I am considering it if I dont get relief from this next surgery. I'm just freaking out because more rods. At least 3 more levels. They are already from T7 all the way into my pelvis so now we are talking about T 4. I'm so nervous. I was a quad and got better and now I feel like I am going backwards. It's hard to know you are going to lose it instead of just losing it without knowing. I am so afraid of losing idenpendence. I know a lot of you have caregivers but I honestly cant stand anyone around me for very long every day. They have to come at least for 5 hours because they come from 30 to 40 miles away. They also have a habit of not showing up and that freaks me out. I can't imagine getting stuck either in my bed or in my chair. Anyhow I jumped off subject. I will definatly look into it if I don't get relief but I think I will since I had relief when I first had this fusion. I only hurt if I did too much. Now everything is too much but I still keep getting up because I don't want to have to lay in bed all day and let my life go by on me. I do what I can as carefully as I can for now. Thanks for the advice, Stacy
----- Original Message ---- From: Mark Jackson <[EMAIL PROTECTED]> To: Stacy Harim <[EMAIL PROTECTED]>; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [email protected] Sent: Monday, May 19, 2008 3:44:02 PM Subject: RE: FW: [QUAD-L] neurontin Stacy, you might be a good candidate for a pain pump which is surgically implanted in your spinal column or cord but I'm not sure which and it's much easier on you because it goes straight tov the sorce and requires smaller doses because of this. You should ask your doctor because I've heard it's changed peoples lives for the better if it works. I've tried to get one but since they've cut medicaid to the bare roots there's very little covered any more. That doesn't mean you can't though, it differs state by state I think and if you're on Medicare I know it's covered. Mark Jackson RollinOn ________________________________ From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Monday, May 19, 2008 12:02 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [email protected] Subject: Re: FW: [QUAD-L] neurontin I've tried morphine and dilatid(sp?). Neither have worked. Not even for my back where the screw has moved its way through the vertebrae. I have also tried oxycodone. I do take 50mg of cymbalta but that was prescribed when I was going through all of the spinal surgeries and got really depressed about it in the hospital. I gave up on all pain meds except for the lyrica. One thing you all in pain might want to ask about is methadone. It does something with the nerve endings to relieve pain. It's much less of mg. for pain. I did take it at one time but when my spasms got really bad, I had to quit it to take diazipam because it lowers your heart rate. I got it through my pain doctor. It did really work and I am considering taking it again because I no longer take the diazipam since my spasms are much better since I got my spinal surgery. It's something I would consider if your pain is that bad. It worked for me and my pain at one time was out of control. Since I have been taking lyrica, its' been much better but since my back is in so much pain I am going to talk to my doc about the methadone again. I think it makes a difference. I'm sorry to hear about your pain. I took a health psychology class and we learned about managing pain and it personally helped me learn how to manage it. There are things you can do to help take your mind off of it. In some ways its kind of like medatation by thinking of other things in a nice quiet setting that relax you. I'm sure most of you in a lot of pain have tried everything you can think of but just letting you know some of the things that help me. Good luck, Stacy ----- Original Message ---- From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> To: [EMAIL PROTECTED]; [email protected] Sent: Monday, May 19, 2008 11:51:06 AM Subject: Re: FW: [QUAD-L] neurontin Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis ________________________________ Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM
