Hi Alaina, Welcome to the boards, we're glad you found us. I am sorry that you have to be here. I am 28yrs old and I also have Cushing's disease. How are you being treated? Have you had pituitary surgery? Do you see an endo that specializes in Cushing's? How were you diagnosed? What symptoms do you have? I had never heard of "melorheostosis" before, so I looked it up ( http://www.melorheostosis.com/ ). "Candle wax" disease appears to be more rare than Cushing's. How are they treating you? Have you found pain meds to help you? I am so sorry that you are going through all this. There are two great websites for Cushing's patients, created by MaryO: Please join us on the boards!! We're glad to "meet" you. Please ask any questions you may have. Both Minnie and I (manager team) have Cushing's disease, we'd be happy to answer your questions. I tested for Cushing's for 3 1/2 years before I was diagnosed. I am waiting to have pituitary surgery. Minnie is recovering from Cushing's disease. Take care. You're in my prayers. Meri | 