Re: [QUAD-L] Help....

[Dana Miller]

It will be fine!  It will produce a lot of mucous at first because part of 
your intestine was used and that produced mucous!  It "will" bleed, the edge 
of the hole is tender right now.  I kept a SP in for nearly a "year" before 
'trusting' that weird thing in my belly.  Make sure you irrigate it!!  At 
least daily.  Do not be gentle about it!  Put 60cc's of sterile water inn 
the syringe and shove it in!  Then pull 30cc's out!  When you pull out, do 
not pull if you get resistance--the end of the catheter may be against the 
wall of your new bladder.  Irrigate again.  I irrigated at least twice or 
until it pulled back clear.  It is amazing how much mucous can build up in 
24 hours.

Between cathing, cover it with 2 x2's or a 4x4.  It will keep the irritation 
of clothes down.  When you do cath, make sure you get far enough in--the 
first few weeks of cathing, if my doc did it, I would be flabbergasted as 
far in she would put it.  The type of cath I use, only about 5-6 inches 
sticks out in order to get it all the way in.  I really should measure that. 
I will let you know what kind of cath I use as those red rubber hospital 
kind might as well be a piece of spaghetti!  Plus they drain slowly.

Do you still have a SP in?  Using that at night gives the hole a chance to 
rest and the sides to heal a bit.  If the cath will not go in easy, if there 
is resistance, take a deep breath and let it out--relax!  And keep your 
water drinking up!   It will help expand the new bladder--altho if you are 
cathing only every 4 hours, I would cut back on the water, or just sip it 
now and then.  If you drink a whole glass it will hit in about an hour and 
you will need to cath every 20-30 minutes, if that much, as your bladder 
will not be able to hold that much liquid at a time.  If your are leaking, 
up the caths to 3 hrs.

It will take quite a while to get used to it and to the new feelings you 
will get.  They re-arranged your insides!  They will be sore.  A picture 
will help.  Sometimes, no matter what you do, the durn thing will 'not' go 
in.  Relax for a bit and have someone else try.  The angle of the cath will 
help.  When it goes in the hole have it pointed down a bit towards the new 
bladder.

The main thing is to be patient!  It "will" work--stay on ditropan or 
whatever you use for bladder relaxation.  What kind of cath are you using? 
The red rubbers are the softest, but because of that it does not have enough 
stiffness to get thru the tight times, but will eventually if you lubricate. 
I forgot about lubricating--its been so long since I have used it, I forget 
about it.

Basically its one of those things that the more you 'fight', the worse it 
is.  Then suddenly it will go in, and you have no idea what you did!  I will 
be signing off for the day, but be optimistic, it will work and see ya 
tomorrow!                                                         take care,

Dana and ?
[EMAIL PROTECTED]
----- Original Message ----- 
From: "~LittleQuad~" <[EMAIL PROTECTED]>
To: "Quad-list post" <quad-list@eskimo.com>
Sent: Sunday, January 09, 2005 5:52 PM
Subject: [QUAD-L] Help....


Hey gang! I've had my surgery and my doctor says it was a success. I'm not 
so convinced! The hole gets clogged up and fluid build-up. It's very sore 
and bleeds when messed with. I can hardly stand to look at it, much less 
cath thru it! My mom tried and she couldn't figure it out. So I'm going to 
try it in a little while. Doc says do it every 4 hours. Ugh, help! Is it 
supposed to do that??? I'm going to get a pic taken of it and send, 
hopefully this week.
Thanks guys!!
Amye