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New Message on Pituitary Chat

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From: Marcia
Message 2 in Discussion

Have you tried the University of Michigan in Ann Arbor?  There is a pituitary 
center there.





-----Original Message-----

From: CUSHIE2X <[EMAIL PROTECTED]>

To: Pituitary Chat <[email protected]>

Sent: Thu, 3 Jan 2008 2:51 pm

Subject: Please help - drs recommendations





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New Message on Pituitary Chat

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From: CUSHIE2X
Message 1 in Discussion

I am completely lost! I have cushings disease for the 2nd time, having grown 2 
new pituitary tumors after microadenoma was removed in 2001. Have seen several 
drs - neurosurgeon who did original surgery, 2 endocrinologists. My cortisol 
level is not consistently elevated. No surprise there - I had intermittent or 
cyclical cushings the last time as well. However, I've been told that no 
surgeon 
will remove these tumors until cortisol is consistently elevated. Meanwhile, 
I'm 
symptomatic and my life is on hold. I'm looking for doctors who actually care 
and will cut these damn things out! I'm willing to travel (currently live in 
Illinois) to get quality care. Any recommendations? I've been researching the 
SKull Base Institute in California, specifically Dr. Shahinian and Dr. Theodore 
Friedman. I want only the best this time. I don't want to have to go through 
this a 3rd time! Please help!! Any and all recommendations are appreciated. I 
feel like I've reached the point of hopelessness.

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