Amye This is much better than a Dr.s opinion. -Cameron -----Original Message----- From: Dana Miller [mailto:[EMAIL PROTECTED] Sent: Sunday, January 09, 2005 8:33 PM To: Quad-list post Subject: Re: [QUAD-L] Help....
It will be fine! It will produce a lot of mucous at first because part of your intestine was used and that produced mucous! It "will" bleed, the edge of the hole is tender right now. I kept a SP in for nearly a "year" before 'trusting' that weird thing in my belly. Make sure you irrigate it!! At least daily. Do not be gentle about it! Put 60cc's of sterile water inn the syringe and shove it in! Then pull 30cc's out! When you pull out, do not pull if you get resistance--the end of the catheter may be against the wall of your new bladder. Irrigate again. I irrigated at least twice or until it pulled back clear. It is amazing how much mucous can build up in 24 hours. Between cathing, cover it with 2 x2's or a 4x4. It will keep the irritation of clothes down. When you do cath, make sure you get far enough in--the first few weeks of cathing, if my doc did it, I would be flabbergasted as far in she would put it. The type of cath I use, only about 5-6 inches sticks out in order to get it all the way in. I really should measure that. I will let you know what kind of cath I use as those red rubber hospital kind might as well be a piece of spaghetti! Plus they drain slowly. Do you still have a SP in? Using that at night gives the hole a chance to rest and the sides to heal a bit. If the cath will not go in easy, if there is resistance, take a deep breath and let it out--relax! And keep your water drinking up! It will help expand the new bladder--altho if you are cathing only every 4 hours, I would cut back on the water, or just sip it now and then. If you drink a whole glass it will hit in about an hour and you will need to cath every 20-30 minutes, if that much, as your bladder will not be able to hold that much liquid at a time. If your are leaking, up the caths to 3 hrs. It will take quite a while to get used to it and to the new feelings you will get. They re-arranged your insides! They will be sore. A picture will help. Sometimes, no matter what you do, the durn thing will 'not' go in. Relax for a bit and have someone else try. The angle of the cath will help. When it goes in the hole have it pointed down a bit towards the new bladder. The main thing is to be patient! It "will" work--stay on ditropan or whatever you use for bladder relaxation. What kind of cath are you using? The red rubbers are the softest, but because of that it does not have enough stiffness to get thru the tight times, but will eventually if you lubricate. I forgot about lubricating--its been so long since I have used it, I forget about it. Basically its one of those things that the more you 'fight', the worse it is. Then suddenly it will go in, and you have no idea what you did! I will be signing off for the day, but be optimistic, it will work and see ya tomorrow! take care, Dana and ? [EMAIL PROTECTED] ----- Original Message ----- From: "~LittleQuad~" <[EMAIL PROTECTED]> To: "Quad-list post" <[email protected]> Sent: Sunday, January 09, 2005 5:52 PM Subject: [QUAD-L] Help.... > Hey gang! I've had my surgery and my doctor says it was a success. I'm > not > so convinced! The hole gets clogged up and fluid build-up. It's very sore > and bleeds when messed with. I can hardly stand to look at it, much less > cath thru it! My mom tried and she couldn't figure it out. So I'm going to > try it in a little while. Doc says do it every 4 hours. Ugh, help! Is it > supposed to do that??? I'm going to get a pic taken of it and send, > hopefully this week. > Thanks guys!! > Amye >
