Thank you Joyce.

18's,

Marty

On Wed, Jul 18, 2018 at 12:07 AM, Joyce Mesnarich <joy...@htc.net> wrote:

> I think he is on 150 micrograms.
>                Joyce in Southern Illinois
>
>
> On Jul 17, 2018, at 2:39 PM, Marty Gartenberg <wa2...@gmail.com> wrote:
>
> Great drug! I have been taking it for many, many years. What dose is he
> on?
>
> 18's,
>
> Marty
>
> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich <joy...@htc.net> wrote:
>
>> Jeanie,
>> My husband has had hypothyroidism for years…..before he got CML.  It
>> never caused him any problems.  It was diagnosed at a regular office visit
>> with a blood test.  He takes levothyroxin and has regular blood tests.
>>
>>             Joyce in Southern Illinois
>>
>>
>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>> Anyone have a thyroid problem?
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> 🐠free
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>>
>> 0 CBL. ABL
>>
>> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg <wa2...@gmail.com> wrote:
>>
>> Okay Jeanie,
>>
>> Since there is a lot to talk about I will do it between your lines.
>>
>> Hi
>> That’s cute
>> When I first started dating my hubby I was 16. When we went to leave I
>> hugged and kissed my mom and dad goodbye. He told me later he had never
>> seen that before.
>>
>> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE
>> WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG
>> AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN
>> KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW
>> WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM.
>>
>> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF
>> TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED
>> LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER
>> FORGET THEM
>>
>> His mom and dad never hugged or kissed him.  It was just the way we were.
>> Kiss goodbye and kiss hello.
>>
>> BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE,
>> SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE ON
>> THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE
>>
>> I THINK THAT HE JUST NEEDED A KNIPPLE.
>>
>> Same way with my kids. I tell them a hug is better than a pill.
>> How are you today?
>>
>> HEY JEANIE, KINPPLES FOR EVERY ONE. 😀
>>
>> I’m waiting on my daughter as she will take me to a late lunch.
>> I find my appetite not as good as it used to be. How bout you?
>>
>> BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T
>> HAVE A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE DO.
>> A WHOLE STORY BEHIND THIS BUT FOR ANOTHER TIME...
>>
>> I loved Millie’s cooking and recipes.  I sure do miss her.
>> She fought hard.
>> I remember when she started losing the use of her arms she said she
>> didn’t know what she would do if she couldn’t do her sewing and etc.
>> though I never met her I felt I knew her all my life. More later——
>>
>> THAT'S WHY I CALLED HER MOMMY LOTTIE.
>>
>> And she knew what 18's meant.
>>
>> So 18's,
>>
>> Marty, and a Knipple to you.
>>
>>
>>
>>
>> On Sun, Jul 15, 2018 at 12:05 PM, 'Jeanie' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>> Hi
>>> That’s cute
>>> When I first started dating my hubby I was 16. When we went to leave I
>>> hugged and kissed my mom and dad goodbye. He told me later he had never
>>> seen that before.  His mom and dad never hugged or kissed him.  It was just
>>> the way we were.
>>> Kiss goodbye and kiss hello.
>>> Same way with my kids. I tell them a hug is better than a pill.
>>> How are you today?
>>> I’m waiting on my daughter as she will take me to a late lunch.
>>> I find my appetite not as good as it used to be. How bout you?
>>> I loved Millie’s cooking and recipes.  I sure do miss her.
>>> She fought hard.
>>> I remember when she started losing the use of her arms she said she
>>> didn’t know what she would do if she couldn’t do her sewing and etc.
>>> though I never met her I felt I knew her all my life. More later——
>>>
>>> My Motto:
>>> Faith and Pills
>>> With Love
>>> Jeanie
>>> 🐠free
>>> Dx 1/2004 CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna 9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib 1/ 2015
>>> New Doctor--Dr Martine Extermann
>>> Moffitt Cancer  center sept 2017
>>> Dr Balducci retired
>>>
>>> 0 CBL. ABL
>>>
>>> On Jul 13, 2018, at 9:52 AM, Marty Gartenberg <wa2...@gmail.com> wrote:
>>>
>>> Jeanie, And I love you to, but when you say " Love you so very much" Do
>>> you mean like hugging me so much that your going to crush me until my ribs
>>> crumble?
>>>
>>> Ah yet another opportunity to let me say again...
>>>
>>> 18's,
>>>
>>> Marty
>>>
>>> On Fri, Jul 13, 2018 at 9:16 AM, 'Jeanie' via CMLHope <
>>> cmlhope@googlegroups.com> wrote:
>>>
>>>> So true Marty
>>>> You aren’t even on tki’s and look what you’ve been through.
>>>> Thank you for this email.
>>>> Love you so very much
>>>> Jeanie
>>>>
>>>> My Motto:
>>>> Faith and Pills
>>>> With Love
>>>> Jeanie
>>>> 🐠free
>>>> Dx 1/2004 CML Leukemia
>>>> Started Gleevec 2/2004
>>>> Started Tasigna 9/2009
>>>> Started Sprycel 11/2009
>>>> Started Ponatinib 1/ 2015
>>>> New Doctor--Dr Martine Extermann
>>>> Moffitt Cancer  center sept 2017
>>>> Dr Balducci retired
>>>>
>>>> 0 CBL. ABL
>>>>
>>>> On Jul 10, 2018, at 8:53 AM, Marty Gartenberg <wa2...@gmail.com> wrote:
>>>>
>>>> Oh Jeanie,
>>>>
>>>> first let me take you back to something I wrote to Richard
>>>>
>>>> I have heard a lot of people mentioning that they blame some of the TKI
>>>> that they are taking. Perhaps that may be so, but what if it isn't that at
>>>> all? That is why they need to consult with their doctors because that is
>>>> his or her job. 👉And if they feel that there is someone that can help as
>>>> well then get a second opinion.👈 Don't forget they won't be hurt or
>>>> offended because they are all getting together to help you.
>>>>
>>>>
>>>> And we will now continue on. Please read this. I took the time to write
>>>> it for a reason and I see that you took my 👉advice👈. A lot more... But I
>>>> want to hug your grand-daughter. My father once taught me a lesson and I
>>>> think that you may want to pass this onto her, and yourself as well.
>>>>
>>>> When a person/s learns something new everyday then they become smarter.
>>>> When a person/s refuses to learn something every day then they revert back
>>>> to yesterday.
>>>>
>>>> Hum, let me think..... Oh yea I think that your grand-daughter already
>>>> knows this?
>>>>
>>>>
>>>> "Take it Day by day and as my granddaughter says". She said “every
>>>> little thing’s gonna be alright.”
>>>> ❤️
>>>> Blood transfusions: A sort of long story but learning something new
>>>> every day made me smarter and I am still alive... Jeanie I don't blame you
>>>> for not wanting other peoples blood in you but let me ask you a question?
>>>> How many units of blood did you require? Did it help you? Well i needn't
>>>> know the answer because I already know but nothing that you told me but I
>>>> know and here is why.
>>>>
>>>> I had O+ blood and my sister had B+ blood. So my transplant doctor told
>>>> me that since my white blood count was past 186,000 that I need to have the
>>>> bone marrow transplant now. Or I may not survive because I was in Blast
>>>> crises that I was in.
>>>>
>>>> But he knew about my blood type wasn't a match for my sister but
>>>> everything was perfect but the matching type. He told me that there may be
>>>> a way to change my blood type but it could also cause my death. I then told
>>>> him that i was dieing anyway so let's try it.
>>>>
>>>> He started it before my transplant. It would require that I would have
>>>> to get many, many blood transfusions as well a a lot of platelets
>>>> infusions, and Gama globulin and other human blood products.
>>>>
>>>> Who already knew about this? R***** Z********. Who showed up with 41
>>>> "members" of his "family"
>>>> (Yes you know what I mean about this) ready to donate blood. But there
>>>> was a problem. At that time there was a new disease called AIDS and all of
>>>> the blood banks started testing and this slowed down the collection of
>>>> gathering of blood.
>>>>
>>>> Not to keep you on the edge of your seat. I once helped save a woman's
>>>> life because she was dying of stage four breast cancer and I did this
>>>> because I knew a doctor who may help her, and it took more then two years.
>>>> He never forgot me.
>>>>
>>>> Some people just have their power but most don't. He was one of those
>>>> that did to a certain extent. The way that I look about it was one life foe
>>>> another.
>>>>
>>>> In order to have my blood type converted from O to B I needed 96 units
>>>> of blood and I already knew where 41 of them came from. Just to let you
>>>> know if a donated unit of blood did not match my blood profile it would be
>>>> switched and someone else would get that unit of blood and a "trade" was
>>>> made. I am now called a Chimera with B+ blood in me.
>>>>
>>>> Now I am going forward in my life once more: Twenty years later my
>>>> kidneys started started to fail. I was on Dialysis for four years and
>>>> through a miracle I was able to get a kidney transplant and while I was
>>>> outside of the operating room I noticed a white cooler with a red cross and
>>>> it said "Human organs, B right side short urethra.
>>>>
>>>> I almost jumped out of the gurney because it was B type and then I
>>>> remembered that I used to be O type. Now what are the chances that this
>>>> could ever happen?
>>>>
>>>> Now Jeanie and all of the rest of you reading this, don't you think
>>>> that there truly Miracles floating around? Just ask your grand
>>>> daughter....Now you already know what I know. Have you learned anything new
>>>> today? I have.
>>>>
>>>>
>>>> 18's
>>>>
>>>> Marty
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> On Tue, Jul 10, 2018 at 6:01 AM, 'Jeanie' via CMLHope <
>>>> cmlhope@googlegroups.com> wrote:
>>>>
>>>>> Hi all
>>>>> I had this problem when on Tasigna. My hmg dropped to 8. I argued with
>>>>> my onc as I didn’t want someone else’s blood in me. I knew if he would 
>>>>> take
>>>>> me off the tasigna the hbg would come back up. He finally talked me into 
>>>>> it
>>>>> and I had to stay for hours getting transfusions. As most of you know not
>>>>> fun. Tasigna about killed me and I landed back in the hospital until I
>>>>> could talk my doctor into giving me Sprycel. I decided to make the move to
>>>>> Moffitt and never regretted it.
>>>>> Good luck to everyone.  Take it Day by day and as my granddaughter
>>>>> says, “every little thing’s gonna be alright.”
>>>>> ❤️
>>>>>
>>>>> My Motto:
>>>>> Faith and Pills
>>>>> With Love
>>>>> Jeanie
>>>>> 🐠free
>>>>> Dx 1/2004 CML Leukemia
>>>>> Started Gleevec 2/2004
>>>>> Started Tasigna 9/2009
>>>>> Started Sprycel 11/2009
>>>>> Started Ponatinib 1/ 2015
>>>>> New Doctor--Dr Martine Extermann
>>>>> Moffitt Cancer  center sept 2017
>>>>> Dr Balducci retired
>>>>>
>>>>> 0 CBL. ABL
>>>>>
>>>>> On Jul 9, 2018, at 10:21 AM, Marty Gartenberg <wa2...@gmail.com>
>>>>> wrote:
>>>>>
>>>>> Richard, first thing is when your hemoglobin drops to 10 or below then
>>>>> is the time that procrit generic Epoetin Alfa should start. It should
>>>>> increase your red/hemoglobin count. However it may take a week or two to
>>>>> start showing results. Why don't you mention this to your doctor.
>>>>> Also, have your kidney function checked as well.
>>>>>
>>>>> When my kidneys started to fail I was on Dialsys and found that my
>>>>> hemoglobin level started dropping. Kidney function has a lot to do with
>>>>> that. The reason why is because there is a hormone called Erythropoietin
>>>>> which  is released in response to hypoxia (low levels of oxygen at
>>>>> tissue level) in the renal circulation. It stimulates erythropoiesis
>>>>> (production of red blood cells) in the bone marrow.   I am writing
>>>>> this in bold font to make sure that it can be understood, it is that
>>>>> important!
>>>>>
>>>>> When I was on Diaysis sometimes my HGB would drop to from 7% to 9% and
>>>>> I felt like I coulden't even get out of bed. My wife would help me into 
>>>>> her
>>>>> car and help me into the Dialysis center. I lived a horrible life until I
>>>>> had a kidney Transplant.
>>>>>
>>>>> I have heard a lot of people mentioning that they blame some of the
>>>>> TKI that they are taking. Perhaps that may be so, but what if it isn't 
>>>>> that
>>>>> at all? That is why they need to consult with their doctors because that 
>>>>> is
>>>>> his or her job. And if they feel that there is someone that can help as
>>>>> well then get a second opinion. Don't forget they won't be hurt or 
>>>>> offended
>>>>> because they are all getting together to help you.
>>>>>
>>>>> Richard and everyone else, there was a time a very long time ago that
>>>>> my father tought me something. He said that everyone needs to learn
>>>>> something new everyday because it will make you smarter. If you refuse to
>>>>> learn something new everyday then you will revert back to yesterday. And 
>>>>> he
>>>>> was right!
>>>>>
>>>>> 18's
>>>>>
>>>>> Marty
>>>>>
>>>>> On Sun, Jul 8, 2018 at 11:31 PM, Richard H <rbhuffm...@gmail.com>
>>>>> wrote:
>>>>>
>>>>>> Yes, I have been struggling with this for years.  I have had
>>>>>> Transfusions, and now check my CBC every month to see if I need to take
>>>>>> Procreate to bring my blood level back up.  I am currently on 200 mg
>>>>>> Gleevec daily because my CML levels will rise if I don't use it as a
>>>>>> maintenance feature.  I am approaching 16 1/2 years since diagnosis.
>>>>>>
>>>>>> Richard H.
>>>>>>
>>>>>> On Saturday, July 7, 2018 at 1:04:15 PM UTC-5, Vivi wrote:
>>>>>>>
>>>>>>> I suddenly became terribly anemic and my doctor cut my intake of
>>>>>>> 400mg Gleevec daily in half.  It took five months but I am no longer 
>>>>>>> anemic
>>>>>>> and the CML does not seem to have become visible as yet.  Has anyone 
>>>>>>> else
>>>>>>> had a problem like this?
>>>>>>>
>>>>>>
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