Hi Richard, There is a lot to discuss here... First what is your Creatinine level (clearance) ?
Here is an article about it. Creatinine clearance is a widely used value to estimate the Glomerular filtration rate (GFR). GFR equals the sum of the filtration rates in all of the functioning Nephrons; thus, the GFR gives a rough count of the number of functioning Nephrons. Decrease in Creatinine clearance indicates decreased GFR and impaired renal function. This can be due to conditions (example:progressive renal disease) or can result from an adverse effect of renal Hypoperfusion, which is often reversible, and can result from drug effects, Hypotension, volume depletion, heart failure, and shock. Increased Creatinine clearance is often called Hyperfiltration and is usually seen during pregnancy or in patients with diabetes mellitus before diabetic Nephropathy (clear has occurred. It may also occur with large dietary protein intake or with plasma volume expansion. I know that this sounds very complicated but i did get to know it quite well and have done quite a bit of research on it not because i wanted to know but i had to know. My kidneys failed because i had CML more then 27 years ago and had to undergo a bone marrow transplant at that time. I was warned just before that since this was a basically a new type of treatment but it really wasn't known for it's involvement in CML, at least not yet. I remember that they were trying to use it for Russian woman who had advanced breast cancer at that particular hospital that i ended up having a successful BMT in. However as I found out there were some other things that i would have to deal with decades later. Kidneys and eyes don't like Chemotherapy and especially Total Body Radiation. Eyes will probably get Cataracts, but no big deal with that because they can do a simple procedure to put you back to getting your vision corrected. However the kidneys are a different story. So i strongly suggest that you or anyone else that that may suspect any kidney problems find a qualified Nephrologist and he or she could make a real difference in your life. I know because this all happened to me. Now i am very happy to be hearing from you because you mentioned that your Creatinine level is getting better. That's really great news๐ On Fri, Apr 21, 2017 at 11:52 PM, Richard H <rbhuffm...@gmail.com> wrote: > Yes. I have had to discontinue all over the counter because of my > starting of kidney problems. Most of us long timers of these heavy duty > medications are doing damage while we are taking them. I took a heart med > for 20 years that was 2x the recommended dosage and Gleevec (15 years) has > also contributed to the damage. But I am doing the best I can for the > shape I'm in. All my various Dr.s are giving me great reports the last > month. Blood work is Great, Kidney's are staying about the same. I will be > taking the the big blood test in the next week or two. I am to get the > results May 23. > > Spring has sprung, flowers blooming, nose dripping, and all is well. > > Richard H. > > On Friday, April 21, 2017 at 6:34:40 AM UTC-5, Lee wrote: >> >> I'm still here, too! I was wondering where everyone went! Hopefully, >> everyone is healthy and just taking a break! Greenie, in case you are >> taking Ibuprofen (for arthritis and pain) you should let your doctor know. >> He or she might want you to discontinue it. It drastically lowers kidney >> function. >> >> Have a nice weekend, all! >> >> 18's >> Lee >> >> On Apr 21, 2017, at 6:13 AM, cml...@googlegroups.com wrote: >> >> cmlhope@googlegroups.com >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> >> Google >> Groups >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> >> Topic digest >> View all topics >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> >> >> - Fun thing to do >> >> <#m_-256250450959024344_EB130C85-430C-4B64-B867-D7F620A83AC0@aol.com_group_thread_0> >> - 8 Updates >> >> Fun thing to do >> <http://groups.google.com/group/cmlhope/t/277496fc63bbdb52?utm_source=digest&utm_medium=email> >> myve...@aol.com: Apr 20 08:14AM -0400 >> >> Hi Group, is anyone home. Their seems to no posts anymore? I noticed that >> my name is off Zavie's list and he gave me number 48 and it's gone. Hope >> all is well with everyone. >> >> greenie >> >> >> In a message dated 2/7/2017 6:31:21 P.M. Eastern Standard Time, >> pksc...@gmail.com writes: >> >> >> For 32 years. I commuted two hours each day in the Toronto traffic >> (exposure to benzine) and then sat in front of a computer terminal all >> day long >> (prolonged exposure to electromagnetic radiation). >> Had I known then, what I know now, I would have chosen a healthier >> occupation. >> Also, in my younger years, I used leaded gasoline to wash the grease off >> my hands after working on my beat up cars. >> >> >> >> >> -- >> -- >> [CMLHope] >> A support group of _http://cmlhope.com_ (http://cmlhope.com/) >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-u...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+u...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> Marty Gartenberg <wa2...@gmail.com>: Apr 20 09:02AM -0400 >> >> Hi Greenie, >> >> I'm still here, in fact i am always here. I think that everyone is not >> posting because of the holidays and are busy at this time of the year. >> >> So, how are you doing? I hope that you are doing well. Ever since my >> accident i have been trying to recover but it is a very slow process. I >> broke my neck in three places as well as my arm and shattered my elbow. >> >> I was in a coma for many weeks and when I finally got up to find i had >> hole >> in my neck connected to a respirator with my head in a sort of globe I >> didn't know what happened to me. They told me that i had plates, screws, >> nuts and bolts in both my neck and arm. Had to go to a nursing home and >> had >> months of therapy. >> >> But i am still still recovering. I gained a lot of being myself in these >> past nine months. >> >> I'm walking I'm talking I'm eating again and I am off of Dialysis and got >> a >> kidney transplant and a prostate operation almost two and a half years ago >> and being able to pee is very good. And the best part is that I can still >> drive my wife at night.๐ Even went on a cruise on March 26th, and our >> 41st >> anniversary was on March 28th while we were on the cruise. >> >> The way I look at things no matter what you go through, ain't life great! >> You bet it is! Remember I'm still pushing those 18's. >> >> 18's, >> >> Marty >> myve...@aol.com: Apr 20 11:42AM -0400 >> >> Wow, I didn't know about the accident. Well, I'm glad things are going >> better for you. I'm doing O. K. I'm at 41 on my GFR which is not great >> but >> the Doctor told me to keep drinking a lot of water and I've increased >> that >> also. I have blood work in Chicago on the first of June, see the Doctor, >> etc. Check in with my late son's wife and kids and then catch the last >> plane >> out of Chicago to Fort Myers. It will be a long day but I'll be doing >> just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. >> PLEASE be careful and take care of yourself. We all need you to solve all >> of >> our problems. >> >> Cheers, >> >> greenie >> >> >> In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, >> wa2...@gmail.com writes: >> >> Hi Greenie, >> >> >> I'm still here, in fact i am always here. I think that everyone is not >> posting because of the holidays and are busy at this time of the year. >> >> >> So, how are you doing? I hope that you are doing well. Ever since my >> accident i have been trying to recover but it is a very slow process. I >> broke my >> neck in three places as well as my arm and shattered my elbow. >> >> >> I was in a coma for many weeks and when I finally got up to find i had >> hole in my neck connected to a respirator with my head in a sort of globe >> I >> didn't know what happened to me. They told me that i had plates, screws, >> nuts >> and bolts in both my neck and arm. Had to go to a nursing home and had >> months of therapy. >> >> >> But i am still still recovering. I gained a lot of being myself in these >> past nine months. >> >> >> I'm walking I'm talking I'm eating again and I am off of Dialysis and got >> a kidney transplant and a prostate operation almost two and a half years >> ago >> and being able to pee is very good. And the best part is that I can >> still drive my wife at night.๐ Even went on a cruise on March 26th, and >> our >> 41st anniversary was on March 28th while we were on the cruise. >> >> >> The way I look at things no matter what you go through, ain't life great! >> You bet it is! Remember I'm still pushing those 18's. >> >> >> 18's, >> >> >> Marty >> >> -- >> -- >> [CMLHope] >> A support group of _http://cmlhope.com_ (http://cmlhope.com/) >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-u...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+u...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> Marty Gartenberg <wa2...@gmail.com>: Apr 20 02:30PM -0400 >> >> Greenie, >> >> The one thing that you did mention was the fact that your kidney function >> dropped. Hey I have a suggestion for you. If your not diabetic then start >> drinking cranberry juice. It washes your kidneys out and it wouldn't >> surprise me if your kidney function dropped even lower. But either way you >> should still drink more water which you already know about. >> >> 18's, >> >> Marty >> >> On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope < >> myve...@aol.com: Apr 20 03:23PM -0400 >> >> Yes, Marty I am doing the cranberry juice. >> >> Thanks, >> >> greenie >> >> >> In a message dated 4/20/2017 2:30:38 P.M. Eastern Daylight Time, >> wa2...@gmail.com writes: >> >> >> Greenie, >> >> >> The one thing that you did mention was the fact that your kidney function >> dropped. Hey I have a suggestion for you. If your not diabetic then start >> drinking cranberry juice. It washes your kidneys out and it wouldn't >> surprise >> me if your kidney function dropped even lower. But either way you should >> still drink more water which you already know about. >> >> >> 18's, >> >> >> Marty >> >> >> On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope >> <cml...@googlegroups.com> wrote: >> >> >> Wow, I didn't know about the accident. Well, I'm glad things are going >> better for you. I'm doing O. K. I'm at 41 on my GFR which is not great >> but >> the Doctor told me to keep drinking a lot of water and I've increased >> that >> also. I have blood work in Chicago on the first of June, see the Doctor, >> etc. Check in with my late son's wife and kids and then catch the last >> plane >> out of Chicago to Fort Myers. It will be a long day but I'll be doing >> just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. >> PLEASE be careful and take care of yourself. We all need you to solve all >> of >> our problems. >> >> Cheers, >> >> greenie >> >> >> >> >> In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, >> wa2...@gmail.com writes: >> >> >> >> >> >> Hi Greenie, >> >> >> I'm still here, in fact i am always here. I think that everyone is not >> posting because of the holidays and are busy at this time of the year. >> >> >> So, how are you doing? I hope that you are doing well. Ever since my >> accident i have been trying to recover but it is a very slow process. I >> broke my >> neck in three places as well as my arm and shattered my elbow. >> >> >> I was in a coma for many weeks and when I finally got up to find i had >> hole in my neck connected to a respirator with my head in a sort of globe >> I >> didn't know what happened to me. They told me that i had plates, screws, >> nuts >> and bolts in both my neck and arm. Had to go to a nursing home and had >> months of therapy. >> >> >> But i am still still recovering. I gained a lot of being myself in these >> past nine months. >> >> >> I'm walking I'm talking I'm eating again and I am off of Dialysis and got >> a kidney transplant and a prostate operation almost two and a half years >> ago and being able to pee is very good. And the best part is that I can >> still drive my wife at night.๐ Even went on a cruise on March 26th, and >> our >> 41st anniversary was on March 28th while we were on the cruise. >> >> >> The way I look at things no matter what you go through, ain't life great! >> You bet it is! Remember I'm still pushing those 18's. >> >> >> 18's, >> >> >> Marty >> >> >> >> -- >> >> -- >> [CMLHope] >> A support group of _http://cmlhope.com_ (http://cmlhope.com/) >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> To unsubscribe from this group, send email to >> CMLHope-unsubscribe@CMLHope-unsubscr >> For more options, visit this group at >> _http://groups.google.com/http://groups_ (http://groups.google.com/grou >> p/CMLHope) >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscribe@cmlhope+unsubscr. >> For more options, visit _https://groups.google.com/d/https:_ >> (https://groups.google.com/d/optout) . >> >> >> >> >> >> >> >> -- >> -- >> [CMLHope] >> A support group of _http://cmlhope.com_ (http://cmlhope.com/) >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> To unsubscribe from this group, send email to >> CMLHope-unsubscribe@CMLHope-unsubscr >> For more options, visit this group at >> _http://groups.google.com/http://groups_ (http://groups.google.com/grou >> p/CMLHope) >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscribe@cmlhope+unsubscr. >> For more options, visit _https://groups.google.com/d/https:_ >> (https://groups.google.com/d/optout) . >> >> >> >> >> >> >> -- >> -- >> [CMLHope] >> A support group of _http://cmlhope.com_ (http://cmlhope.com/) >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-u...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+u...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> Marty Gartenberg <wa2...@gmail.com>: Apr 20 03:38PM -0400 >> >> GREAT! >> >> Marty >> >> 18's, >> >> On Thu, Apr 20, 2017 at 3:23 PM, Myvety2k via CMLHope < >> Joyce Mesnarich <joy...@htc.net>: Apr 20 07:00PM -0500 >> >> I have been missing hearing from members of the group also. Marty, I am >> so happy to hear that you and your sweetie were able to take a cruise and >> celebrate your anniversary. Greenie, who knows what happened to your name >> on Zavieโs list. Strange things happen in cyberspace. Hope all is well with >> your daughter-in-law and grandchildren. My husband (the CML patient) and I >> are ok. We are both feeling the progression of age hitting us. But we do >> what we can. We have welcomed two great-grandchildren to the family in the >> last year. Another one was born 2 weeks ago and we are expecting yet >> another next month. We are so fortunate that our grandchildren keep us in >> tough with these new family members by phone, texts and pictures and >> Facebook. I has been such fun to see the older 2 boys in their first year >> of life, even though we are miles apart. Social media does have some use >> even in senior citizens life. Hope everyone is doing well. Bobby, how are >> you? Jeannie, thinking of you, too. >> Joyce in IL >> >> >> Marty Gartenberg <wa2...@gmail.com>: Apr 20 10:04PM -0400 >> >> Hi Joyce, >> >> Glad to hear from you again. Glad to hear about your family. I guess that >> is the string that holds all of you together. >> >> You spoke of getting older and I hear you BUT as we get older we get >> wiser. >> Anyway that's the way i look at it. >> >> Here is a picture I just found of myself about thirteen years ago, and I >> guess those were the good old days. >> >> 18's >> >> Marty >> >> >> >> Back to top >> <#m_-256250450959024344_EB130C85-430C-4B64-B867-D7F620A83AC0@aol.com_digest_top> >> You received this digest because you're subscribed to updates for this >> group. 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