Rien, I forget to mention that I get my blood here in Florida  every 3 
months and everything looks good.  I have got to Chicago only the  first week 
in 
June each year..
 
Thanks,
 
greenie
 
 
In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time,  
rien16...@gmail.com writes:

 
Hello!


I stopped  taking Gleevec after 13 years. I had my checkups every month, 
but only in the  first year. In the second year every two months and from now 
on every three  months for the rest of my life.
It seems that  everybody reacts in a different way. I myself had more 
bonecramps after having  stopped than while taking Gleevec; but after the first 
year it gradually went  better and now I have these cramps only a few times 
per year during the night.  The swallen eyelids completely disappeared and 
unfortunately, my face became a  lot thinner. Another side-effect: my hair was 
not grey anymore after havinig  stopped, it is still dark, which was not 
the case before. After all I am glad  that I took the decision, the problems 
of the first year will disappear, so I  strongly advise you to do like I did.
Feel free to  contact me for further information.
Greetings  from the Netherlands - and let's be grateful that Gleevec 
exisits!!


Rien


2017-08-05 19:18 GMT+02:00 Vivi <vkrei...@gmail.com>:

After seventeen years on Gleevec, and considered "in  remission," my 
oncologist asked me if I would like to stop taking Gleevec.  
At first glance, this sounded spectacular but then she said:
"you'll have to come in once a month to be tested."
After deep thought (about twenty seconds), I said, "Talk to me about  this 
again in ten years."
Has anyone else stopped taking Gleevec after years of being "in  
remission?"  If so, how's it going?
What has changed in your life?  Have any of the obvious physical  
side-effects (leg cramps, blood in the whites of your eyes, swollen  eyelids,
abdominal fat) retreated or been reversed?
I'd appreciate any information other CMLers might have.
Best to all.   

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Dr. Marinus Jonkers 
Ravenhoflaan 5 
NL- 4706 WD  Roosendaal 
Tel. +31 165 8  22128 
117 Bd de la 1ère Armée, no.  21 
F – 83330 Le  Beausset 
Tél. +33 494 06 01  87 
email: rien16...@gmail.com 



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