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Growth potential of prolactinomas in men: is it really different from women?

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From: zinkster66

Hello All...
 
Been there, done that...
 
I was diagnosed 2 years ago with a prolactin secreting pituitary adenoma.  When my urologist told me this he got the "deer in the headlights" look.  When he said brain tumor, I lost it...  I guess he skipped his class on bedside manor...
 
I then went for my first MRI and a 1.7 x 1.7 x 2.0 cm tumor.  My initial blood results were a prolactin level of 1,038 and a testosterone level of 31. 
 
I was immediately put on the max dose of Dostinex and continued for a year.  The first few months were hell because my hormones were making the big swing back to normal.  I was moody, impatient with people, and quite volitile.  After the first few months, as my levels started to "level" out, I again became a member of the human race.  I think it was not the Dostinex that caused my behavior but it was my hormones doing a 180. I leveled at a prolactin of 15 after one year.
 
One year later after my second MRI, my endo looked at me and said, "If I gave this film to 10 radiologists I bet 9 would never even be able to tell you had a prolactinoma."  He then halved my Dostinex...
 
Two months later my prolactin rose to 38.  I was then put on the max dose again and have since then been at normal levels since.  I see my endo tomorrow for my yearly checkup...
 
In reguards to question number one: 
 
I whole heartedly believe that mens tumors are larger because they rationalize, like I did, that my lack of libido was just a symptom of my getting older (35 at the time.)  Had my wife and I not been trying to have children, I cannot guess how long I would have rationalized my lack of sex drive as old age and nothing else.  I guess I would have had to get the headaches and possible blindness that would have eventually resulted from the tumor growth.
 
I truly believe that a man's pride will stand in the way of him ever admitting there is a problem in the first place.  Had it not been for us wanting children and my wife's doctor requiring me to see a urologist to see if infertility was due to my not being healthy I might have never been diagnosed.
 
So that leaves me to wonder how many men are out there wading in the river of denial...
 
In my completely NON MEDICAL OPINION, all men at age 30 and every other year after should have a hormone screen performed to monitor prolactin levels in their blood stream.  If doctor's think a man will voluntarily come forward with "problems" in this department they are kidding themselves.  Dont wait until the headaches start and a marriage is dissolved before this is checked.
 
I am Living Proof...
 
 

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