Hi Richard and good to hear from you and all. I get pcr every 3 months. Very good reports So staying positive. Prayers to all.
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Apr 21, 2017, at 11:52 PM, Richard H <[email protected]> wrote: > > Yes. I have had to discontinue all over the counter because of my starting > of kidney problems. Most of us long timers of these heavy duty medications > are doing damage while we are taking them. I took a heart med for 20 years > that was 2x the recommended dosage and Gleevec (15 years) has also > contributed to the damage. But I am doing the best I can for the shape I'm > in. All my various Dr.s are giving me great reports the last month. Blood > work is Great, Kidney's are staying about the same. I will be taking the the > big blood test in the next week or two. I am to get the results May 23. > > Spring has sprung, flowers blooming, nose dripping, and all is well. > > Richard H. > >> On Friday, April 21, 2017 at 6:34:40 AM UTC-5, Lee wrote: >> I'm still here, too! I was wondering where everyone went! Hopefully, >> everyone is healthy and just taking a break! Greenie, in case you are taking >> Ibuprofen (for arthritis and pain) you should let your doctor know. He or >> she might want you to discontinue it. It drastically lowers kidney function. >> >> Have a nice weekend, all! >> >> 18's >> Lee >> >>> On Apr 21, 2017, at 6:13 AM, [email protected] wrote: >>> >>> >>> [email protected] Google Groups >>> Topic digest >>> View all topics >>> Fun thing to do - 8 Updates >>> Fun thing to do >>> [email protected]: Apr 20 08:14AM -0400 >>> >>> Hi Group, is anyone home. Their seems to no posts anymore? I noticed that >>> my name is off Zavie's list and he gave me number 48 and it's gone. Hope >>> all is well with everyone. >>> >>> greenie >>> >>> >>> In a message dated 2/7/2017 6:31:21 P.M. Eastern Standard Time, >>> [email protected] writes: >>> >>> >>> For 32 years. I commuted two hours each day in the Toronto traffic >>> (exposure to benzine) and then sat in front of a computer terminal all day >>> long >>> (prolonged exposure to electromagnetic radiation). >>> Had I known then, what I know now, I would have chosen a healthier >>> occupation. >>> Also, in my younger years, I used leaded gasoline to wash the grease off >>> my hands after working on my beat up cars. >>> >>> >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of _http://cmlhope.com_ (http://cmlhope.com/) >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> Marty Gartenberg <[email protected]>: Apr 20 09:02AM -0400 >>> >>> Hi Greenie, >>> >>> I'm still here, in fact i am always here. I think that everyone is not >>> posting because of the holidays and are busy at this time of the year. >>> >>> So, how are you doing? I hope that you are doing well. Ever since my >>> accident i have been trying to recover but it is a very slow process. I >>> broke my neck in three places as well as my arm and shattered my elbow. >>> >>> I was in a coma for many weeks and when I finally got up to find i had hole >>> in my neck connected to a respirator with my head in a sort of globe I >>> didn't know what happened to me. They told me that i had plates, screws, >>> nuts and bolts in both my neck and arm. Had to go to a nursing home and had >>> months of therapy. >>> >>> But i am still still recovering. I gained a lot of being myself in these >>> past nine months. >>> >>> I'm walking I'm talking I'm eating again and I am off of Dialysis and got a >>> kidney transplant and a prostate operation almost two and a half years ago >>> and being able to pee is very good. And the best part is that I can still >>> drive my wife at night.😂 Even went on a cruise on March 26th, and our 41st >>> anniversary was on March 28th while we were on the cruise. >>> >>> The way I look at things no matter what you go through, ain't life great! >>> You bet it is! Remember I'm still pushing those 18's. >>> >>> 18's, >>> >>> Marty >>> [email protected]: Apr 20 11:42AM -0400 >>> >>> Wow, I didn't know about the accident. Well, I'm glad things are going >>> better for you. I'm doing O. K. I'm at 41 on my GFR which is not great but >>> the Doctor told me to keep drinking a lot of water and I've increased that >>> also. I have blood work in Chicago on the first of June, see the Doctor, >>> etc. Check in with my late son's wife and kids and then catch the last >>> plane >>> out of Chicago to Fort Myers. It will be a long day but I'll be doing >>> just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. >>> PLEASE be careful and take care of yourself. We all need you to solve all >>> of >>> our problems. >>> >>> Cheers, >>> >>> greenie >>> >>> >>> In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, >>> [email protected] writes: >>> >>> Hi Greenie, >>> >>> >>> I'm still here, in fact i am always here. I think that everyone is not >>> posting because of the holidays and are busy at this time of the year. >>> >>> >>> So, how are you doing? I hope that you are doing well. Ever since my >>> accident i have been trying to recover but it is a very slow process. I >>> broke my >>> neck in three places as well as my arm and shattered my elbow. >>> >>> >>> I was in a coma for many weeks and when I finally got up to find i had >>> hole in my neck connected to a respirator with my head in a sort of globe I >>> didn't know what happened to me. They told me that i had plates, screws, >>> nuts >>> and bolts in both my neck and arm. Had to go to a nursing home and had >>> months of therapy. >>> >>> >>> But i am still still recovering. I gained a lot of being myself in these >>> past nine months. >>> >>> >>> I'm walking I'm talking I'm eating again and I am off of Dialysis and got >>> a kidney transplant and a prostate operation almost two and a half years >>> ago >>> and being able to pee is very good. And the best part is that I can >>> still drive my wife at night.😂 Even went on a cruise on March 26th, and our >>> 41st anniversary was on March 28th while we were on the cruise. >>> >>> >>> The way I look at things no matter what you go through, ain't life great! >>> You bet it is! Remember I'm still pushing those 18's. >>> >>> >>> 18's, >>> >>> >>> Marty >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of _http://cmlhope.com_ (http://cmlhope.com/) >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> Marty Gartenberg <[email protected]>: Apr 20 02:30PM -0400 >>> >>> Greenie, >>> >>> The one thing that you did mention was the fact that your kidney function >>> dropped. Hey I have a suggestion for you. If your not diabetic then start >>> drinking cranberry juice. It washes your kidneys out and it wouldn't >>> surprise me if your kidney function dropped even lower. But either way you >>> should still drink more water which you already know about. >>> >>> 18's, >>> >>> Marty >>> >>> On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope < >>> [email protected]: Apr 20 03:23PM -0400 >>> >>> Yes, Marty I am doing the cranberry juice. >>> >>> Thanks, >>> >>> greenie >>> >>> >>> In a message dated 4/20/2017 2:30:38 P.M. Eastern Daylight Time, >>> [email protected] writes: >>> >>> >>> Greenie, >>> >>> >>> The one thing that you did mention was the fact that your kidney function >>> dropped. Hey I have a suggestion for you. If your not diabetic then start >>> drinking cranberry juice. It washes your kidneys out and it wouldn't >>> surprise >>> me if your kidney function dropped even lower. But either way you should >>> still drink more water which you already know about. >>> >>> >>> 18's, >>> >>> >>> Marty >>> >>> >>> On Thu, Apr 20, 2017 at 11:42 AM, Myvety2k via CMLHope >>> <[email protected]> wrote: >>> >>> >>> Wow, I didn't know about the accident. Well, I'm glad things are going >>> better for you. I'm doing O. K. I'm at 41 on my GFR which is not great but >>> the Doctor told me to keep drinking a lot of water and I've increased that >>> also. I have blood work in Chicago on the first of June, see the Doctor, >>> etc. Check in with my late son's wife and kids and then catch the last >>> plane >>> out of Chicago to Fort Myers. It will be a long day but I'll be doing >>> just find. Creatinine is at 1.6 dropped from 2.02 so that's another plus. >>> PLEASE be careful and take care of yourself. We all need you to solve all >>> of >>> our problems. >>> >>> Cheers, >>> >>> greenie >>> >>> >>> >>> >>> In a message dated 4/20/2017 9:02:51 A.M. Eastern Daylight Time, >>> [email protected] writes: >>> >>> >>> >>> >>> >>> Hi Greenie, >>> >>> >>> I'm still here, in fact i am always here. I think that everyone is not >>> posting because of the holidays and are busy at this time of the year. >>> >>> >>> So, how are you doing? I hope that you are doing well. Ever since my >>> accident i have been trying to recover but it is a very slow process. I >>> broke my >>> neck in three places as well as my arm and shattered my elbow. >>> >>> >>> I was in a coma for many weeks and when I finally got up to find i had >>> hole in my neck connected to a respirator with my head in a sort of globe I >>> didn't know what happened to me. They told me that i had plates, screws, >>> nuts >>> and bolts in both my neck and arm. Had to go to a nursing home and had >>> months of therapy. >>> >>> >>> But i am still still recovering. I gained a lot of being myself in these >>> past nine months. >>> >>> >>> I'm walking I'm talking I'm eating again and I am off of Dialysis and got >>> a kidney transplant and a prostate operation almost two and a half years >>> ago and being able to pee is very good. And the best part is that I can >>> still drive my wife at night.😂 Even went on a cruise on March 26th, and our >>> 41st anniversary was on March 28th while we were on the cruise. >>> >>> >>> The way I look at things no matter what you go through, ain't life great! >>> You bet it is! Remember I'm still pushing those 18's. >>> >>> >>> 18's, >>> >>> >>> Marty >>> >>> >>> >>> -- >>> >>> -- >>> [CMLHope] >>> A support group of _http://cmlhope.com_ (http://cmlhope.com/) >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> CMLHope-unsubscribe@CMLHope-unsubscr >>> For more options, visit this group at >>> _http://groups.google.com/http://groups_ >>> (http://groups.google.com/group/CMLHope) >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscribe@cmlhope+unsubscr. >>> For more options, visit _https://groups.google.com/d/https:_ >>> (https://groups.google.com/d/optout) . >>> >>> >>> >>> >>> >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of _http://cmlhope.com_ (http://cmlhope.com/) >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> CMLHope-unsubscribe@CMLHope-unsubscr >>> For more options, visit this group at >>> _http://groups.google.com/http://groups_ >>> (http://groups.google.com/group/CMLHope) >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscribe@cmlhope+unsubscr. >>> For more options, visit _https://groups.google.com/d/https:_ >>> (https://groups.google.com/d/optout) . >>> >>> >>> >>> >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of _http://cmlhope.com_ (http://cmlhope.com/) >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> Marty Gartenberg <[email protected]>: Apr 20 03:38PM -0400 >>> >>> GREAT! >>> >>> Marty >>> >>> 18's, >>> >>> On Thu, Apr 20, 2017 at 3:23 PM, Myvety2k via CMLHope < >>> Joyce Mesnarich <[email protected]>: Apr 20 07:00PM -0500 >>> >>> I have been missing hearing from members of the group also. Marty, I am so >>> happy to hear that you and your sweetie were able to take a cruise and >>> celebrate your anniversary. Greenie, who knows what happened to your name >>> on Zavie’s list. Strange things happen in cyberspace. Hope all is well with >>> your daughter-in-law and grandchildren. My husband (the CML patient) and I >>> are ok. We are both feeling the progression of age hitting us. But we do >>> what we can. We have welcomed two great-grandchildren to the family in the >>> last year. Another one was born 2 weeks ago and we are expecting yet >>> another next month. We are so fortunate that our grandchildren keep us in >>> tough with these new family members by phone, texts and pictures and >>> Facebook. I has been such fun to see the older 2 boys in their first year >>> of life, even though we are miles apart. Social media does have some use >>> even in senior citizens life. Hope everyone is doing well. Bobby, how are >>> you? Jeannie, thinking of you, too. >>> Joyce in IL >>> >>> >>> Marty Gartenberg <[email protected]>: Apr 20 10:04PM -0400 >>> >>> Hi Joyce, >>> >>> Glad to hear from you again. Glad to hear about your family. I guess that >>> is the string that holds all of you together. >>> >>> You spoke of getting older and I hear you BUT as we get older we get wiser. >>> Anyway that's the way i look at it. >>> >>> Here is a picture I just found of myself about thirteen years ago, and I >>> guess those were the good old days. >>> >>> 18's >>> >>> Marty >>> >>> >>> >>> Back to top >>> You received this digest because you're subscribed to updates for this >>> group. 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