I'm straight cathed PRN. I can feel when I have to go. Dr. does not want
me to do a foley because of bad experiences in the past. Surgery isn't
an option for me because of my anatomy. So I'm cathed at any time. Plus
I'm taking meds 3 hrs a day, and I'm on oxygen at night. That all needs
LPN/RN care.
Bill_J wrote:
*Why do you need 20 hours/day of nursing service? Couldn't a nurse's
aid do some of that? Usually nursing (RN/LPN) are for trach care,
changing caths, wound care, etc. A nurse aid could get you dressed
and up. Companion care can fix/serve meals, do laundry/housekeeping,
etc. Have you asked about utilizing companion care and nurse aids more?*
**
*Bill age 56
C6 Incomplete since 7/20/68
Leesburg, FL
Do not meddle in the affairs of dragons, for you are crunchy and good
with ketchup.*
----- Original Message -----
*From:* Jeremy Dickinson <mailto:[EMAIL PROTECTED]>
*To:* Quad List <mailto:[email protected]>
*Sent:* Friday, July 13, 2007 5:19 PM
*Subject:* [QUAD-L] VR & BSCI
Yesterday was a bittersweet kind of day. I had a meeting with Voc
Rehab
and Brain and Spinal Cord Injury Program (BSCI). Voc Rehab is
currently
paying tuition, books, and nursing while I'm at school. BSCI pays
for my
nursing outside of school. Everything has been ok, until the
meeting. At
the meeting, BSCI told me that they need to cut my services to their
guidelines starting in October. Basically what they told me is
that if
I can't cut my nursing services down to 3 hours a day (I get at
least 20
hours a day now) they will terminate me from their program. That
means I
will not be going to school and I will not be able to move out. My
parents would have to take care of me 24/7. This is is so
frustrating to
me. My condition did not improve enough to not need nursing. I
wish it
did. How can they help and support me and then tell me to cut back? I
can get attendant care and personal care but those people can't
give me
medication (which I get every 3 hours), they can't cath me, nor
can they
put oxygen on me (which I sleep with). I told them to put it in
writing
and I'm going to appeal the process. I'm just so pissed. I don't know
what else to do. Thought I'd share.
Jeremy Dickinson
C-3 Quad, 24
6 1/2 years post
