Shit fire,
Nobody should be left alone on any holiday , my agency won't pay for holidays
either. I have a aid that comes every morning come hell or high water, he
helps shower and get me up. I have great nurses, there ain't no way they would
leave me alone expecialy Amy. But I have family also that come on holidays,
but it takes them away from their family. My heart goes out to all of you that
don't have anybody on holidays, wish you could come spend Christmas with me and
my family. Dam it there ought to be a law for leaving someone disabled alone,
I swear people just don't give a shit or they would work something out for you
all that don't have anybody, it wouldn't kill them to stay long enough to get
you up. Try and have a Merry Christmas, ill be praying for everyone!
Silas
----- Original Message -----
From: DeLiMiTeD4
To: DAANOO ; [email protected]
Sent: Sunday, December 03, 2006 6:55 PM
Subject: Re: [QUAD-L] Agency Help Over the Holidays
A tip on how to make it over 24 hours without help. You can attach a second
drainage bag to the main bed bag doubling the amount of urine it can hold.
Simply attach the second bags intake line to the drain line from the first bag
and unlock the first bag. It should drain easily into the second bag as it
fills. Yes, a third bag can be attached the same way. Before emptying the bags,
ask the aid to empty the intake lines. It helps limit the mess they seem to
think we can't smell. Two water jugs and some fruit on the bedside table help
make it through. I also have some pills that make it possible to just about
sleep through most holidays.
I try to do all my Christmas gift giving by Christmas eve so Christmas day
isn't a big deal if nobody shows up. The agency is aware there's nobody
scheduled for Christmas Day. All my aids have let me know they can't come. I
won't be surprised if nobody shows up but it isn't as though it is some sudden
thing. My agency stopped holiday pay. Why should they want to work.
I don't know why syringo%^&^% begins to be painful after so many years of not
bugging us. I don't know what to expect next. My doctor isn't sure either
because he has no information on quads that have lived over 30 years as quads.
He wants to do tests, but I'm not ready to be a guinea pig at this moment and
wouldn't you know it, they can't do the tests during the holidays.
john
In a message dated 12/03/06 16:47:20 Eastern Standard Time, DAANOO writes:
Hi Linda,
How could you be alone for so long? I would be on the phone every hour
calling them and trying to make a complaint to someone that was in charge of
their agency. That is so cruel and life-threatening, anything could happen.
Could you call anyone to check my view so you could eat?
I am so sorry Linda that you had to go through that. That agency should be
fined and I would probably see if I could find another one, is there any more
in your area? I remember you writing a while back that a couple of your aides
had problems, want an car accident and the other one was in some kind of
psychiatric rehab. How are they, did they come back?
Dana
Hi Lori,
Believe me, I thought that I was going to have a panic attack. I took
little sips of my water, just enough to wet my dry mouth & I didn't want to
drink too much, fear of filling my UDBag. Thankgoodness I have a 4000cc bag.
Yes I was afraid my bag was going to burst or I would have autonomic
dysreflexia, luckily I didn't. I am on M-W-F bowel program, so that wasn't a
worry. Then 5pm Sunday a CNA showed up & brother was I pissed off!!! On Monday
the Nursing Agency was apologizing.
Lindaf
Dear Linda,
If I were left for that long alone I would be dead. In fact, I would
not make the first 24 hours because my urinary bags would be overfull leading
to autonomic dysreflexia leading to death in a short period of time.
Who helped you with urinating and/or bowel routines in that
timeframe? Who helped you get drinks and food?
Lori
PS-- please forward this to the list if you would like so that they
will know your answers if they have the same questions.
-------Original Message-------
From: LINDA FERRELL
Date: 12/2/2006 1:03:54 PM
To: [email protected]
Subject: Re: [QUAD-L] Agency Help Over the Holidays
David
I agree with you, all states should hold these Agencies more
responsible. I know my last agency left me from Friday nite until Sunday with
no help. I had dropped my mouthstick & my lifeline button was not close enough
to reach. I just layed in bed & did a lot of meditating & singing.
Lindaf
