Hello Irene,
  My heart goes out to you and your son, a old gentleman nurse that worked at the Sheapard center told me where there's life there's hope.  I know what you and your son are going through, when I first got hurt I was mad at the world.  But with family and friends I got through it, all quads suffer ever day but we stride on.  There is life after quadism, try to encourage your son to join this list.  Or he can talk to me at [EMAIL PROTECTED] I mite get him out of his funk.  I can show him that there is plenty of things he can do.  Get all the help you can Irene don't wear yourself out trying to do all his care by your self.  You can burn yourself out pretty quick.  If you all would like I can send you some pictures of all the things I do around the farm.  Wish you and your son the best! 
Silas
----- Original Message -----
Sent: Saturday, March 18, 2006 12:02 AM
Subject: Re: [QUAD-L] (no subject)

Hi Dana,

 

So nice to hear from you.  My son is 38 and living in a nursing home because I’m yet working the maze with healthcare, social agencies, etc. ($$$) to get him home where he can find a quality life style.  He’s miserable in nursing home and I ache and pray to make things better for him. 

 

He’s yet to accept or somehow adjust to living as a quad, not too open to sharing his thoughts/feelings with other quads—despite fact he needs desperately to do so.  I continue to seek ways to find the correct “nudge.”  I’ve told him about this group and how valuable it’s been for me, etc., hoping he’ll soon act to join. 

 

Overall, it’s been very hard for both us, but we are compelled to work at it daily.  Life is very different now.  Most of our family members, friends and associates are no longer a part of our lives as before; but I honestly believe the experience is making each of us wiser, stronger humans. Beneath and within all the anxiety, frustration, fears, and anguish, I truly believe he feels the same.  We are learning a deeper and wider meaning of love; a truer connection with Spirit...with ourselves.

 

Thank you so much for your compassion.

 

Irene

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