Hi Irene,
I suggest that your son get on the Waiver and then decide what the additional perk there will be. Just my opinion but I've noticed a lot of "Reps" don't really understand the Waiver Program very well. Unless he is already receiving SSI, it will help him.
Does your son have access to a computer? Tell him to hang in there and you'll get him home.
With Love,
CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA
[EMAIL PROTECTED] wrote:
I applied 2 years ago for the NJ Waiver and, after spending 2 hours in discussion with the rep, learned the only additional perk would be 1! 6 hours payment for in-home nursing (..."but most only get up to 8 hrs.."). Further that there would be a "cap" placed on payments for all other needs; that the application would not be considered until such time as I'd secured a home that met particular specifications (doorways, bathroom and other accommodations). I live in an apartment building (1-bedroom) that does not meet their specifications, cannot afford meeting them on my own. All attempts at securing a Sec. 8 voucher for him has been futile (.."not accepting new applications at this time because list too long," "keep checking the newspaper for announcement," "we're waiting to receive vouchers from federal government," etc.). I've begun to look out of state and he is now open to a move as well ("...friends and family don't visit that much anyway.")This is my primary cause of tears and frustration, in that each day at the nursing home is a dis! aster and keeps him on edge. I don't know how much longer I'll be able to keep his mind and spirits from going over the breaking point (or my own).Thanks so much for the opportunity to share and release.Love,Irene
