Permanent annonimisation is allowed under some prerequisites (see the other reply, point 3 of art 17). This is a patient right to be exercised with all consequences. Data will never be lost as the patient has the right of obtaining a copy of all the information a provider has about him in an electronic standard when available. Luckily we can provide also that.
El sáb., 1 sept. 2018 a las 20:29, Thomas Beale (<[email protected]>) escribió: > I continue to wonder what will happen when a cancer patient (perhaps in a > moment of depression or disaffection with care) asks for the hard delete, > gets better, then has a recurrence a few years later. What does the health > system do when *all the notes are really gone*? > > I think a better solution is to create a digital locked room when such > EHRs are put, one-way encrypted with a giant key provided by the patient. > Then when they have regrets, they can ask - nicely - for their record to > come out of cold storage. > > Another argument against total deletion is that a) the state has invested > in helping sick patients and b) other citizens have a potential interest in > health records belonging to those in the same major disease cohort, i.e. > diabetes, cystic fibrosis, BRCA1 cancer etc. Numerous deletions are > certainly going to compromise research that looks at longitudinal Dx v > treatments v outcomes. Perhaps perhaps permanent anonymisation is a better > solution in this case, with the original patient being given the new EHR id. > > I think GDPR has some way to go yet in healthcare... > > - thomas > > On 01/09/2018 18:57, Diego Boscá wrote: > > If a patient uses a private health provider then he has the right of > taking all that information and move to another provider. In that case he > will want a hard-delete of data. And I hope private health providers are > also able to use openEHR ;D > I think we should also review the "consent" mechanisms we have, as they > probably should also be tweaked to comply with GDPR. > > > _______________________________________________ > openEHR-technical mailing list > [email protected] > > http://lists.openehr.org/mailman/listinfo/openehr-technical_lists.openehr.org > -- [image: VeraTech for Health SL] <https://htmlsig.com/t/000001C268PZ> [image: Twitter] <https://htmlsig.com/t/000001C47QQH> [image: LinkedIn] <https://htmlsig.com/t/000001C4DPJG> [image: Maps] <https://htmlsig.com/t/000001BZTWS7> Diego Boscá Tomás / Senior developer [email protected] [email protected] VeraTech for Health SL +34 654604676 <+34%20654604676> www.veratech.es Su dirección de correo electrónico junto a sus datos personales forman parte de un fichero titularidad de VeraTech for Health SL (CIF B98309511) cuya finalidad es la de mantener el contacto con usted. Conforme a La Ley Orgánica 15/1999, usted puede ejercitar sus derechos de acceso, rectificación, cancelación y, en su caso oposición, enviando una solicitud por escrito a [email protected].
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