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endos and surgeons

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  Recommend Message 21 in Discussion
From: LoSNaz

Mikki- most of the problem is me- I realize that. I just feel intimidated around people that aren't chatty & the more intimidated I feel, the less I'm apt to ask & the more I feel they haven't got the time fdor me.. But to be fair, here I am, not educated in these matters & here the Doc is giving just abrupt explainations that aren't very detailed & I don't know how to ask for more details because I don't know what to expect. I've never been able to explain how I'm feeling to doctors which is part of the reason that I went for 14 years not being diagnosed with Acromegaly. I just didn't know how to explain what was happenining to me.
 
Just today, I went through another one of my 'spells'. I've tried explaining to the Docs what is happening, but I just can't seem to explain it right. I get real weak, and almost pass out- it lasts for about 1/2 hour or so, and I get real weak, dissoriented, voices fade in and out & it keeps comming in waves. This was a bad one today. I tried telling a health care professional about it and they ran a few standard blood trests, checked blood pressure etc & couldn't find an answer. One Doc even tried to say it was depression- Depression? That's what I mean about not being able to get Docs to take me serious or aggresively investigate the situation. I just don't know how express what's happening.
 
I didn't mean my posts to sound like I was questioning Swearingen's dedication/expertise/caringness etc. I think he is great at what he does, it's justy I have a hard time with people that are so abrupt- As I said,
I just get intimidated & feel like I'm bothering them. So, it's mostly my fault. Just frustrated that with all I've gone through as far as serious problems, that I can't get Docs that I can talk comfortably with- Very rarely do I run into one that I can.
 
I do have questions about why Meds weren't issued before surgery being that I had a dual secreting tumor and due to the fact that part of the tumor was in an area that couldn't be seen when operating on me. It seems that shrinking the tumor first might have been the way to go- but the Doc didn't discuss this with me- I didn't learn about meds being able to shrink a tumor somewhat until after the operation.. I also have a question as to If the iMRI was used during the operation. From what I understand, the iMRI is able to both see an area that can't normally be seen, and to direct the tools when up in there. Now=- perhaps he did use the iMRI and still couldn't see- but if so, he didn't indicate this to me, and I didn't think to ask because I wasn't aware of iMRI until afterwards- it would have been much more comforting to know he did use it if he explaiuned that to me- but my appointments with him just felt rushed. To be fair, he did answer some of my questions when I did ask, but again, I just felt rushed & so didn't ask all I would have liked to. Also- had the medication situation been explained to me- both pros and cons, I might have opted for the meds first- then gone with the operation later when it lookerd like the are that was impossible to see was shrunk back into a visible area IF that's indeed what would have happened.

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