It seems rather odd that the "waiver" program, which saves the state money, should have any waiting list at all. Call your local state senator and representative. I get the same BS in Ohio. You have my sincere best wishes. I'm pretty certain that the states would rather we all lived in nursing homes so the owners can give great big political contributions.
 
john 
 
In a message dated 3/18/2006 2:25:24 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes:
I applied 2 years ago for the NJ Waiver and, after spending 2 hours in discussion with the rep, learned the only additional perk would be 16 hours payment for in-home nursing (..."but most only get up to 8 hrs..").  Further that there would be a "cap" placed on payments for all other needs; that the application would not be considered until such time as I'd secured a home that met particular specifications (doorways, bathroom and other accommodations).  I live in an apartment building (1-bedroom) that does not meet their specifications, cannot afford meeting them on my own.  All attempts at securing a Sec. 8 voucher for him has been futile (.."not accepting new applications at this time because list too long," "keep checking the newspaper for announcement," "we're waiting to receive vouchers from federal government," etc.).  I've begun to look out of state and he is now open to a move as well ("...friends and family don't visit that much anyway.") 
 
This is my primary cause of tears and frustration, in that each day at the nursing home is a disaster and keeps him on edge.  I don't know how much longer I'll be able to keep his mind and spirits from going over the breaking point (or my own).
 
Thanks so much for the opportunity to share and release.
 
Love,
Irene
 

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