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New Message on Pituitary Chat

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From: MinnieChat
Message 2 in Discussion

Hi Kerry!

My experinence is that neurologists and neurosurgeons are more interested in 
tumor size than what the tumor might be doing, and in your case, the doing is 
hormonal. When they say its so small, from a tumor standpoint, it is not of a 
surgical concern at this time.   H owever, it being a prolactinoma, the 
elevated prolactin hormones have your other hormones out of balance. That is 
why you are not getting normal periods, and why you have been lactating. I hope 
you have a good endocrinologist who specializes in pituitary disorders who can 
help you. I also found that having a good pcp that looked beyond hormones was 
important, as I had some other issues going on besides excess hormone 
production. The hormone changes can trigger migraines. Most neurologists don't 
link pituitary tumors and headaches. Often times for smaller tumors that do not 
have mass effect on adjacent brain structures, headaches are triggered because 
of the hormone changes. I know in my case, everytime it is time for my period, 
I get a migraine, and when it is over, I get a migraine.   Your endo needs to 
be doing a basic metabolic panel. It might help to have your cholsterol looked 
at and your lipids. It is also a good idea to have your electrolytes looked at 
- Calcium, potassium, sodium, phospohrus, and magnesium. Also, many of us with 
pit diease have problems with vitamin D.   Don't do your own checking on the 
script, cause the testing company looks in the computer to make sure things 
match. I found this out two weeks ago, when my endo sent me home to do a 24 
hour urine free cortisol test (which was on my lab sheet). They did a 24 hr 
calcium urine test instead (for osteomalacia) on account they used the 'puter 
entry and disregarded the paperwork.   Never a dull moment!   Take care!   
Minnie

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