi Jeanie, >>> >>> I was traveling on business this week and just checked in and am >>> wondering if you are feeling better? >>> >>> I had to caution another cancer patient recently not to write off sudden >>> changes as normal...caused by treatment, age, etc. The new generation of >>> meds to treat CML and other cancers can have side effects that can be >>> deadly if not caught in time. Sprycel was a really good example of this. >>> Prior to the FDA warning that it can cause deadly pulmonary hypertension no >>> one was paying attention to folks that were already on it. When one of our >>> CML warriors started feeling weak and dizzy, even her doctor dismissed it, >>> for months, until she collapsed and woke up in the cardiac care unit. She >>> almost died, and had a long road to recovery. Her spreading the word saved >>> other lives! Everyone should know their meds, know what the symptoms are >>> of the dangerous side effects and alert their doctor if those symptoms >>> present. It doesn't hurt to tell the doctor you are concerned it is a side >>> effect of your meds, you would be surprised how many doctors are not >>> familiar with the side effects of the meds they are prescribing! >>> >>> I think those of us living with cancer or any other chronic disease are >>> kind of stoic and don't whine a lot...but sometimes we should. >>> >>> *Note to Marty...since I am sure you are reading this...you are in my >>> prayers!!* >>> >>> Fight on, >>> Peg >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google 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receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message 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