Glad I'm not the only one.

Dave & Lori Michaelson wrote:
The county, state and federal government programs are there to help you! NOT!!! Ain't it great? Pissed in our country... Lori
C4/5, complete, 27 years post
Tucson, Arizona
/-------Original Message-------/ /*From:*/ Jeremy Dickinson <mailto:[EMAIL PROTECTED]>
/*Date:*/ 7/13/2007 2:18:07 PM
/*To:*/ Quad List <mailto:[email protected]>
/*Subject:*/ [QUAD-L] VR & BSCI
Yesterday was a bittersweet kind of day. I had a meeting with Voc Rehab
and Brain and Spinal Cord Injury Program (BSCI). Voc Rehab is currently
paying tuition, books, and nursing while I'm at school. BSCI pays for my
nursing outside of school. Everything has been ok, until the meeting. At
the meeting, BSCI  told me that they need to cut my services to their
guidelines starting in October. Basically what they told  me is that if
I can't cut my nursing services down to 3 hours a day (I get at least 20
hours a day now) they will terminate me from their program. That means I
will not be going to school and I will not be able to move out. My
parents would have to take care of me 24/7. This is is so frustrating to
me. My condition did not improve enough to not need nursing. I wish it
did. How can they help and support me and then tell me to cut back? I
can get attendant care and personal care but those people can't give me
medication (which I get every 3 hours), they can't cath me, nor can they
put oxygen on me (which I sleep with). I told them to put it in writing
and I'm going to appeal the process. I'm just so pissed. I don't know
what else to do. Thought I'd share.
Jeremy Dickinson
C-3 Quad, 24
6 1/2 years post
        
        


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