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New Message on Pituitary Chat

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From: Michellen567
Message 1 in Discussion

Hello everyone,   This site has been such an inspiration for me, I can't thank 
you all enough for taking the time to answer everyone's questions and just be 
so supportive.  Whenever I have been unsure of anything, I just look here and 
find what I'm looking for : )  I'm hoping someone can help me now as I'm a bit 
stressed, confused and not sure what to do...  I was diagnosed in June last 
year with a 15mm prolactinoma (sorry, I'm Australian and not sure what the 
conversion is!) I started out on dostinex which did not agree with me - I 
couldn't seem to stay awake - so switched to bromo (2.5mg, two tablets a day) 
which I've been on since September.  On Bromo, I struggle to keep my balance 
when standing, feel nauseous and my mouth keeps filling with saliva for around 
an hour and if I don't have it with a heavy meal of a night, I suffer terrible 
nightmares - has anyone else expereinced these symptoms???  I've been offered 
the new drug quagolide today but am hesitant to try such a new drug, 
particularly with the recent revelations about high doses of dostinex problems 
and have been told by my endo that surgery may not be a great option as if they 
can't get it all I would still need to be on medication to control prolactin 
levels anyway.  Feeling a bit dejected at the moment.  Has anyone else 
expereinced this?  Would it be worthwhile getting a second opinion??  What are 
the odds of sucessful surgery with tumours this size??  My endo has agreed to 
let me halve my bromo dose and only take it of a morning but does not think 
this is an appropriate solution.  Anxiously awaiting your replies, Thanks for 
reading! Michelle

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